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Ashleigh Rose | chronic illness + ms advocate

@arose

🌱 just a girl held together by spite + ice packs šŸ’« ur chronic illness bestie with a podcastšŸŽ™ļø 🪩 founder of Chronically Ch✨ILL✨ Clubā„¢ šŸ„„ spoonie goodsšŸ‘‡šŸ¼
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Weeks posts
This trend, but for the chronically ch✨ill✨ babes. Drop a 🩵 if you share the same vibe! Literally me šŸ¤šŸ¼ you. Yes, we have each others’ back! If you’re new here, hi šŸ‘‹šŸ¼ I’m Ashleigh and I was diagnosed with MS in 2018 + Graves’ in 2023. If you’re new here, hi šŸ‘‹šŸ¼ I’m Ashleigh and I was diagnosed with MS in 2018 + Graves’ in 2023. After 5 years of MS being stable, last year I relapsed + changed medications. I’m happy to report I’ve been on Ocrevus for a full year and my recent MRI came back STABLE! I’ve tried all the things and finally found what works for me and I share it all here in the hopes it might help you too! Balancing life with chronic illness is never easy, but having people in your life who understand always helps. Even if we’re just strangers on the internet šŸ«¶šŸ¼ I don’t know you, but I love you šŸ«‚ hang in there babes xx Tag/share with a friend + save for yourself! - - - #ChronicallyChILL #ChronicallyChILLClub #MultipleSclerosis #Ms #ChronicIllnessSupport #ChronicIllness #ChronicIllnessAwareness #MultipleSclerosisAwareness #MultipleSclerosisWarrior #ChronicIllnessWarrior #AutoimmuneWarrior #MsStrong #KeepSmyelin #Autoimmunediseases #Lupus #Diabetes #POTS #Arthritis #Fibromyalgia #Endometriosis #InvisibleIllness #ThisIsMs #Msconnections #MsSupport #Spoonie #SpoonieSupport #SpoonieLife #GravesDisease #Disability #ChronicIllnessAdvocate
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1 year ago
It’s #MsAwarenessMonth + #MsMonday! Time to get to sharing, educating, and spreading awareness! Flood the comments with 🧔🧔🧔 to let the world know we’re ready for it! šŸ’ŖšŸ¼ This will be my 5th MS Awareness month I’ve participated in and every year amazes me with how supportive of a community we have! The saying ā€œwe’re stronger togetherā€ is absolutely true. I can confidently say that MS wasn’t on ANY of our bingo cards, but here we are.. a bunch of badass warriors committed to making the most out of it! All month I’ll be sharing my story, MS facts, answering your questions, all while spreading a ton of awareness! šŸ‘šŸ¼ I gently encourage you to do the same! Remember, one more person informed is one less person completely unaware and that makes a huge difference! 🧔 Make sure to tag a friend, share to spread awareness, and save this for yourself! - - - #ChronicallyChILL #ChronicallyChILLClub #MultipleSclerosis #Ms #ChronicIllnessSupport #ChronicIllness #ChronicIllnessAwareness #MultipleSclerosisAwareness #MultipleSclerosisWarrior #ChronicIllnessWarrior #AutoimmuneWarrior #MsStrong #KeepSmyelin #Autoimmunediseases #Lupus #POTS #Fibromyalgia #Endometriosis #InvisibleIllness #ThisIsMs #Msconnections #MsSupport #Spoonie #SpoonieSupport #SpoonieLife #GravesDisease #Disability #MsAdvocate
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2 years ago
Backstory:: last year we learned my MS had relapsed. There were new lesions, activity, inflammation, progression… it was scary. I ended up switching medication + I’ve been on that treatment for a year now. This was my first stable MRI since the relapse šŸ™ I was a nervous wreck waiting for these results + now that I have them, I keep re-reading them! 🧠 no new lesions āš”ļø no active demyelination The biggest (and coolest) surprise? šŸ”¦ one of my largest lesions SHRUNK! From 15x8mm to 9x4mm. Other lesions shrunk as well! 