This new video marks SUDC Awareness month with personal stories, spoken by bereaved parents and their MPs at the recent Parliamentary Debate. Sudden Unexplained Death in Childhood was described by one MP as ‘one of the most serious medical phenomenon in our country’.
Do you know a family affected by SUDC?
Please take a moment to watch and share with a comment on why the cause is important to you. This will help a small charity with no government funding reach a wider audience.
***Trigger warning - emotional viewing****
Thank you to the families who took part in this video or contacted their MP.
Together, let’s shine a light on SUDC!
#pleaseshare #sudcuk #sudcawareness SUDC Foundation ⭐
Come and join us on 13th June at ZSL Whipsnade Zoo for a fully funded, supportive day out for the whole family.
For SUDC UK registered families, this is a special opportunity to spend quality time together and connect with others who truly understand. 💙
To find out more about our Family Days or to register, please email [email protected]
We would love to welcome you there. 💙
Find out more: .uk/events
#SUDCSupport #SUDC
We have spaces available, join #TeamSUDCUK at the Great North Run!💙⭐️
📅Sunday 13th September 2026
If you would like more information or to secure your spot, please email Lorna who would love to hear from you.
✉️[email protected]
#Greatnorthrun2026 #sudc
New for 2026 on the events calendar
We’ve teamed up with RAW Adventures to offer our supporters the chance to climb Snowdon and fundraise for SUDC UK.
📅 Trek date: Saturday 19 September
📍 Location: Llanberis village, LL55 4TY
To find out more or to register your interest, please email [email protected].
Please note: this trek is organised and run by RAW Adventures, and SUDC UK staff will not be in attendance.
#SUDCFundraising
Today is International Nurses Day 💙
At SUDC UK, we want to thank all the nurses who support our bereaved families.
You truly make a difference during the hardest times, and we are so grateful for your dedication, kindness and compassion.
We would also like to give special thanks to our family support nurse, Lorna — thank you for everything you do, every day, to support our registered families.
#InternationalNursesDay #SUDCSupport #ThankYou
Thank you to our inspiring 2026 London Marathon runners 💙
John, Lou and Mark took on 26.2 miles on a very warm Sunday, raising vital funds and awareness for SUDC UK in memory of the special children close to their hearts.
We think you’re all incredible.⭐️
If you’d like to find out more about fundraising for SUDC UK, please email [email protected] or visit our website:
.uk/fundraising_information/
#SUDCFundraising
This month has been very busy for SUDC UK. On the 21st April we were honoured to present to the Professional Advisory Group for the National Child Mortality Database. This event brings together leaders from the Department of Health and Social Care, the NHS, Royal Colleges and experts in policy. In addition to fostering helpful discussions about SUDC, we learnt a great deal and were grateful for the opportunity to say thank you to NCMD for their ongoing commitment to learning from data and families to reduce deaths and improve care.
Other activities include influencing global progress as an active ISPID board member (the international organisation for sudden child death), supporting various research projects, continuing our free training for professionals in many areas of the country, connecting with cardiac screening leads in Scotland, following up with MPs after the debate and very importantly, supporting families. This month we are excited to have a new team member join SUDC UK and we will introduce Sara to you very soon.
Thank you to everyone who has supported SUDC research this year – either through raising funds, attending Parent Advisory Groups (PAGs) or agreeing to take part. If you would like any information on opportunities, please contact us or read about projects at .uk/sudc-research/
Come and join us on 13th June at ZSL Whipsnade Zoo for a fully funded, supportive day out for the whole family.
For SUDC UK registered families, this is a special opportunity to spend quality time together and connect with others who truly understand. 💙
To find out more about our Family Days or to register, please email [email protected]
We would love to welcome you there. 💙
Find out more: .uk/events
#SUDCSupport #SUDC
With warmer months on the horizon, why not host your own ‘Afternoon Tea for SUDC’ event.💙⭐️
It is a lovely way to get together with people you care about and raise awareness and much needed funds for our cause.
Please visit .uk/afternoontea/ to find out more and to order a free fundraising kit.
#SUDCAwareness #SUDCFundraising #Afternoontea
Our newsletter has landed in your inbox today!
We’re excited to share the remaining events available to families and supporters this year, including:
⭐️Family Day at Whipsnade Zoo
⭐️Virtual Coffee Afternoon
⭐️Autumn Retreat
⭐️Great North Run and Great Scottish Run
⭐️NEW- Autumn Trek
Be sure to take a look — and don’t forget to check your junk or spam folder if you can’t find the newsletter.
#SUDC
2026 Research Funding Call — Closing 1st May 2026
Thanks to the incredible generosity of our community, we have already funded £800,000 in impactful research. We are deeply grateful for your continued support.
To learn more — including application timelines, eligibility criteria, and contact information — please visit our website (link in bio).
.uk/sudc-research/sudc-uk-research-strategy-process/
#SUDCResearch
Calling all runners!
Don't miss your chance to enter the ballot for next year's London Marathon and fundraise for SUDC UK! The TCS London Marathon will take place on Sunday 25th April 2027. The ballot is open for 1 week, (24th April 2026 to Friday 1st May 2026).💙⭐️
Link to register is in bio🔗
/ballot
