Every family living with neuromuscular disease has a story. Ours is filled with strength, learning, and showing up for each other every single day.
As a partner of the Muscular Dystrophy Association, I’m proud to support the work that helps families like mine access care, research, advocacy, and community.
This year, I’ll be sharing moments from our journey and highlighting the impact MDA makes all year long.
Thank you for being part of this with us and please donate to support this important mission at the link in my bio!
#MDApartner #MuscularDystrophy #Neuromuscular
Community means everything, especially when you’re facing challenges that can feel isolating ❤️ @mdaorg ’s National Ambassador @la.sander sits down with @leahmesser ’s daughter Ali to talk about life with #MuscularDystrophy, how being twins has shaped their journeys, and how the MDA community has helped them both feel seen, supported, & strong 💪 Head to MDA.org to learn more about muscular dystrophy. #TeenMom #Neuromuscular #MDA75
In honor of Mental Health Awareness Month, MDA Ambassador Joshua Vinson shares a moving reflection on resilience, depression, and living with neuromuscular disease.
From campfires to inner embers, Joshua’s story reminds us that even the smallest spark of hope can help guide us through the darkest moments. ✨
“Fire doesn’t have to be tended alone.”
🔗 Read the full story at link in bio!
#MentalHealthAwarenessMonth #MentalHealth #Depression #Neuromuscular #MDA
During the recent 2026 MDA Golf Classic, an incredible community came together for a day of golf, connection, and impact @dobsonranchgolf ! ⛳💙💛
From friendly competition and lots of birdies to powerful stories and meaningful moments, it was a fun-filled, mission-driven day in support of the MDA community - including over 6,500 people living with a neuromuscular disease in Arizona.
Together, we raised $98,775 to help empower families living with muscular dystrophy, ALS, SMA, and related conditions through MDA Care Centers, Summer Camp, DME Grant Assistance, research, and advocacy.
To every golfer, donor, and supporter who made this day possible, thank you! Because of you, MDA can continue showing up for our families across our community.
A special thank you to our incredible sponsors:
@dutchbrosarizona@dutchbroscoffee@desertfinancial@desertbuild
#Golf #ALS #SMA #Neuromuscular #MDA
For Alex, volunteering at @MDAorg Summer Camp isn’t just a week. It’s a shift. 💙💛
From “helping out”… to understanding what it really means to show up.
From fundraising…to seeing the faces, the friendships, the impact.
✨ “Camp changed everything for me.”👉 Read his full story at the link in bio
@akobersteen@thedurhampolice
#Volunteer #MDA #SummerCamp #MuscularDystrophy #Neuromuscular #MuscularDystrophyNewsToday
☀️ A great summer needs at least one story worth telling again and again.
For so many campers, that story starts at MDA Summer Camp. It’s a time filled with fun, friendship, and unforgettable moments campers carry with them long after camp ends. It’s more than a summer tradition. It’s a week campers look forward to all year. 💙💛🏕️
👉 June camp sessions are filling up fast! Apply today: MDA.org/summer-camp (link in bio)
#Summer #Camping #MDAsummerCamp #Neuromuscular #MDA
Tomorrow is THE Day! 😊
In honor of #alsawarenessmonth I’m joining @mdaorg and @dutchbroscoffee to support research for people living with ALS and their families.
Every drink purchased helps advance research, care, and hope for the ALS community.
Stop by your local Dutch Bros, grab your favorite drink, and be part of the movement.
🗣️ Don’t forget to share and tag #drinkonefordane and #drinkoneforsunny to spread the word.
#EndALSwithMDA #mdapartner
☕💙💛 “Drink One for Dane” is more than just a day. It’s a movement.
Held each May, this Dutch Bros Day of Giving honors co-founder Dane Boersma, who passed away from ALS in 2009. Through every cup poured, lives are impacted. 🙌
On May 15, Sharon Hesterlee, PhD, President & CEO of the Muscular Dystrophy Association (MDA), invites YOU to join the mission. 💪
With every drink tomorrow, @DutchBrosCoffee donates a portion of proceeds—contributing millions over time—to fund critical ALS research and care.
Together, we can fuel breakthroughs, support families, and move closer to a future without ALS. 🌎✨
#DrinkOneForDane #EndALSwithMDA #ALS #MDA #ALSresearch
Help shape MDA’s MOVR 2.0, a data platform that can help advance research and care for people living with Duchenne muscular dystrophy, limb-girdle muscular dystrophy, and spiral muscular atrophy. Your participation will test platform features, inform research, and help families better manage neuromuscular diseases day-to-day.
👉 Learn more at link in bio!
#DMD #LGMD #SMA #RareDisease #MDA
🧠 What if ALS could be detected earlier and treated more precisely?
New insights shared at the 2026 MDA Clinical & Scientific Conference point to incredible progress including:
🔬 Earlier detection
🧬 Stronger understanding of the biology behind ALS
💊 Wider range of therapeutic strategies
Watch Dr. Bryan Traynor, neurologist and senior investigator at the National Institute on Aging, discuss what these advances could mean for the future of #ALS 🌟
#ALSawarenessMonth #EndALSwithMDA #MDAconference
