People often measure dementia by memory.
But thatās only a small part of the story.
But for many people living with it, the hardest parts are the things people donāt see ā overwhelm, fatigue and trying to stay organised.
Sharing this because so many people experience it but rarely talk about it.
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We talk about these experiences often on the Hold the Moment podcast š§
#dementiaawareness
#youngonsetalzheimers
#alzheimersawareness
#dementiaadvocate
#livedexperience
I recently had the absolute pleasure and honour of meeting @_jimr and his beautiful husband Tyler at a @dementia_australia event.
Jim is living with younger onset dementia, but heās not letting that slow him down.
His #AustralianStory is now streaming on @abciview and I cannot recommend it highly enough.
A beautiful story of love, life, loss, family and playing the best damn game we can with the cards weāve been dealt.
Jim, you are an inspiration and my personal hero. ā„ļø #dementia #youngeronsetdementia
Ever wondered what a day in the life of a podcast host looks like?
Together with coāhost Hamish Macdonald, Jim has just wrapped recording for Season 3 of our awardāwinning podcast, Hold the Moment.
We canāt wait to share whatās coming; a brand-new season filled with powerful stories from people living
Hold the Moment is produced by @deadsetstudios and co-presented by @_jimr . Follow along for all the Season 3 details!
Four years ago, our world flipped upside down, when Dad was diagnosed with Young-onset Alzheimerās.
This year, when we take part in the Memory Walk & Jog in Dadās honour the fam are running 10KM! To raise funds for Dementia Australia.
If youāre able to donate, share, or even send a little encouragement, it would mean so much to us. Iāve put the link to our page in my bio.
Itās an amazing event and a reminder of how Dementia touches so many families. Itās our hope in doing this we raise awareness, funds, care for families and so eventually no one has to go through this evil disease. I am struggling to write the words of what it does to people.
I am so unbelievably proud of Dad and the advocate work he does every single day. He is a beacon of light and an inspiration. His podcast has touched millions and for anyone dealing with Dementia - Hold The Moment podcast is where itās at. Hereās to holding onto the moments that matter!
Wish us luck hitting the pavement. š£
Thank you for being part of this with us. ā¤ļø
@dementia_australia@memorywalkandjog
We're thrilled our #podcast Hold the Moment has been chosen as a finalist for two categories in the prestigious 2026 @newyorkfestivals awards!
This special show, which showcases what it's like to live or care for someone living with dementia, has helped so many Australians... and collected so many gongs along the way! š
Hold the Moment is nominated for Best Series and Best Episode in the Health and Medical podcast categories.
(Plus we're a finalist for our podcasts The Solutionists and Head Above Water too!)
Hold the Moment is produced by @deadsetstudios for @dementia_australia and you can find it in all good podcast apps. Hosted by @_jimr and Hamish Macdonald.
What an unforgettable evening š
Our Dementia Research Community Gala Dinner on Saturday was more than just a celebration, it was a powerful reminder of what we can achieve together. Thanks to the incredible generosity and support of our community, we raised over $230,000 to continue the fight for a cure.
This year also marked a special milestone: 10 years of raising awareness, funding vital research, and standing alongside those impacted by dementia. Every conversation, every contribution, and every shared story has helped bring us closer to hope.
To our supporters, partners, event volunteers and everyone who joined us on the night, thank you. Your commitment fuels progress, and together, we are making a difference.
A big thank you to our MC Peter Overton, keynote speaker Jim Rogers and Dr Kathryn Goozee, researcher Dr Oana Marian, magician Magic Mike, auctioneer Damien Cooley, performer Tori Darke and DJ Lara Luv for making the night great.
Hereās to the next chapter in the journey toward a cure for dementia. š«
Event photos are available on our website (link in bio).
#DementiaResearchCommunity #Research #Dementia #galadinner
Last night in Sydney.
A room full of generosity, kindness and hope.
Honoured to share our story and help raise funds for dementia research.
Grateful to everyone who supported such an important cause.
#dementiaresearch
#fightdementia
#alzheimersawareness
#brainhealth
#sydney