😭 God is GOOD! We’ve prayed prayed + prayed and worked hard for these results. If you’re part of the MS club, you know the happy yet ~still overwhelming~ tears that fall, the wave of relief, with a splash of grief maybe even apathy that comes with the realization that test results are a built in part of living the chronically chill life. Yet, here we are, doing our best! I truly believe my treatment is working in tandem with the changes I’ve made- my anti inflammatory lifestyle, how I move my body, the food I nourish myself with, how I manage stress, + the mindset work I’ve poured myself into. Sharing this as proof that our efforts both big and small are never wasted. That stability is progress. And that healing is still possible, even when it looks different than we first imagined. Here’s to shrinking fear, shrinking inflammation, and expanding hope ā¤ļøā€šŸ”„ Update: it’s finally here! Chronically Nourished ~ your blueprint to achieving an anti-inflammatory lifestyle as possible! Comment ā€œguideā€ + I’ll send ya the link! Tag/share with a friend who maybe could use some hope + save for yourself as a reminder it IS possible xx - - - #ChronicallyChILL #ChronicallyChILLClub #MultipleSclerosis #Ms #ChronicIllnessSupport #ChronicIllness #ChronicIllnessAwareness #MultipleSclerosisAwareness #MultipleSclerosisWarrior #ChronicIllnessWarrior #AutoimmuneWarrior #MsStrong #KeepSmyelin #Autoimmunediseases #Lupus #Diabetes #POTS #Rhuematoidarthritis #Fibromyalgia #Endometriosis #InvisibleIllness #ThisIsMs #vasculitis #MsSupport #Spoonie #SpoonieSupport #Dysautonomia #GravesDisease #Disability #ChronicIllnessAdvocate
0 1,083
9 months ago
If your doctor has never asked you to complete this hieroglyphs puzzle or walk as fast as you can down the office while being timed I don’t wanna hear it from you šŸ™‚ā€ā†”ļøāœØ If you can relate to this, I see you. You’re not alone. It sucks that someone would rather speak badly than connect but that’s on THEM. Judging + gossiping about a life you 1) know nothing about 2) wouldn’t survive 10 minutes in 3) again are not in the same position… is just wild behavior. What happened to supporting on another? What happened to being kind, leading with compassion, not being a butthole? If there’s on thing I’ve learned it’s that those types of people are NOT my people and that’s okay šŸ¤ we gotta keep being the ch~ill~ goddesses we fckn ought to be šŸ§šā€ā™€ļøāœØ Repost if this resonated, tag/share with a friend (or several) and save for yourself as a reminder 🫶 - - - #ChronicIllnessSupport #MsAwareness ChronicallyChILL ChronicallyChILLClub #MultipleSclerosis #Ms ChronicIllnessAwareness ChronicIllness ChronicIllnessAwareness MultipleSclerosisAwareness MultipleSclerosisWarrior ChronicIllnessWarrior AutoimmuneWarrior MsStrong KeepSmyelin Autoimmunediseases Lupus Diabetes POTS Rhuematoidarthritis Fibromyalgia Endometriosis InvisibleIllness ThisIsMs vasculitis MsSupport Spoonie SpoonieSupport Dysautonomia GravesDisease Disability ChronicIllnessAdvocate
803 57
4 days ago
And that’s on living with chronic illness ā¤ļøā€šŸ©¹ if you heard this 5 second audio and felt it in your soul, then you already know. These are words I’ve told myself over and over again- ā€œI’ll be goodā€ ā€œI’ll be fineā€ I laugh off my medical traumas šŸ˜… and then I start over šŸ” Living with chronic illness can feel like you’re starting over day after day, and trying to navigate that unpredictability can be difficult asf! Just know if you’re in the thick of it, whether you’re newly diagnosed or have been for 25+ years, you are NOT alone. Just keeping going, one foot in front of the other, one ā€œI’m goodā€ ā€œI’m fine, one start over at a time šŸ«‚ Repost if this message resonates, tag/share with a friend who may relate, leave a ā¤ļøā€šŸ©¹ in the comments if you feel seen + save for