Whether you're fundraising for a birthday, a milestone, or just because – you can set up a charity fundraiser right here on your Instagram account! Every donation makes a difference, and it couldn't be easier! Tag us and share 💚 Contact [email protected] with questions!
Do you have questions about attending this year’s #MitoMed Conference? Our next Ask the Mito Doc on What’s Happening at Mito Med 2026 on Thursday, May 28 at 12:30 PM EST is the place to get answers.
Click here to register: /amdmay28
Click here to submit your questions: /r/AskMitDocWEB
#umdf #askthemitodoc #mitochondrialdisease #webinar
Welcome, Stealth BioTherapeutics, a diamond sponsor for the 2026 Mitochondrial Medicine Conference in Orlando, FL. Thank you for partnering with UMDF and helping support our #MitoMed conference and #mito patients.
Join UMDF each week at one of our Virtual Support Meetings to connect with patients and families navigating a #mito diagnosis. Visit our events calendar for upcoming meetings and login details: /events-calendar/
#umdf #mitochondrialdisease #virtualsupportgroup #support
#MitoMed Conference 2026 is looking for volunteers! Interested in joining UMDF in Orlando, FL between June 17-20? We’re seeking volunteers to help with registration, event set-up, and much more. This is a great opportunity for high schoolers, college students, and retirees.
For more information, visit: /yk87b7rw
#umdf #mitochondrialdisease #conference #volunteers
It’s estimated to take the average mitochondrial disease patient up to 8 years to get a correct diagnosis – which means years of uncertainty, setbacks, and missed opportunities for care.
Through UMDF’s new strategic plan, we’re working to change that by expanding programs and initiatives that improve diagnosis and access to quality care for everyone affected by #mito disease.
But we can’t do it alone. Your support of our Spring Appeal can help bring answers, support, and hope to families still searching for them.
To donate, click the link in our bio or visit: /SpringAppeal/donate
#umdf #mitochondrialdisease #springappeal #support
Make an impact and join sponsors like Leslie Engle, one of the sponsors behind UMDF’s Team Activate at this year’s 2026 Bank of America Chicago Marathon.
For Leslie, Vice President and COO at Team Recovery, the decision to become a sponsor is deeply personal — her son is running on behalf of her and the entire mitochondrial disease community. Her sponsorship is a meaningful way to stand behind him while supporting everyone still searching for answers, treatments, and hope for the future.
The sponsorship deadline for this year’s marathon is June 1. To learn more about available sponsorship opportunities, contact Tara Gallessich at [email protected].
#umdf #bankofamerica #chicagomarathon #sponsorshipopportunity #mitochondrialdisease
We’re in the final stretch before our Energy for Life Walk in St. Louis on Saturday, May 16. There’s still time to register, donate, or join us in person, as we come together to move the mitochondrial disease community forward, one step at a time.
To register, visit: energyforlifewalk.org/stlouis
#mitochondrialdisease #energyforlifewalk #umdf #stlouis
At this year’s #MitoMed Conference 2026 in Orlando, FL, patients and affected families are invited to join a special program focused on Leigh syndrome.
On June 18 from 3:30 – 6:00 pm, leading mitochondrial experts will share Leigh Syndrome focused guidance on navigating complex care decisions, emerging treatments, and day-to-day management. The session will conclude with a live Q&A, giving families and caregivers the opportunity to connect directly with experts.
To learn more about the Leigh Syndrome Family Programming visit: /leigh-syndrome-family-programming/
#mitochondrialdisease #leighsyndrome #conference #familyprogramming
This #MothersDay, we honor every mother, caregiver, and mother figure whose love shows up in countless ways. To the mom’s celebrating, grieving, advocating, remembering, and loving, we see you and are holding space for you today and every day.
You’ve got mail 📧 The May edition of the UMDF newsletter is live and full of exciting news and updates for the #mito community.
To read the latest happenings including what you need to know ahead of #MitoMed 2026, upcoming virtual webinars, our Spring Appeal, and so much more, visit: /may26_newsletter/
Not signed up for our newsletter? Sign up to stay in the know: /newsletter-signup/
Find your community in one of our weekly Virtual Support Meetings where patients and families come together to share and support one another.
Check our events calendar for upcoming support meetings for the mitochondrial disease community and login details. Visit /events-calendar/ or click the link in our bio!
#umdf #virtualsupportmeeting #support #mitochondrialdisease
