Camille Fortunato

@afresearchgrant

The AGF was established in 2019 by the WSA in recognition of our family's commitment to raising awareness for Williams Syndrome research💙❤️💚
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Weeks posts
On the latest edition of @sidandfriends77 : Anthony Fortunato, who lives with Williams Syndrome, joins Sid Rosenberg with pure joy — thrilled to be on the show and headed to the Brooklyn Cyclones game, as his family continues their heartfelt mission to raise awareness and hope for a cure. Listen to the interview on wabcradio.com!
466 35
11 months ago
So much sincere gratitude to @stevelacy @dana_arschin and @fox5ny for using your voices for a community who it's time the universe knows about. My heart is so full! 💙❤️💚 Watch full video here: https://youtu.be/LDEZbXDeJWc?si=6Nt0rH9e5oFkTYgi #williamssyndromeawareness #fox5ny #daretodream #journeyforchange
168 18
5 months ago
There is such joy in giving!♥️Meet the Filippazzo family, whose hearts are greater, stronger, & more admirable than any I have ever known or met- & they belong to a special, tiny community whose hearts are at risk.❤️💚💙 On this #givingtuesday please join me in learning more & supporting this very, very special family & the Willams Syndrome community. Sweet Anthony, his parents Camille + Steve, & his sister Rose are absolutely extraordinary.💝 Williams Syndrome is a rare genetic condition that affects ~30,000, for which there is no cure (yet) & no medication to slow the cardiac & vascular effects nor the anesthesia risk. ✝️Those with WS have a genetic predisposition toward kindness. What a blessing is that?! I can personally attest to the unmatched joy & huge hearts of these angels & I know they are very, very special to God - please join me in showing kindness back, in the way of support & advocacy. 💙Angels like Anthony need your help PLEASE: awareness + support for research. Currently helmed by the remarkable Dr Mark Levin, the research is promising but we need donations. The Filippazzo family has worked tirelessly for this - PLEASE FOLLOW & DONATE HERE: @afresearchgrant @williamssyndrome / ❤️💚💙 #emilycompagno #williamssyndrome #wsawareness #williamssyndromeawareness #anthonyfilippazzogrant #veronicabeard
3,349 73
1 year ago
I never thought I would be here. 🖤 I was supposed to be a lawyer and a mom. That was it. But when the system doesn't have answers for your child you become the person who finds them. That's how I went from the courtroom to the fundraising stage. From a mother who didn't know what Williams Syndrome was to a mother who has raised over $1 million to fight it. This is Williams Syndrome Awareness Month and I am opening up like never before. Follow this journey. And if you have a WS story -- message me. Let's bring awareness to Williams Syndrome together. 🖤 #WilliamsSyndrome #WSAwareness #RareDisease
84 19
11 hours ago
Our Night of Love: Celebration of Life is underway 🤍 Secure your sponsorship by 5/29 to be recognized on our printed invitations. Join us in making a difference—event link in bio. #williamssyndromeawareness #jointhemovement #nightoflove
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2 days ago
Great time at @z100newyork with @yojoshmartinez 🎙️and @iheartradio and thank you AGF Ambassador @_sammsc0tt for making it happen! 🙌 Grateful for the opportunity to share our journey and spread awareness — more to come! Stay tuned 👀✨ #williamssyndromeawareness #z100newyork #iheartradio #joshmartinez #iheartmedia
131 11
3 days ago
Another amazing morning with the one-and-only @rosenberg.Sidney 🔥🙌 Thank you for always showing up for AGF for Williams Syndrome and using your platform to amplify our mission. Your support means EVERYTHING to us! Grateful beyond words 💙u Sid. If you loved the interview share it and tag us. We want to hear from you! Listen to full interview in BIO or https://f.mtr.cool/dfjnmvovig #JoinTheMovement #AGF #WilliamsSyndromeAwareness #sidrosenbergrocks
202 26
3 days ago
For the entire month of May, the staff at Michael’s of Brooklyn have been proudly wearing Williams Syndrome ties. Anthony has been an inspiration to all of us at Michael’s and we’re proud to support him. Have an idea to use your platform to help us raise awareness? Message @afresearchgrant #michaelsofbrooklyn #williamssyndromeawareness #afresearchgrant #jointhemovement
879 35
4 days ago
And another special morning because of the kindness of Sid Rosenberg. A little recap from our visit spreading awareness for Williams Syndrome, sharing Anthony’s story, and continuing this journey that means so much to our family and to the entire WS community. If you love someone with Williams Syndrome, drop a 💙 in the comments below.�Did you listen live this morning? Let us know! 🎙️ Link to show: /episode/whenever-i-call-you-friend-05-13-26/ Please like, share & follow our journey as we continue advocating, raising awareness, and funding research for WS. Every share helps us reach one more person ✨ #WilliamsSyndrome #SidRosenberg #raredisease #Advocacy #JourneyTogether
688 64
4 days ago
Thanks so much to @afresearchgrant and @thebookmarkshoppe (a wonderful book shop I only just discovered) for hosting an wonderful signing event and party in support of my debut novel, THAT'S NOT HOW IT HAPPENED. I'm inspired by the Fortunato family's tireless advocacy for the Williams Syndrome community, and honored that my book's story -- which celebrates inclusion and representation -- spoke to you; that's the dictionary definition of the term "target audience," right there. Thanks to the entire @afresearchgrant community for welcoming me and my book so warmly. Thanks to @bkeagle for covering such a special night and platforming the stories and missions that mean so much to us all. Full article: /386188/co-creator-of-how-i-met-your-mother-signs-books/
139 12
6 days ago
May is Williams Syndrome Awareness Month 💙 We’re using our voices louder than ever to spread awareness, advocate, and uplift this incredible community. Will you use your platform to stand with us? #JoinTheMovement #WilliamsSyndromeAwareness #RareDisease #Advocacy
116 14
7 days ago
Such a fantastic night—energy, love, empathy, compassion, and power all caSuch a fantastic night—energy, love, empathy, compassion, and power all came together in the most beautiful way. It was truly a privilege to honor your work, Craig Thomas. Please continue to use your# platform to raise awareness for children like ours—it makes more of a difference than you know. Let’s do this again when the sequel comes out 🙌😘 Author: @craigthomas Publisher: @harpercollins @hanoversquarepress Host:: @thebookmarkshoppe Cocktails: @terinanyc Photos: @Valentina_aberle Interviews: @rosefilippazzo Social: @francesca.Martino Outfit: @Alceasthampton @john @alcltd Hair: @hairbymills @davidjames Music: @pearljam
91 6
9 days ago