yourself as a reminder to keep starting over as many times as you need! Ilysm - - - #ChronicIllnessSupport #LivingWithMs #MultipleSclerosis #MS #chronicillnessawareness ChronicallyChILL ChronicallyChILLClub MultipleSclerosis Ms ChronicIllnessSupport ChronicIllness ChronicIllnessAwareness MultipleSclerosisAwareness MultipleSclerosisWarrior ChronicIllnessWarrior AutoimmuneWarrior MsStrong KeepSmyelin Autoimmunediseases Lupus Diabetes POTS Rhuematoidarthritis Fibromyalgia Endometriosis InvisibleIllness ThisIsMs vasculitis MsSupport Spoonie SpoonieSupport Dysautonomia GravesDisease Disability ChronicIllnessAdvocate
504 34
6 days ago
Mother’s Day can hold so many emotions at once. Whether you’re celebrating, grieving, waiting, healing, hoping, or a mixture of it all HONOR yourself + your emotions. Let this video serve as a reminder that we’re not alone even in the darkest moments. Someone, somewhere has been through it too ā¤ļøā€šŸ©¹ I hope you find some comfort in that + some community here šŸ«‚ leave a comment if you can relate at all + let’s connect xx - - - #Mothersday2026 #TTCjourney #infertilityawareness #motherhoodjourney #chronicillnesslife ChronicallyChILL ChronicallyChILLClub MultipleSclerosis Ms ChronicIllnessSupport ChronicIllness ChronicIllnessAwareness MultipleSclerosisAwareness MultipleSclerosisWarrior ChronicIllnessWarrior AutoimmuneWarrior MsStrong KeepSmyelin Autoimmunediseases Lupus Diabetes POTS Rhuematoidarthritis Fibromyalgia Endometriosis InvisibleIllness ThisIsMs vasculitis MsSupport Spoonie SpoonieSupport Dysautonomia GravesDisease Disability ChronicIllnessAdvocate
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7 days ago
Sometimes I catch myself daydreaming about a life where I don’t have to constantly think of ways to adapt, ways to get insurance to approve xyz, ways to teach loved ones to be considerate, ways to not only live but thrive in a society that isn’t exactly friendly to the chronic illness community. Yet, for as many moments as I daydream of what life ~could have~ been like, I am thankful for what it ~is~. I love who I am (sometimes wish my body would keep tf up but itssss okay). It’s a process to get to a space of acceptance and surrender and sometimes I catch myself daydreaming of a different life and there’s nothing wrong with that. It’s just my reality ā¤ļøā€šŸ©¹ If you’ve caught yourself daydreaming, you’re not alone. Take it day by day babes šŸ«‚ we’ve got this xx Tag/share with a friend who may benefit from knowing they’re not alone + save for yourself as a reminder šŸ¤Ž - - - #ChronicIllnessSupport #Lifewithchronicillness #spooniesupport #multiplesclerosis #lifewithms ChronicallyChILL ChronicallyChILLClub MultipleSclerosis Ms ChronicIllnessSupport ChronicIllness ChronicIllnessAwareness MultipleSclerosisAwareness MultipleSclerosisWarrior ChronicIllnessWarrior AutoimmuneWarrior MsStrong KeepSmyelin Autoimmunediseases Lupus Diabetes POTS Rhuematoidarthritis Fibromyalgia Endometriosis InvisibleIllness ThisIsMs vasculitis MsSupport Spoonie SpoonieSupport Dysautonomia GravesDisease Disability ChronicIllnessAdvocate
313 40
10 days ago
To those who stick by our side, who silently and loudly support, who show up day after day. Thank you ā¤ļøā€šŸ©¹ we love you. Send this to your gem of a person (or several gems) šŸ«‚ and may this serve as a reminder that there aren’t just losers out there! - - - #ChronicIllnessSupport #MultipleSclerosisSupport #MsSupport #MultipleSclerosis #ChronicillnessAwareness ChronicallyChILL ChronicallyChILLClub MultipleSclerosis Ms ChronicIllnessSupport ChronicIllness ChronicIllnessAwareness MultipleSclerosisAwareness MultipleSclerosisWarrior ChronicIllnessWarrior AutoimmuneWarrior MsStrong KeepSmyelin Autoimmunediseases Lupus Diabetes POTS Rhuematoidarthritis Fibromyalgia Endometriosis InvisibleIllness ThisIsMs vasculitis MsSupport Spoonie SpoonieSupport Dysautonomia GravesDisease Disability ChronicIllnessAdvocate
