Martyn Barrow

#speakurmnd365 Day 137: 7 of 7 'The seven reasons I despise you' I don't need to say much about today's... we end the week with Independence 🫶 7 days, 7 reasons why #MND can get to Fu*k! ✌️ & 🧡🧡 #als #poetry

Well this was different...I (@mbarrow1 had the pleasure of being invited by Nathan on to the @dadversitylessons podcast a couple of weeks ago, I got the chance to 'Speak My MND' Talking all things @mummybarrow @tillybarrow_ @evebarrow0 @fallon_barrow_ and how we don't let #MND dictate our life I apologise to the girls 🤣 you knew it would come up 'Choose Your Mood' Also a massive shout out to the families living alongside MND 🫶 I get you x Raising awareness of living alongside Motor Neurone Disease @mndassoc 🔗 in story ✌️ & 🧡🧡 #als #parenting

#speakurmnd365 #NewEpisode (Version 2, Due to technical difficulties) 🫶 also new content! The latest and last episode of season 1 of the speak your MND podcast with me @mummybarrow is a little different, its just me hosting, when we started the speak your MND Podcast there were a few goals that @mbarrow1 and I had in mind, I wanted to host the show using my eye gaze and cloned voice. We wanted our guests to be from all walks of life from living with MND, Carers to Fundraisers, who all have a their own amazing stories to share. We wanted a podcast for the community, brought to you by the community. We also wanted music to accompany the podcast, composed by someone from the community, Thank you @aphplusplus for the new music to accompany the podcast 🫶 We wanted to share the highs, the lows, the good, the bad and the ugly, the wins, the losses and to try and serve up some advice and let you al know that your not alone on this journey, and thanks to the amazing guests I think we have achieved this. But one of my personal goals was to host an episode alongside a fellow individual living alongside MND, using only our Eye Gaze devices, and I had the person in mind from day one. @markwill_84 has been apart of my MND journey from the very start, he’s a source of knowledge and experience, he’s a good ear when i need to vent, he’s the reassurance I need when I’m making tough decisions and most importantly he’s always ready to take the piss out of me and remind me not to take life to seriously. Mark has been on this journey for over 4 years, he’s had his ups and downs, but Mark alongside his wife @_stephanie2311 have huge hearts and work tirelessly to help other families on the same journey through the @mndefiance_trust24 . And we will return in June 🫶 Anna 🧡 #mndawareness #podcast

#speakurmnd365 NEW Episode 'The Midnight Debrief' tomorrow @_stephanie2311 and I @mbarrow1 are joined by @joedeboise , a dear friend of Steph and Mark, a friendship brought together through #MND. I asked Steph, Let’s get a guest on, last episode before the break, and there was only one person Steph wanted on the podcast or Poddy-C as Joe calls it. Joe has sacrificed his body and time to ensure the @mndefiance_trust24 trust got up and running, and the challenges that Joe has undertaken to raise vital funds for the trust is truly remarkable. Joe is an amazing artist and we talk about @artistsagainstmnd and he's an ok surfer 🤣 but a truly incredible friend. Joe and I are also working on a few projects together since having the pleasure to get to know him and I can now call him a friend. We still find time to discuss all things caring, latest purchases and what’s for tea and dodgy haircuts.. I will leave it there….have a listen Catch you soon Steph & Martyn ✌️ & 🧡🧡

#speakurmnd365 #NewEpisode Out NOW 🔗 in bio 21 years on and and the pain still hits you in the chest like it was yesterday @staceyk51 was so brave, open, honest, inspiring when we had are little catch up for the latest episode. Get your brew, on your commute later, or if WFH tune in and have a listen, and have a catch up on our previous episodes featuring some amazing individuals from the #mnd #als #community @mummybarrow 'welcome to the speak your MND podcast' @danielbrocklebank 'Beyond the script' @teamhaslermnd 'The Hasler Show' @abb_melissa 'Take me Home United Road' @diagnoseddad 'Diagnosed Dad' @minornicola 'MND is nothing Minor' @lpritchatt 'Turning Grief into impact' @_stephanie2311 & @mbarrow1 'The Midnight Debrief' Lots of love, laughter and tears ✌️ & 🧡🧡

