Shift.ms - Multiple Sclerosis Community

@shiftdotms

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If your doctor has never asked you to complete this hieroglyphs puzzle or walk as fast as you can down the office while being timed I don’t wanna hear it from you šŸ™‚ā€ā†”ļøāœØ If you can relate to this, I see you. You’re not alone. It sucks that someone would rather speak badly than connect but that’s on THEM. Judging + gossiping about a life you 1) know nothing about 2) wouldn’t survive 10 minutes in 3) again are not in the same position… is just wild behavior. What happened to supporting on another? What happened to being kind, leading with compassion, not being a butthole? If there’s on thing I’ve learned it’s that those types of people are NOT my people and that’s okay šŸ¤ we gotta keep being the ch~ill~ goddesses we fckn ought to be šŸ§šā€ā™€ļøāœØ Repost if this resonated, tag/share with a friend (or several) and save for yourself as a reminder 🫶 - - - #ChronicIllnessSupport #MsAwareness ChronicallyChILL ChronicallyChILLClub #MultipleSclerosis #Ms ChronicIllnessAwareness ChronicIllness ChronicIllnessAwareness MultipleSclerosisAwareness MultipleSclerosisWarrior ChronicIllnessWarrior AutoimmuneWarrior MsStrong KeepSmyelin Autoimmunediseases Lupus Diabetes POTS Rhuematoidarthritis Fibromyalgia Endometriosis InvisibleIllness ThisIsMs vasculitis MsSupport Spoonie SpoonieSupport Dysautonomia GravesDisease Disability ChronicIllnessAdvocate
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#mentalhealthmatters #wheelchairtravel #dowhatmakesyouhappyā¤ļø #givingupisnotanoption #keepfightingandkeepsmiling Mental Health Awareness Week in the UK is 11th - 17th May 2016, the theme is Action. People with multiple sclerosis have a higher chance of suffering from anxiety and depression. We all deal with MS symptoms differently it’s important to seek help with your mental health. Getting out for fresh air and sunshine works wonders for my mental health. Concentrating on different noises while watching the waves has a calming impact. Listening to the chorus of the birds transports your mind and gives you a moment in time. Gentle exercise leaves you with a sense of achievement whether that is physical or incorporating breathing techniques thus exploring mindfulness. It’s good to talk or reach out to someone, a friend, relative or therapist whatever works for you. All it has to do is make sure you are happy.
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And that’s on living with chronic illness ā¤ļøā€šŸ©¹ if you heard this 5 second audio and felt it in your soul, then you already know. These are words I’ve told myself over and over again- ā€œI’ll be goodā€ ā€œI’ll be fineā€ I laugh off my medical traumas šŸ˜… and then I start over šŸ” Living with chronic illness can feel like you’re starting over day after day, and trying to navigate that unpredictability can be difficult asf! Just know if you’re in the thick of it, whether you’re newly diagnosed or have been for 25+ years, you are NOT alone. Just keeping going, one foot in front of the other, one ā€œI’m goodā€ ā€œI’m fine, one start over at a time šŸ«‚ Repost if this message resonates, tag/share with a friend who may relate, leave a ā¤ļøā€šŸ©¹ in the comments if you feel seen + save for yourself as a reminder to keep starting over as many times as you need! Ilysm - - - #ChronicIllnessSupport #LivingWithMs #MultipleSclerosis #MS #chronicillnessawareness ChronicallyChILL ChronicallyChILLClub MultipleSclerosis Ms ChronicIllnessSupport ChronicIllness ChronicIllnessAwareness MultipleSclerosisAwareness MultipleSclerosisWarrior ChronicIllnessWarrior AutoimmuneWarrior MsStrong KeepSmyelin Autoimmunediseases Lupus Diabetes POTS Rhuematoidarthritis Fibromyalgia Endometriosis InvisibleIllness ThisIsMs vasculitis MsSupport Spoonie SpoonieSupport Dysautonomia GravesDisease Disability ChronicIllnessAdvocate
