Cystic Fibrosis Trust

@cftrustuk

UK-wide charity making a daily difference to people with #cysticfibrosis. Monitored between 9am-5pm Mon-Fri
Followers
21.2k
Following
1,078
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37.56%
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Health Rate
%
Users Ratio
20:1
Weeks posts
Aaaand we're back! 👋🏻 Our helpline and social media has re-opened today, Friday 2 January, and are available to chat about any of your questions or queries. If you have contacted us over the festive period we will get back to you as soon as possible. Monday–Friday, 10am–4pm. ☎️ 0300 373 1000 ✉️ [email protected] 📱 WhatsApp on 07361 582053
25 0
4 months ago
Leeds locals, can you spot a familiar face or two in this video? 👀 We caught up with Leeds CF Centre to find out why they are supporting Wear Yellow Day on Friday 12 June. 💛 Wear yellow. Raise money. Change the future. ➡️ Sign up today via the link in our bio. #cysticfibrosis #cftrust #wearyellowday #LeedsLife #LeedsLocal
15 0
2 hours ago
As the summer holidays approach, you might be thinking about the next school year for your child with CF, whether they’re starting school for the first time, going up a year, making the move to secondary school, or heading into exam years. Join one of our CF Live events on primary and secondary school. Our panel of parents of children with CF and CF professionals will share real-life experiences and helpful advice. Come along and pick up simple, helpful tips to support you and your child with their next step. Find out more and sign up via the link in our bio! Can’t make it live? Register anyway to get the recording! #cysticfibrosis
16 0
5 hours ago
Fundraiser Friday✨ With Wear Yellow Day less than a month away, this Friday we’re saying a huge thank you to Peter Murray! Back in 2017, Peter turned Knutsford Yellow in memory of his daughter, Danielle, and raised an incredible £11,257 for Wear Yellow Day 💛 This year, Peter is once again turning Knutsford Yellow, encouraging as many local businesses as possible to get involved from 15 June, leading up to The Yellow Bow Tie Ball on 18 June. Thank you so much, Peter, for bringing so many people together through your inspiring fundraising in Danielle’s memory. What are you doing this Wear Yellow Day? Comment below with your plans ⬇️
58 0
3 days ago
"It can be an emotional topic to talk about, so I hope the article raises awareness and provides some comfort to anyone else going through similar." A big thank you to Sean, Matt and Dan, who shared their experiences of fertility and CF in the latest issue of CF Life magazine, which is out now. ➡️ Click the link in our bio to read the magazine. #cysticfibrosis #cftrust #fertility #FertilityJourney #menshealth
248 8
4 days ago
Get ready for our online summer arts and crafts course! This is a great opportunity for children to connect with each other safely online and make some beautiful artwork guided by lovely Leona from @artistsresource 🔵 For children with cystic fibrosis aged 6–10. Siblings and children with a CF parent are welcome to sign up. 🔵 Children are welcome to join in from hospital. 🗓️ Workshops are every Tuesday 4.30–6pm from 2 June to 7 July. Email [email protected] to find out more or to book your place! #cysticfibrosis #cfyouth #buildingbrighterfutures #artsandcrafts
22 1
4 days ago
For this week’s #ResearchWednesday we’re putting CF diabetes research in the spotlight. Tilly and Joseph, members of our Youth Advisory Group who both live with CF diabetes, spoke to Dr Ildem Akerman and Prof Victoria Salem about their Trust-funded research project investigating a novel type of treatment for CF diabetes. They want to find out if beta cell transplants could work for CF diabetes. Find out more on our website and keep your ears peeled for new podcast episode all about CF diabetes coming soon! ➡️ Click the 'news and blogs' link in bio. #cysticfibrosis #cfd #cftrust #diabetes
20 0
5 days ago
"There is no one-size-fits-all when it comes to CF” Emily shares her #CFreality, the impact CF has on her physical and mental health, and how “the daily struggles remind me that every day I have now is a bonus." CF Week is nearly here, and we’ll be shining a light on the daily realities of living with cystic fibrosis 💛 Visit our website to read Emily's blog and find out how you can join us during #CFweek. ➡️ Link in bio. #cysticfibrosis #cftrust
122 1
5 days ago
Would you like to make a meaningful impact on the lives of people affected by CF? We are looking for an Information Officer to join our busy and supportive team at an exciting time of rapid change in cystic fibrosis and the information landscape. 🗓️ Closes midnight on 1 June. Head to our website to find out more. ➡️ Link in bio. #CharityJobs #cysticfibrosis #cftrust
27 0
6 days ago
Wear Yellow Day 2026 is just around the corner, and we can't wait to see what you do to support the 11,000 people living with #cysticfibrosis in the UK. From bake sales to sponsored walks, tea parties to dress down days, just remember that whatever you do, do it in yellow! 💛 If organising your own fundraiser isn't for you, then consider signing up our new 5k challenge. Walk it. Run it. Wheel it. Any day in June. Every pound raised helps fund life-saving research and a brighter future for everyone with CF. Comment 'YELLOW' to get all the info.
100 0
6 days ago
Fundraiser Friday ✨ We wanted to say a huge thank you to @oliverswish for including us in another @sbc_events Charity Boxing night back in March. 500 guests, 12 brave fighters and 6 competitive bouts at the Hilton on Park Lane raised a magnificent £140k for three charities, including us. A special thanks goes to Rob, Michael, Daniel, and the super professional SBC team for another successful night. 💛 If you would like support in turning your upcoming event or tournament into a fundraiser for Cystic Fibrosis Trust, DM us or get in touch with our team. ✉️[email protected]
45 0
10 days ago
London Marathon 2026? Completed it ✅ Thank you to the runners, the supporters, the cheerers, to everyone who united with us for a life unlimited at this year's London Marathon! You have so far raised over £350,000 for #TeamCF! 💛🏅✨
139 2
11 days ago