Simone's Oasis Foundation

Happy 80th bday to Ugo and Sim Sim’s amazing grandpa @ef____sss . To celebrate here is the new Ugo and Sim Sim song “Grandpa’s House” featuring Maya & Max. We love you grandpa! Click link in bio for the song on @simonesoasis @youtube channel as well as link to song on @audiomack and @soundcloud Song written by me Tonye Faloughi Ekezie (with amazing input from the kids). Produced by @spane5onthemix Video by @jassygeneration https://youtu.be/ik9pq1lQLM8?si=7MHtj2o-CGb3K8eK #ugoandsimsim #grandpashouse #ittakesavillage #familyisforever #dopeblackdads #inclusivity #neurodiversity #nigeriancreatives #afrobeat #amapiano #specialneedsfamily #africanfamily #proudlyafrican

Our super star up in #timesquarenewyorkcity🌆🗽♥️ . A massive THANKS 🙏🏽 @ndssorg for choosing Simone and for all the hard work they do in the #downsyndromecommunity . . thanks to @alicia_mathieu216 of @down2defend for snapping an amazing selfie and whose kind words made us feel part of the occasion even though we were not there physically. Let’s dream big baby girl! 💪🏾💪🏾💪🏾💪🏾💪🏾💪🏾🎉🎉🎉🥳🥳🥳🥳🥳🥳🥰😆😆😆😆😆

Posted @withregram • @tonye_f Here’s a little snippet of my speech at the @unitednations New York today. To be honest it was an amazing experience. This part of my speech I shared the launch of the Black Child Down Syndrome Project @blackchild_ds that was happening simultaneously and the importance of a project like this in improving visibility and care for black children and families with #downsyndrome I am so proud of @misanharriman @pandastree_blackdsuk @blacksenmamas_uk @t21alchemy @rrossprojects @rosie_russell01 @darkartabiola @hope93gallery @emi_faloughi @iamgozihalima because together we made this happen. If you’re in London the exhibition continues till April 1st at Hope 93 gallery. #wedidit!!!!! Swipe 👉🏼👉🏼👉🏼

What were some of the first things people told you to do after your baby’s diagnosis? Please share 🙏 . . . . . . . . . #BCDS #blackchilddownsyndrome #downsyndromeawareness #downsyndrome #downsyndromemom

‼️ 🔔 Voting closes today!!! Please vote now for our BLACK CHILD DOWN SYNDROME (BCDS) project @bcds_project to win @hsbc_uk National Diversity Award 🥇 as Simone of @simonesoasis says VOTE FOR US WE WANT TO WIN!!! Here’s how to vote: 1️⃣ Click the link in @bcds_project bio or the 🔗 here 👉🏽 /awards-2026/nominations/black-child-down-syndrome/ 2️⃣ Tap “Vote for BCDS Project here” 3️⃣ Go to the official voting page 4️⃣ Enter your details and your reason for voting 5️⃣ Submit your vote 🚨 Don’t stop there — share the link immediately and get others to vote too 📅 Voting closes TODAY— no extensions Don’t let our Sim Sim and other kids like her down!!! Every vote matters. Let’s show up and make this count 💛 We are counting on you to bring this home REPRESENTATION REALLY DOES MATTER 🫶🏽💪🏾 BCDS is a collaboration project by @simonesoasis @blacksenmamas_uk @pandastree_blackdsuk @t21alchemy and @misanharriman to bring awareness to the existence and lived experience of Black children with #downsyndrome and their families, highlighting the intersection of race and disability through the lens of photography and film.

Voting closes tomorrow people!!!! Have you voted for our @bcds_project which has been nominated for @hsbc_uk National Diversity Award?! We need your votes! Hurry as voting closes tomorrow. It would mean so much to win. Here’s how to vote: . 1️⃣ Click the link in @bcds_project bio 🔗 or here 👉🏽 /awards-2026/nominations/black-child-down-syndrome/?utm_source=ig&utm_medium=social&utm_content=link_in_bio 2️⃣ Tap “Vote for BCDS Project here” 3️⃣ Go to the official voting page 4️⃣ Enter your details and your reason for voting 5️⃣ Submit your vote 🚨 Don’t stop there — share the link immediately and get others to vote too 📅 Voting closes tomorrow!!!! Like Ugo says, REPRESENTATION MATTERS 🫶🏽💪🏾 #ittakesavillage❤️ #communityaction #blackdownsyndrome #downsyndromeawareness💙💛 #blackanddisabled