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Last Monday, 4th May, was my 10 year anniversary of being DX with #MS. I still remember that day. As a family after losing several family & "family" in the previous years, we went into '16 thinking that that year had to be a good year for us . I started a new job, & on that same day I started throwing up. I couldn't eat or drink. By Wednesday lunchtime I couldnt keep going. That evening was the first of many drs trips and then hospital trips, & then 2 MRIs & on the 4th May Dr Lily broke the news. I didn't cry. Mum did. I just thought, at least it's not cancer . My life changed that day. I lost the life I thought I was going to have. I was 25 & everything came to a stop . But wow, how I never fully realised just what being diagnosed with MS was going to take from me . One by one, I met new people. People I thought were friends, I thought loved/cared for me. But one by one, they took more from me. S, L, H, L, K, Z & S . When everyday, my body was already battling, these people were now battling to take more from me . If I hadnt been diagnosed with MS, I wouldn't have been used & abus3d by these people. I wouldn't have given them the only energy I had to give . But I also wouldn't have also started to heal from the trauma of my childhood. If it wasn't for the trauma these people inflicted on me, I wouldn't have "ran" smack bang into the brick wall. I had to stop and start to process the pain. Then start to realise that I do deserve to be loved. Be loved by friends, by family, and maybe one day, by a man that isnt just telling me he loves me while he is also badly abusing me . This week I finally got my tattoo finished. Im breaking free, being reborn. Im starting to process & overcome everything. Yes, I disappear sometimes when I'm really struggling, but my #friends & #family are so incredible and I know no matter what I believe, I know my MS & my #trauma aren't my fault & they dont make me a burden . I also know without MS I wouldn't have my gorgeous home, with my gorgeous garden. I never would have given Miss Bleu a forever home. I definitely wouldn't have my quirky Mr Spicy, Buckaroo . Here's to 2026 being 10 years of MS, but also the year I #breakfree 🧔
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Being Indian, and living in an Indian household, I'm surrounded by lots of different flavours. From turmeric to ginger to garlic to chili's to homemade masala and so many more. All of these ingredients are packed with nutrients that are clean and are so good for our bodies. The plus side is that they are very nutritious, but the downside is they release a very strong smell when they're cooking, and it seems to just stick to your clothes 🤭 IYKYK We call the base of our cooking "thorka" and you'll be able to see more of this along with some simple Indian dishes which are healthy, nutritious, and easy to make. With MS, I try to preserve as much of my energy as I can, hence, I tend to do a lot of batch cooking and I stick to the easier foods so I don't get exhausted. Do you like cooking and do you like trying different flavours??
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Sometimes I catch myself daydreaming about a life where I don’t have to constantly think of ways to adapt, ways to get insurance to approve xyz, ways to teach loved ones to be considerate, ways to not only live but thrive in a society that isn’t exactly friendly to the chronic illness community. Yet, for as many moments as I daydream of what life ~could have~ been like, I am thankful for what it ~is~. I love who I am (sometimes wish my body would keep tf up but itssss okay). It’s a process to get to a space of acceptance and surrender and sometimes I catch myself daydreaming of a different life and there’s nothing wrong with that. It’s just my reality ā¤ļøā€šŸ©¹ If you’ve caught yourself daydreaming, you’re not alone. Take it day by day babes šŸ«‚ we’ve got this xx Tag/share with a friend who may benefit from knowing they’re not alone + save for yourself as a reminder šŸ¤Ž - - - #ChronicIllnessSupport #Lifewithchronicillness #spooniesupport #multiplesclerosis #lifewithms ChronicallyChILL ChronicallyChILLClub MultipleSclerosis Ms ChronicIllnessSupport ChronicIllness ChronicIllnessAwareness MultipleSclerosisAwareness MultipleSclerosisWarrior ChronicIllnessWarrior AutoimmuneWarrior MsStrong KeepSmyelin Autoimmunediseases Lupus Diabetes POTS Rhuematoidarthritis Fibromyalgia Endometriosis InvisibleIllness ThisIsMs vasculitis MsSupport Spoonie SpoonieSupport Dysautonomia GravesDisease Disability ChronicIllnessAdvocate
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When you work out that you’ve run out of your meds for MS AND it’s 3pm AND it’s Friday AND it’s a bank holiday weekend…. Well it turns out that Charing Cross Hospital’s MS team are formidable! I hardly need to bother the team but when I do, they are very quick to act. Exceedingly impressed. I wonder though, do other people experience the same thing? Especially out of London? Do let me know, if you can, either in the comments below or send me a message, if easier. Either way works well. thank you šŸ™šŸ» #tecfidera #multiplesclerosis #sograteful
