Tonight, at 10:30 pm PT, Russell Andrews shares his ALS journey publicly for the first time on CNN’s The Story Is with Elex Michaelson.
Watch @a.russellandrews on @cnn@cnnthestoryis with @elexmichaelson . @youralsnetwork is honored to share more of Russell’s story in the week ahead. #ALS #ALSAwareness #alsawarenessmonth
Congress is working on federal funding for 2027.
For people living with ALS, these decisions will shape progress across care, research, and access to resources.
We’re asking Congress to prioritize and strengthen the full ALS ecosystem, including:
- ACT for ALS
- Department of Defense ALS Research Program
- NIH and CDC
- Advanced Research Projects Agency for Health (ARPA-H)
-Department of Veterans Affairs ALS Centers
Take action today and ask your Members of Congress to support these priorities. Link in bio.
The ALS Network’s clinical trials page makes it easy to explore and participate in ALS research. Clinical trials play a critical role in developing new treatments and improving care for people living with ALS.
Whether you're living with ALS, a caregiver, or a healthcare professional, this resource can help you learn about ongoing studies and how to get involved in advancing research.
Explore available clinical trials powered by TrialX: /clinicaltrials/
The Power of Community is on full display at today’s 10th Annual SoCal Ride, Walk & Roll to Cure ALS — where every mile, every step, and every participant helps strengthen care, accelerate research, and turn advocacy into action for the ALS community. Visit alsridesocal.org to participate or donate. #alsawareness
@youralsnetwork , is continuously making progress to advance ALS research and improve access to care through advocacy.
Important public policy initiatives at the federal, state, and local levels are aligned with the critical needs of people with #ALS and their loved ones.
Take a look at the powerful advocacy wins we achieved in 2025, thanks to our ALS community!
To learn more about our advocacy efforts, visit: advocacy.alsnetwork.org
#ALSAwarenessMonth
The 10th annual SoCal Ride, Walk & Roll to Cure ALS is TOMORROW, Saturday, May 16!
Online registration is now closed, but you can still sign up to join us on-site beginning at 7:00 AM and we remain open for fundraising through event day and beyond!
Because of your generous support, @youralsnetwork is able to support over 3,500 families living with ALS nationwide! We have raised over $140,000 of our $160,000 goal so far, and YOU can be the one to help us cross this important finish line and help us meet our $1 million raised cumulatively over the past 10 years!!
For more information, or to make a gift today, visit alsridesocal.org and follow @alsenduretocure . Link in bio.
#cureALStogether #socalride #enduretocureALS
Please join us for Connect, Support, Chat: Living with ALS Under 50 on Tuesday, May 19, at 1:00 PM PT/10:00 AM HST.
For more information or questions, please contact Care Managers Emma Karavardanyan, M.A. at [email protected] or Shannan Sonnicksen, LCSW, MPH, at [email protected].
Thank you to CA State Senator @sencarolinemenjivar for meeting with @youralsnetwork to discuss sustaining the ALS wraparound model of care across California.
We are grateful for your leadership and commitment to improving care for individuals and families navigating ALS across the 20th Senate District and beyond.
We are five weeks away from ALS Network’s Champions for Cures and Care in San Francisco on Saturday, June 20, at 6 PM.
This powerful evening recognizes exceptional individuals and organizations whose passion and dedication support the ALS community while advancing the ALS Network's urgent mission.
Important information: If you plan to book a room at the Hyatt Regency Embarcadero, please note our hotel blocks will close on Friday, May 29. Visit alschampions.org for more information. Link in bio.
Join us on Thursday, May 21, for our next webinar, “ASK ME: Living Fully, Living Well — Palliative Care for ALS,” at 5:00 PM PT /2:00 PM HST.
This informative presentation features Kara Bischoff, MD, Medical Director, UCSF Palliative Care Program, and is hosted by Steve Goclowski, the ALS Network’s Vice President, Care Services.
RSVP through the link in bio.
The ALS Network supports the bipartisan HEALTHY BRAINS Act.
This legislation advances research into environmental risk factors linked to ALS and other neurodegenerative diseases. Expanding research on these risk factors is critical to understanding how these diseases develop and how we can better address them.
Take action: Urge your members of Congress to support the HEALTHY BRAINS Act through the link in bio.
If you missed it, you can watch the “ASK ME: Cutting-Edge ALS Research — 2026 Packard Center Symposium Review” webinar now.
This webinar highlights the latest advancements emerging from the 2026 Packard Center Symposium.
Watch more here: askme.alsnetwork.org. Link in bio.