352 18
12 days ago
Autoimmune babes waiting for their infusions to take the edge off like šŸš¬ā¤ļøā€šŸ©¹ if you can relate, you can relate. May your fatigue eff off and may your treatments be helpful xx Tag/share with a friend who could use a laugh + save for yourself as a reminder that emotionally clocking out while waiting for your treatment to actually clock in IS OKAY 🫶 we’re only human xx - - - #AutoimmuneDiseases #MultipleSclerosis #ChronicIllness #MS #Ocrevus ChronicallyChILL ChronicallyChILLClub MultipleSclerosis Ms ChronicIllnessSupport ChronicIllness ChronicIllnessAwareness MultipleSclerosisAwareness MultipleSclerosisWarrior ChronicIllnessWarrior AutoimmuneWarrior MsStrong KeepSmyelin Autoimmunediseases Lupus Diabetes POTS Rhuematoidarthritis Fibromyalgia Endometriosis InvisibleIllness ThisIsMs vasculitis MsSupport Spoonie SpoonieSupport Dysautonomia GravesDisease Disability ChronicIllnessAdvocate
662 45
20 days ago
It’s MS Awareness Week in the UK (April 20-26th) 🧔 + with that I have a little psa to share: 🚨STOP disregarding people’s disability just because it doesn’t fit into your definition of disability. INVISIBLE ILLNESSES EXIST. Just because you can’t see it or it doesn’t look the way you *thought* it would doesn’t make it any less real or less valid. That’s it. That’s the tweet. They call MS a ā€œsnowflakeā€ disease ā„ļø because no 2 people experience it the exact same way. Multiple sclerosis can be both visible and invisible. Just because you can’t SEE it šŸ‘€ doesn’t mean it isn’t there. So be kind, lead with compassion, and take a beat before assuming ā¤ļøā€šŸ©¹ Tag/share with a friend, repost to spread awareness, + save as a reminder for yourself xx - - - #invisibleillness #chronicillness #disabilityawareness #multiplesclerosis #msawarenessweekuk2026 ChronicallyChILL ChronicallyChILLClub MultipleSclerosis Ms ChronicIllnessSupport ChronicIllness ChronicIllnessAwareness MultipleSclerosisAwareness MultipleSclerosisWarrior ChronicIllnessWarrior AutoimmuneWarrior MsStrong KeepSmyelin Autoimmunediseases Lupus Diabetes POTS Rhuematoidarthritis Fibromyalgia Endometriosis InvisibleIllness ThisIsMs vasculitis MsSupport Spoonie SpoonieSupport Dysautonomia GravesDisease Disability ChronicIllnessAdvocate
851 44
27 days ago
"Displaying the quiet parts out loud 🧔 it’s natural to talk about the more obvious realities of MS, but what about the quiet parts? The parts that we might not even notice are related to MS, like the mental toll, the brain fog, the guilt. I hope whoever is watching this feels seen and validated in some way, shape, or form. Leave your quiet day-to-day MS struggles in the comments and let’s connect with one another šŸ«‚" multiple sclerosis, chronic illness, spoonie, chronic illness awareness, MS
315 27
1 month ago
šŸ—£ļø just because we did a thing yesterday doesn’t mean we can do it again today. Living with chronic illness šŸ¤ living in a body that changes without warning 🄓 so your empathy and understanding is beyond appreciated! Repost to spread awareness, share with a friend, + save for yourself as a reminder ✨ - - - #ChronicIllnessAwareness #ChronicallyChILLClub #MultipleSclerosis #Ms ChronicIllnessSupport ChronicIllness ChronicIllnessAwareness MultipleSclerosisAwareness MultipleSclerosisWarrior ChronicIllnessWarrior AutoimmuneWarrior MsStrong KeepSmyelin Autoimmunediseases Lupus Diabetes POTS Rhuematoidarthritis Fibromyalgia Endometriosis InvisibleIllness ThisIsMs vasculitis MsSupport Spoonie SpoonieSupport Dysautonomia GravesDisease Disability ChronicIllnessAdvocate
3,468 63
1 month ago