Solve ME/CFS Initiative

@solve_cfs

Our Mission: Make ME/CFS, Long Covid and other post-infection diseases widely understood, diagnosable, and treatable.
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Solve is pleased to announce that Emily Taylor, Vice President of Advocacy and Engagement, has been appointed as President and CEO. Emily has been a key member of Solve’s leadership team for more than eight years and played a critical role in securing $1.25 billion RECOVER NIH funding for Long Covid research. Solve Board Chair John Nicols states, “We congratulate Emily and look forward to her leadership.” Emily succeeds Kristin Jacobson, who resigned after recently returning from a medical leave of absence. Kristin will continue to support Solve in the role of Advisor. “We want to thank Kristin for her valuable contributions, and we look forward to continuing to tap into Kristin’s strategic insights,” adds John Nicols. “It has been an honor to serve as Solve’s CEO, leading one of the most skilled and dedicated teams I have worked with in my career, Kristin says. “I will remain engaged in the field to help address what I believe is the most pressing public health emergency of our time.” Emily serves as a policy and advocacy advisor, fostering critical partnerships with members of Congress and federal agencies to amplify the voice of those with ME/CFS, Long Covid, and infection-associated chronic conditions on Capitol Hill. Emily says, “I came to Solve looking for answers when my mother got ME/CFS, and now I am honored to lead Solve’s impact on improving the lives of patients.” Please join us in congratulating Emily on her appointment. We look forward to our exciting journey ahead under Emily’s dynamic leadership! Read the full announcement at the link in our bio. https://ow.ly/1pkQ50RaKNT
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2 years ago
We are excited to launch our new patient-centered data platform, Solve Together! This platform brings extensive advantages to both the #MECFS and #LongCovid patient communities and researchers. Fully accessible by smartphone, participants can track symptoms, connect wearables, download reports for doctor visits, link electronic health records, and expend less time and energy on participation through short, infrequent surveys and passive data collection. Join at the link in bio today!
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2 years ago
Solve M.E. continues to make significant strides toward finding treatments and cures for post-infection diseases — all thanks to your continued support. We're leveraging our legacy and successes in the #MECFS space to help the ever-growing #LongCovid community. Please help us find relief for the millions who struggle daily by making a donation to Solve today. Visit solveme.org/donate
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2 years ago
During Advocacy Week 2026, we asked Congress to keep #MECFS as an eligible topic area in the Congressionally Directed Medical Research Program (#CDMRP). Read the case we made for why ME/CFS is a military issue at the link in our bio.
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2 days ago
Check out the @laweekly feature on Solve CEO Emily Taylor. The piece highlights how caregiving for her mother informs Emily's commitment to accelerating research breakthroughs and the creation of our #MECFS Catalyst Awards Program. Read it at the link in our bio.
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2 days ago
Join us for a Sept. 8 webinar with Dr. Jay H. Chung (NIH), who will discuss his Solve ME/CFS Catalyst Award-winning study of a potential safe and accessible treatment for #MECFS. Sign up at the link in our bio. #MEAwarenessHour
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3 days ago
Join us for a webinar with panelists from DecodeME and ActionForME to discuss their Catalyst Award-winning study on Sequence ME and Long Covid and how it could impact the search for biomarkers and subtypes. Sign up at the link in our bio. #MEAwarenessHour
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3 days ago
This week, advocate Rebecca Groble shared information about ME/CFS at the Evanston Public Library in honor of World ME Month. Thank you, Rebecca, and health librarian Irene, for doing your part to educate people about this disease. Visibility matters! #WorldMEDay #UnitedForME
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4 days ago
Solve’s latest Catalyst Award-winning projects will expand whole-genome discovery and test a promising low-cost therapy targeting inflammation and energy dysfunction—key steps toward biomarkers & clinical trials. The Catalyst Award-winning studies are: “Mitochondrial stabilizer IVO-21 as therapy for ME/CFS” Dr. Jay H. Chung (National Institutes of Health) is testing a low-cost pill medication called IVO in preclinical mouse models to see if it boosts cellular energy and reduces inflammation—mechanisms believed to drive symptoms such as fatigue and brain fog. Dr. Chung’s study could pave the way for a safe, accessible treatment that addresses the root causes of this complex disease. “Sequence ME & Long Covid” The DecodeME Management Team (Prof. Chris Ponting, Sonya Chowdhury, and Andy Devereux-Cooke) is expanding a major genetic study by using whole genome sequencing to analyze all 3 billion genetic positions in participants, providing 3,000x more data than before. Driven by patient needs and lived experience, the study could reveal many more genes, gene-regulation elements, and biological pathways that affect ME/CFS risk, advance efforts to identify new biomarkers for disease subtypes, and lead to new treatments. Learn more at the link in our bio. #WorldMEDay
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4 days ago
ME/CFS is a seriously disabling condition impacting at least 67 million people. Medical education is lacking in most countries. Patients are denied the care they deserve. Consequences are significant: - delayed diagnoses; - harmful or inappropriate treatments; - repeated experiences of stigma and disbelief; - patients not warned of the risks of Post-Exertional Malaise (PEM). To help close the education gap, the World ME Alliance has created a Medical Education Hub (link in bio). The hub: - contains trusted, evidence-based resources - aims to foster a future where care is grounded in science, and shaped by dignity and compassion - provides a range of resources in various languages and categories, including: ✅Full Guidelines ✅ Continuing Professional Development ✅Severe ME ✅Quick reference summaries ✅Medicines Ask healthcare professionals to read our one-page document (link in bio) on how our Medical Education Hub can help. Share your story and the World ME Alliance's Medical Education Hub using #EducateME
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4 days ago
Philly representing this International ME Awareness Day (May 12th) thanks to @tina_yes @solve_cfs and @pecoconnect . This message will be scrolling atop the Philly skyline today, tomorrow (May 12th), and Wednesday (May 13th) to highlight the lack of treatments/cures for myalgic encephalomyelitis (misnamed chronic fatigue syndrome and sometimes called ME/cfs)— a debilitating condition involving neuroimmune and metabolic dysfunction, often triggered by an infection such as C19. Too many have suffered for too long! We need biomedical research investments to find effective treatments/cures! #LightUpforMEcfs #WorldMEDay #MillionsMissing #MEcfsAwareness #MEcfs Video description: a video of the PECO building in downtown Philadelphia, PA USA at dusk which has a banner of a scrolling lighted messages at the top. This video shows the message “ME/CFS Awareness Day - No FDA Approved Treatments, No Cure - SolveME.org”
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5 days ago
When we fight as a coalition, everyone benefits. Senators Wicker and Durbin are circulating a bipartisan Senate letter calling for increased federal funding for medical research at the Department of Defense, including ME/CFS research. Solve M.E. is part of the Defense Health Research Consortium, a coalition of patient communities fighting together to protect this funding for everyone. The more Congress invests in this larger pool of medical research funding, the more our community can access for ME/CFS research specifically. The deadline for Senators to sign on is May 8. Ask yours to add their name. Link in bio. #MECFS #MyalgicEncephalomyelitis #CDMRP #FundMedicalResearch #ChronicIllness #LongCOVID #MEAwarenessHour
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10 days ago