This project started as a letter to my brother.
I’m sharing this with you because even after all these years, I still feel like I am a brother.
This is the first trailer for A Life Electric, a project that has slowly become a large part of my life.
I’m deeply grateful to the many people who have spoken with me across different parts of the world as I’ve followed this journey through epilepsy, trying to understand it for myself as much as for the people who live with this condition every day.
I grew up with epilepsy through my brother, but if I’m honest, I never really understood it. I was afraid of it in many ways.
Then one day he was gone.
And somehow, the word disappeared with him.
Many years later, it reappeared, somewhere between black ink on a blank page, moving someplace between head and heart.
Since then, I’ve spoken with hundreds of people: Families. Doctors. Scientists. Parents. People living with epilepsy in different parts of the world. And I still do, today.
I’ve found courageous people willing to speak and to trust me enough to be part of this film.
Now, slowly, it’s beginning to come out into the world.
Thank you for following along and supporting this journey.
I feel an immense, overwhelming sense of connection to everyone who has been involved in this project.
With Love
Fras
With Blair
The project and updates are at alifeelectric.com
#epilepsy #documentary #sudep
Emma Taylor lost her daughter, Erin, on the 5th March 2018 to SUDEP (Sudden Unexpected Death in Epilepsy).
Watch her talk to ITV News West Country: /watch/news/catch-up-on-itv-news-west-country-west-friday-15th-may/215cjhs
Go to 5 minutes in 💜
#SUDEP #Epilepsy #EpilepsyAwareness
"Fraser Morton was a child when he first saw someone have a seizure. It was his own brother."
Through his project, “A Life Electric,” Fraser has travelled from the Amazon rainforest to the mountains of Nepal to capture the stories of those living with epilepsy - a condition that affects millions but remains largely invisible.
Fraser Morton has supported our work on epilepsy awareness for years and has been an incredible fundraiser, having ran the Edinburgh Marathon back in 2024 in memory of his brother, Blair.
Learn more by heading to our News tab, link in bio 💜
“My constituent Emma Taylor tragically lost her daughter at the age of 19.”
(MP Simon Opher)
Watch Emma Taylor on ITV News West Country at 6pm tonight 📆
Watch the full debate, led by @ollyglover_lib_dem , which called on the Government for better epilepsy risk management: /watch?v=XQUFYsan4CM&t=442s
#sudep #epilepsy #epilepsyawareness
“Ian meant so much to so many people. He was full of life, love, and energy and even though he’s no longer with us, we want his legacy to continue making a difference.”
Kelsey Gatenby has created the Ian Gatenby Legacy Fund in memory of her partner, Ian, with the help of Ian’s mum Jane.
The fund will be raising important awareness of SUDEP (Sudden Unexpected Death in Epilepsy), supporting research and spreading understanding of epilepsy risks.
Learn more: /
#SUDEP #epilepsy #epilepsyawareness
Do you have questions on epilepsy risks, SUDEP or how to stay safe living with epilepsy?
Get your answers from CEO Sammy Ashby and Dr Rhys Thomas, Consultant Neurologist and SUDEP Action Clinical Trustee.
Read more: /epilepsy-webinar/
Sign up now: https://buytickets.at/sudepaction/2204025
Date: Wednesday 20th May
Time: 7:00pm (approx 30-45 minutes)
Format: Live webinar
#NationalEpilepsyWeek #Epilepsy
When someone dies from epilepsy, there are often more questions than answers.
By sharing their story, you can help prevent future deaths.
Register with the Epilepsy Deaths Register today: /
#epilepsy #epilepsyawareness
In April, Caitlin, Ollie and Becca Grant lead a team of 50 close friends and family in the Mighty Stride Kiltwalk which is a 22.7 mile walk from Glasgow Green to Balloch. The challenge was in memory of their sister Lucy who died of SUDEP in 2025, aged 17.
They managed to raise an impressive £7,045!
Caitlin said: “We wanted to challenge ourselves in a way that we knew Lucy would have found funny, she always joked about how much she hated anything fitness related. We took comfort knowing she would be laughing at us while also cheering us on every step of the way. It felt like a meaningful way to honour her while doing something positive in her name.”
Read more:
/it-took-losing-lucy-for-us-to-even-learn-about-sudep/
#SUDEP #Epilepsy
“Adding a dedication to the wall each year for Fay means so much to us as a family. It’s helping keep Fay’s memory alive which is the most important thing in the world to us. We love posting about Fay, talking about Fay, letting people know who Fay is because she’s not here to do it for herself. 💜🌈🐝” – Shirley Adderley, bereaved supporter.
Our Dedication Wall for Epilepsy Memorial Day 2026 will close next week, Wednesday 20th May.
After this date, you will no longer be able to add a dedication, but all messages, photos and memories will still be visible.
View our wall: dicationpage.org/foreverremembered2026
#epilepsy #SUDEP
Ask your questions on living well with epilepsy to CEO Sammy Ashby and Dr Rhys Thomas on our #NationalEpilepsyWeek webinar!
➡ Sign up now: head to the link in bio!
Questions can be submitted on registration and the webinar will take place at 7pm, May 20th 2026.
If you know someone with epilepsy, share this post or tag them in the comments ✅
#Epilepsy #EpilepsyAwareness
Have you heard about our coffee clubs?
These relaxed coffee club meetings bring people together who have been bereaved by epilepsy-related deaths — offering a safe space to talk, listen, or simply be with others who understand.
You can drop in, share as much or as little as you like, and connect with people who “get it.”
Upcoming dates:
Saturday 23rd May, Maidstone, Kent 10am – 12pm
Saturday 30th May, Glasgow 11am – 1pm
Saturday 11th July, Guildford, Surrey 10am – 12pm
To learn more, email us at [email protected]
#SUDEP #epilepsy #coffeeclub #epilepsysupport
Thank you to both Emily Jardine and Caitlin Grant, and all those in Team Lucy's Legacy, who completed the Glasgow Kiltwalk and raised just over £8,000!
Emily walked in memory of Jessica Johnston, her close friend, who died in 2022 only 20 years old.
Cailtin walked in memory of her sister, Lucy, who died from SUDEP just 9 days after her 17th birthday.
If you’d like to fundraise in memory of a loved one lost to epilepsy, see what you could achieve: /get-involved/how-you-can-fundraise/
#SUDEP #epilepsy #epilepsyawareness #kiltwalk