Vote for Sim Sim to win!!!! Yes oh! @bcds_project has been nominated for the @hsbc_uk National Diversity Award.! 🥳 Show your support by voting and sharing for others to vote too! Place your vote as follows: 1️⃣ Click the link 🔗 in @bcds_project bio or here 👉🏽 /awards-2026/nominations/black-child-down-syndrome/?utm_source=ig&utm_medium=social&utm_content=link_in_bio 2️⃣ Tap “Vote for BCDS Project here” 3️⃣ Go to the official voting page 4️⃣ Enter your details and your reason for voting 5️⃣ Submit your vote 🚨 Don’t stop there — share the link immediately and get others to vote too 📅 Voting closes May 13 — no extensions Don’t let our Sim Sim of @simonesoasis and other kids like her down!!! Every vote matters. Let’s show up and make this count 💛 We are counting on you to bring this home #communityspirit❤️ #downsyndromeawareness #blackdownsyndrome #specialneedsmum #ittakesavillage❤️

Our BLACK CHILD DOWN SYNDROME @bcds_project has been nominated for an @hsbc_uk award!!!⏳ Time is running out. We need your vote NOW. 💛 voting closes soon! ‼️🔔🚨It takes less than a minute, but it makes a real difference. Check out below 👇🏽 instructions 👇🏽 The #naija🇳🇬 community has been an integral part of us getting this far. Be it @misanhharriman who shot the beautiful portraits of 9 black children with Down syndrome, to @edamisan1 who shot the intimate parent interviews in which they shared their lived experience, to @anitaalexanderson who introduced me to @darkartabiola of @hope93gallery who helped us launch the project last year in his space, to @demiabiola who pushed for BCDS to be featured on @piccadillylights and @oceanoutdooruk Naija no dey carry last oh!!! Here’s what to do right now: 1️⃣ Click the link in our bio 2️⃣ Tap “Vote for BCDS Project here” 3️⃣ Go to the official voting page 4️⃣ Enter your details and your reason for voting 5️⃣ Submit your vote 🚨 Don’t stop there — share the link immediately and get others to vote too 📅 Voting closes May 13 — no extensions Every second counts. Every vote matters. Let’s show up and make this count 💛 We are counting on you to bring this home . . . . . . . . #blackchilddownsyndrome #BCDS #BlackChildrenWithDownSyndrome #inclusionmatters

‼️ 🔔 Great news!!! My Ugo and Sim Sim picture books have found a new home with @hope93gallery in the heart of London!!! Special thanks to @darkartabiola for making this happen. . Alongside the works of talented artists @avabintagiallo and @misanharriman you will find Ugo and Sim Sim!!! 🥳🥳🥳🥳 the first picture books series globally to feature a black main character with #downsyndrome and created 💯 in Nigeria 🇳🇬 💪🏾 . So if you’re going to the Hope 93 Gallery for my books, then take some time to experience the art exhibitions. If you’re going for art, take some time to explore my books. It’s a win win 🏆 🤓😜 . Special shout out to my editor and publisher @lolashoneyin of @ouidabooks we may be small but we dream BIG! . #collaborationiskey #ugoandsimsim #ittakesavillage #specialneedsmum

Watch the video. This is how it should be done. . . . . . . . . #bcds #blackchilddownsyndrome #downsyndrome #specialneedsparenting #specialneedsawareness

Main character energy from @simonesoasis this May!!! Go Sim Sim! 😂 . A lot coming up this month so watch this space. Wishing you all God’s blessings and favour this month 🙏🏽🫶🏽❤️ . Let’s goooooo 💪🏾💪🏾💪🏾💪🏾 #specialneedsmum #downsyndromeawareness #asd #specialneedsfamily #specialneedsmom

Its a wrap! 🎉 As the second installment of the Black Child Down Syndrome (@bcds_project ) Reflecting Radience exhibition comes to an end today, we want to extend a special thank you to our host @the_london.archives for having us this month. These amazing individuals and this project were meant to be seen, and we are not done yet. If you want to learn more about project BCDS visit the link in the bio and if you visited the exhibition please fill out the feedback form there also. We really appreciate your continued support 🙌🏾 Watch this space... #trisomy21 #ReflectingRadiance #isupportbcds #inclusionmatters #representationmatters