#speakurmnd365 #NewEpisode out tomorrow This Week and @mummybarrow and I @mbarrow1 chat with @staceyk51 Stacey lost her dear mum back in 2005, as you will hear in this weeks episode its as still as raw and upsetting as it was 21 years ago. This week, we talk about Stacey’s mums MND journey, loss, and the years that followed, with Stacey taking on numerous challenges raising awareness and funds for @mndscotland and the @mnda_manchesteranddistrict , we also talk about Stacey’s career as an estate agent before moving in to the charity sector. 12 months ago, Stacey followed her heart after years volunteering for the MNDA Manchester branch, after leaving her role at @reubensretreat , Stacey now works for the @mndassoc as Relationship fundraiser, helping individuals on their own fundraising journey. Thank you for listening, see you next time for the final guest episode of season one. ✌️ & 🧡🧡 #mnd #als #podcast

#speakurmnd365 #UPDATE If you could please share, repost 🫶 Meet 'Anna's Hummingbird' Anna's hummingbirds symbolise joy, love, healing, and good luck, often representing resilience, adaptability, and the ability to find sweetness in life. As swift messengers, a songbird, they signify positive change and presence, while their iridescent, changing colors remind us to embrace adaptability. These birds represent a "lightness of being" and comfort in times of loss. It's part of our new journey, @mummybarrow and i (@mbarrow1 ) have started the ball rolling to register the 'Speak Your MND Trust' focused on what's important to us and so many MND families, The children.. The aspiration to be a grant giving charity for children and young carers (CYP) 0-21 years, a signposting organisation to bereavement support and to partner with organisations to provide free venue tickets for days out, kids eat free and experiences. We will be 100% focused on supporting those affected by facilitating precious memories and making sure CYP are not overlooked. A huge thank you to @clubmerchandise for bringing our new look to life with our merchandise drop with all profits going to the fundraising cause, thank you to everyone who has purchased some items, can't wait to see you all wearing them or drinking from them. Until then we are supporting @mnda_manchesteranddistrict @themelevansmbe @deanfox_mnd_foundation @mndefiance_trust24 Watch this space and wish us luck 🫶 🔗 in Bio ✌️ & 🧡🧡

#speakurmnd365 new podcast episode out tomorrow 'The Midnight Debrief (3)' This week @_stephanie2311 and I talk the past 2 weeks, the highs, the not so highs, Tv shows, the kids, the latest purchase and then all things food living alongside #mnd, feeding tubes, snacks, diet.... the works Enjoy! Podcast 🔗 in bio @_stephanie2311 & @mbarrow1 ✌️ & 🧡🧡

#speakurmnd365 New Episode: This weeks Episode, @mummybarrow and @mbarrow1 chat with @lpritchatt , A truly inspiring women who Anna and I have had the pleasure to know on our own personal MND journey, and someone who we call a dear friend. 🔗 in Bio Lynn openly talks about the darkest of days, from her beloved Mel's MND diagnosis, Losing her soulmate Mel, but how this anger has fuelled her to drive and determination to help others 'Her MND family' to one day find treatment and a cure through raising vital funds @themelevansmbe This episode is an honest, raw and open conversation but left us feeling uplifted and it's comforting knowing that there are amazing individuals like lynn fighting for us. Again, plenty of tears and plenty of laughter Thank you Lynn #mnd #mndawareness #podcast

Fantastic to grab a few words with @mbarrow1 , @fallon_barrow_ & GM @thepadelclub_traffordcity , Claire Monaghan (@moggers_64 ) to celebrate the Padelathon..🧡

Wonderful to shine a light on a padelathon taking place Sunday April 12th @thepadelclub_traffordcity hosted by Martyn & Anna Barrow @mbarrow1 @mummybarrow , friends and @speakyourmnd team. Please do show your support 🔗 https://gofund.me/ac5990c97 and if you are passing, please pop in and say hi 🎥 @johnbirtwistle Location: @muffwash #padel #padelpodcast #padelstories #mnd #mndawareness

#speakurmnd365 podcast.. new episode at midnight..... The next instalment of 'The Midnight Debrief' with @mbarrow1 @_stephanie2311 This week we discuss the past 2 weeks, what we've been up to, The highs, The lows, The impromptu purchases and near purchases, Bumpy car journeys, The importance of friends and making memories, And our favourite @bonjovi song There's lots of laughter... a few swear words, well it is past the watershed but discussing serious topics Thanks guys Keep the questions coming in and we are collating them all to answer on a near future episode, or if anyone would like us to discuss a particular topic! Let us know ✌️ & 🧡🧡 Martyn and Steph #mnd #caring #caregivingjourney