Adventures in Complexity

@adventures_in_complexity

Homeschooled medically complex siblings Diagnoses: spina bifida, hydrocephalus, tethered cord, slit ventricle syndrome etc Love supporting non-profits
Followers
2,505
Following
1,197
Account Insight
Score
29.13%
Index
Health Rate
%
Users Ratio
2:1
Weeks posts
I wish I didn't know my way around these halls. I wish I didn't know where and when to grab food and coffee while I can. But we are so lucky to have a pediatric hospital we can access for medical care 💙 @seattlechildrens is our home away from home and we are so lucky to have it nearby and here when we need it. #seattlechildrens #medicallycomplexkids #medicalfamily #pediatrichospital #adventuresincomplexity
39 7
1 month ago
Another appointment at our amazing @vca clinic. Thankfully his tail is looking much better and is healing well now that the infection has been hit with the right combination of antibiotics. We're off to Vancouver for a few days so we will be changing the dressing while there and then we are back to see the vet again on Thursday to make a plan. We seem to be on the right track now thankfully and this may all be behind us soon 🤞🏼 #vca #canineorg #servicedog #agentatticusv #adventuresincomplexity
24 1
1 month ago
Poor @agent_atticus_v has had an awful 5 weeks with his 'happy tail'. Things are definitely looking better though and we're hoping our 2-3 times a week vet visits and dressing changes every 2 days will finally be done with very soon. I feel so bad for my boy though. He is the sweetest and this is so unfair 😭 We're so thankful to VCA and VEG for the amazing care they have given him over the last few weeks ❤️ @vca @veg #canineorg #servicedog #servicedogsofinstagram #agentatticusv #adventuresincomplexity
56 7
1 month ago
We're getting our time in with @seattlechildrens this week! We had pre-anesthesia clinic on Monday, the dentist and labs on Tuesday, psychology on Wednesday and today we are in for shunt x-rays, neurosurgery and an iron infusion with hematology!! That's on top of a PT intensive at @rww_pediatrics and our usual additional therapies! Thankfully we had a break from our usual school classes most of this week as they were on spring break. We're looking forward to a quieter weekend! 😂 As usual @agent_atticus_v has been the best, most patient boy as we drag him from place to place with hardly any down time in-between. He gets very upset when we leave him at home because he LOVES being out with us! #medicallycomplex #seattlechildrens #spinabifida #agentatticusv #adventuresincomplexity
51 3
1 month ago
It's been a while since we posted. That's totally a reflection on how insanely busy it's been here! Between Girl Scout cookie season keeping me crazy busy (my troop sold 3458 boxes), my parents came to visit for 2 weeks, the kids have kept our schedule crazy as usual and @agent_atticus_v has been through some pretty awful medical issues which has involved a lot of vet appointments (more on that later when I get a chance) In other news, Luca just started a PT intensive in @rww_pediatrics He'll be here for PT almost every day for the next four weeks and we're really excited to see what progress he makes. #medicallycomplexkids #medicalfamily #ptintensive #agentatticusv #adventuresincomplexity
50 1
1 month ago
Selling @girlscouts cookies outside @charliesqueerbooks #girlscoutcookies #girlscouttroopleader #brownie #medicallycomplexkids #charliesqueerbooks
21 2
2 months ago
Hanging out at the rehearsal for the @melodiccaring gala at the @neptunetheatre It's going to be a fun night! Luca and Caia and looking forward to getting up on stage to give an interview later!! #melodiccaringproject #melodiccaring #melodiccaringprojectgala #medicalfamily #medicallycomplexkids
26 1
2 months ago
This is what 2,100 boxes of Girl Scout cookies looks like 😱 Our sitting room is officially cookie central!! The joys of being a @girlscoutsww troop leader! Our troop plans to use our money to go on camping trips, go horse riding and support our local community with some projects to give back. If you'd like to support Caia with her massive goal of selling 1,600 boxes of Girl Scout Cookies she would love your support. Her order link is here and I'll also put it in the comments and in our bio /scout/caia542444 Or bit.ly/4s1nAwW #girlscout #girlscoutbrownie #troopleader #girlscoutcookies #gsww
36 4
3 months ago
Luca and Caia had an awesome weekend of working hard during an intensive with the amazing Larissa from @snowflakewarriors.pt We always gain so much from our mini intensives with Larissa and it's so amazing that she is coming here to the Seattle area for them now and we don't have to travel to Portland to see her! For anyone in Washington or Oregon I highly recommend checking what dates Larissa has intensives and booking in to give it a try. She will be back this way in April and we have already grabbed our slots, but I know there are a few remaining! #snowflakewarriorspt #snowflakewarriors #pediatricphysicaltherapy #physicaltherapy #pt #ptgoals #spinabifida #hydrocephalus #tetheredspinalcord #tetheredcord #ptintensive #medicallycomplex #medicallycomplexkids #medicalfamily #adventuresincomplexity
42 2
3 months ago
Another day and more re hospital time at @seattlechildrens #seattlechildrens #seattlechildrenshospital #spinabifida #hydrocephalus #tetheredcord #tetheredspinalcord #adhd #medicallycomplex #medicalkids #medicalfamily #caregiver #servicedogsofinstagram #servicedog #canineorg #caninecompanions #agentatticusv #adventuresincomplexity
27 0
3 months ago
Another morning of hanging out in @seattlechildrens This time in Nephrology clinic to get another 24 hours blood pressure monitor for Luca. #seattlechildrens #seattlechildrenshospital #spinabifida #nephrology #hydrocephalus #tetheredcord #tetheredspinalcord #adhd #medicallycomplex #medicalkids #medicalfamily #caregiver #servicedogsofinstagram #servicedog #canineorg #caninecompanions #agentatticusv #adventuresincomplexity
30 0
3 months ago
We took our @nexplayground to PT at @rww_pediatrics last week and it was a huge hit. The kids worked on various goals while playing games including balance, sitting balance while crossing midline by only using one hand for Fruit Ninja etc. Our therapists loved it so much that we applied to Nex Playground for Good to see if they can get their own Nex to be used with all of their other little patients. Fingers crossed 🤞🏼 #nexplayground #therapeuticgaming #gaminig #ptgoals #pediatricphysicaltherapy #physicaltherapy #medicallycomplex #medicalkids #medicalfamily #spinabifida #wheelchairuser #tetheredcord #adventuresincomplexity
29 1
3 months ago