My first 10 hour day back on set felt good! Thank you @acorn_oakleaf and the luminati crew for a great day! At one point I was laying in bed with @liftedlillian watching the monitor. 😊 Big shout out to @jeffer__wine for always having my back and lifting all the heavy things! 🤣 you too @alexdeanrodriguez 💪💪❤️#photoshoot #bts #noclientonset #lovemyjob #fuckcancer
As I’ve been working on my website, I’ve been looking through some projects from the past year at some fun and lovely project outcomes that allowed me to work with some lovely people.
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Styling @tiny.ginger.inc
Photography @mgravesphoto
*Plus, sharp editors and amazing projects by small loom designers.
#artdirection #publicationartdirection #photoartdirection #littlelooms #smallloomweaving #photography #craftphotography
I woke up to the sweetest text from my dear friend @bethwalker_ecobeauty :
“Love you hon. Hope the Red Devil (RD) is being a gentleman with you. I’m going to rename it the Red Darling - so it doesn’t have such a wicked energy when spoken of. It’s the BEST healer, it’s cleansing you of cells that your body doesn’t need and we are so grateful for this fact. May it be kind, swift and effected. AMEN❤️”
I LOVE this new perspective on this Chemo drug. Half the battle is finding new ways of looking at things and all the silver linings along the way.
Photo is from a shoot a million years ago with @jessicagrenier for @thelittlenell in Aspen. What an amazing time we had!! ❤️❤️❤️ love you girls!!! #fuckcancer #teamtinyginger
Made it through my first infusion. It was a little sketchy to start. I had an allergic reaction to the chemo drug aka Red Devil. 😳👹
They acted very fast and stopped its flow and hit me with Benadryl. We waited 30 more minutes and then tried again. Success!
Tapped the port for the first time today too. It was easy breezy and not very painful. Thank you baby Jesus.
Treatments are every 2 weeks. Avastin (targeted immunotherapy drug) every 2 weeks and the red Devil once a month. They said I should not have another reaction like that again with it since my body has now accepted it. ❤️❤️💪💪
Thank you for all the love!! Keep it coming!! You all make me feel like anything is possible and I truly can beat this!! Love your support!! 🦄🦄🦄
This baby girl is the best nurse EVER!! She’s been taking such good care of me and giving the best loves!! Naps, kisses, and pets…these are the days of our lives. #dogsofinstagram #dognurse #adognamedstella #ovariancancer #fuckcancer #dogmom
One step closer to becoming the Bionic Woman! THE PORT IS IN! And I was rewarded with Ale of the Ginger. Hoping my Umpa Lumpa neck is temporary ! 🤣🤣🤣#fuckcancer #ovariancancer #teamtinyginger #iamstrong #igotthis
Everything is hopping!! I got my belly drained yesterday (1050ml this time). I was able to eat a normal meal finally!!! I’m still bloated but it’s better! I was able to do ALL the dishes this morning and stand longer than i have in over a week!!!
This Monday is now my big day to get my port! Someone canceled so they called me to see if I wanted the spot!
The doc told me that they’ll give me something to take the edge off. My response: I have a lot of edges. 🤣
What this means…chemo can start this week instead of next week! Let’s kick this little bitch C in the arse!!!
Please keep sending all the good vibes!! Your words of encouragement are keeping me going!!! Seriously means the world to me!! ❤️🔥❤️
And thank you to everyone who has donated to the GoFundMe page and shared it!!!! The support is overwhelming!!! ❤️❤️❤️👏👏👏
I’ve cried a bunch reading all your wonderful posts and comments. Definitely feeling the love!!! Thank you!!
#fuckcancer #teamtinyginger
I met with my oncologist/chemo doc yesterday Dr. E to go over test results. And instead, got ALL the info I was hoping for. plus some other bullshit that i didn’t really care to hear. LOL
Basically, the first rounds of chemo were unsuccessful because in true unicorn fashion, I am among the very few that is IMMUNE to Carboplatin (one of the chemo drugs given to me). SURPRISED everyone!
My ovarian cancer has returned very quickly (also so rare). I will undergo chemo again (different type this time) as well as another drug that i can’t recall it’s crazy name. I think it has 5 syllibles. 🙂 I will get the fancy drug every week and the chemo drug every other week. All of these appointments should be rather quick compared to last time (30 min - an hour) at the same infusion center as last time.
I will undergo genetic testing for the ovarian cancer gene as well as other blood tests to determine if i qualify for other forms of treatment in the future. The more options the better!
I will be on some sort of treatment for the rest of my life…either chemo or immunotherapy or some other form of drug. They will never tell me I’m cancer free but I may experience bouts of remission.
The good news: my hair may not fall out this time. The side effects may be less intense. We have a plan. She didn’t tell me I’d live to 100, but didn’t say I couldn’t. 🙂 Also, I can eat chips. thank you baby jesus.
Next steps: echocardiogram (fancy drug affects your heart so my ticker better be strong!), PORT installed, and get this big belly drained again. As soon as my port is in, we will start chemo 3 days after. Right now, the port is scheduled for install on 7/31.
so that’s it in a nutshell. crazy. scary. but I GOT THIS. with your love. PLEASE continue to pray, send good ju ju, do your happy dances, and anything else you want to do for good healing vibes.
Love you all! The support is overwhelming!!! ❤️❤️❤️
This is one of my favorite photos of me. I felt strong and beautiful. I was done with chemo and in Maine for a wedding. I felt almost normal for the first time in a long time. Can’t wait to get back to that feeling. #fuckcancer #teamtinyginger #iamstrong #igotthis
My cancer is back. The 4 words I never imagined saying, yet here I am.
I'm pissed. I'm scared. I'm hopeful. That's fair, right?
I got really sick last week and went to the ER on Thursday and ended up staying 2 nights in the hospital. Through CT scans and blood work, it's been determined that
I have ovarian cancer again (even with NO ovaries). According to my Gyn Onc, it's very rare for chemo not to work, and very rare for it to come back this quickly.
i am a UNICORN afterall.
Basically, some sneaky ass cancer cell escaped surgery and chemo and is wrecking my body. I'm in a full state of bloat at all times, my intestines have gone to sleep, and my peritoneum (the lining of your abdomen) is producing more fluid than it should. They drained almost 4L (10 pounds) of fluid from my abdomen on Saturday. Super gross....and i have a pic if anyone wants to see it! lol
So here we are. I don't have an official diagnosis yet and I'm waiting to find out so much more info. But, I have an amazing team of doctors who will be presenting my case to other doctors here and around the country to figure out the best course of action for me moving forward. I will keep you posted.
My sweet cousin @coloradotonya has started a GoFundMe page to help with all the money things. She's so thoughtful and wants to take care of me and I am so thankful for that. I don't know how much I'll be able to work while going through this round. I'm hopeful that I will be able to because I LOVE MY JOB.
If you'd like to donate, do. If not, no worries....please send me all the healing vibes you got- I'll take them! Your love and encouragement is the most important part of this journey. #fuckcancer #ovariancancer #iamstrong #iamblessed