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#wheelchairtravel #accessible #boutiquehotel #givingupisnotanoption #keepfightingandkeepsmiling Accessible travel may take extra time researching in depth to ensure it will meet your personal needs. It’s frustrating when you cannot find photos of the ā€œ accessible ā€œ room. As let’s be honest without reviewing evidence in advance you are certainly not going to wait until check in. To ensure you will manage in the guest room you can contact the hotel directly and request photos of the actual room and bathroom. Once you find a hotel where you can enjoy and rest in style you will return time and time again. @fitzbelfast is a luxurious boutique hotel located in the vibrant heart of Belfast city centre. 2 minutes walk from Belfast Grand Central Station and right beside the Grand Opera House. Outstanding customer service from all staff that automatically go the extra mile for the guest/s restaurant that serves delicious fresh food whether that be breakfast or dinner. Belfast is a top-trending 2026 destination, ranked in the top 25 worldwide by TripAdvisor and top 10 in the UK by CondĆ© Nast Traveller for its vibrant culture, maritime history, and charm. @tripadvisor @condenasttraveller
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Garlic mushrooms are one of those simple size that go with everything. I like cooking the mushrooms in a dry pan fur so they release their water. Then I add ghee and garlic for flavour Simple, quick and delicious! Do you love garlic???
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To those who stick by our side, who silently and loudly support, who show up day after day. Thank you ā¤ļøā€šŸ©¹ we love you. Send this to your gem of a person (or several gems) šŸ«‚ and may this serve as a reminder that there aren’t just losers out there! - - - #ChronicIllnessSupport #MultipleSclerosisSupport #MsSupport #MultipleSclerosis #ChronicillnessAwareness ChronicallyChILL ChronicallyChILLClub MultipleSclerosis Ms ChronicIllnessSupport ChronicIllness ChronicIllnessAwareness MultipleSclerosisAwareness MultipleSclerosisWarrior ChronicIllnessWarrior AutoimmuneWarrior MsStrong KeepSmyelin Autoimmunediseases Lupus Diabetes POTS Rhuematoidarthritis Fibromyalgia Endometriosis InvisibleIllness ThisIsMs vasculitis MsSupport Spoonie SpoonieSupport Dysautonomia GravesDisease Disability ChronicIllnessAdvocate
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šŸ’”If you have MS and you’re resting every time you feel tired… you might actually be making your fatigue worse. Sounds backwards, right? But here’s the reality šŸ‘‡ Fatigue affects up to 92% of people with MS—and for years the advice was ā€œjust rest.ā€ The problem? Too much rest leads to deconditioning, weaker muscles, and even MORE fatigue. It becomes a vicious cycle. šŸ”„ The science is clear: structured movement (not random exercise) is one of the most effective ways to reduce MS fatigue. We’re talking simple, consistent sessions 2–3x per week—not extremes. šŸ‘‰šŸ» It’s not about pushing harder. It’s about training smarter, with the right dose for your nervous system. If you or someone you support has MS, this is something you need to understand. āž”ļø Follow @asoneaustralia for more evidence-based insights that actually make a difference.
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When I started my MS anti-inflammatory journey, I was so nervous about what people would think, what people would say and how difficult it would be. But as I got more comfortable and more used to it, I realised, that it was just another day. Just another day but with different ingredients Just another day but with a different mindset And just another day but with more memories The hardest step for me, was understanding what's good for my body. The diet that I follow has been inspired by the Wahls protocol but mine is adapted for what works for me. I have cut out dairy and sugar. I don't eat grains or legumes. I eat so many colourful vegetables. I eat meat and eggs . You know I love eggs! If you're thinking about starting something different, you've got thisšŸ’ŖšŸ½and my page is here to share the knowledge that I have learnt along the way😊 šŸ«¶šŸ½šŸ§” #multiplsclerosis #antiinflammatorydiet #guthealth #foodie #wahlsprotocol
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