The Sick Of It Foundation

This is so exciting! It’s very important to us that awareness is raised among HBCU campuses. #SickOfIt 👊🏾♥️👊🏾 #Repost @hbcugrad ・・・ @Howard1867 - Dr. Wayne A. I. Frederick today announced the official launch of the Run to Cure Sickle Cell campaign. The campaign, which seeks to raise to awareness and funds for Howard University’s Center for Sickle Cell Disease, will culminate with the Center’s 13th annual Stomp Out Sickle Cell 5K walk in September. Dr. Frederick was diagnosed with sickle cell anemia at birth. Last year, Dr. Frederick made a pledge online to run a 5K race every month in 2019 to bring awareness to the disease. “I am proud to officially launch the Run to Cure Sickle Cell campaign,” said Dr. Frederick. “At birth, I was diagnosed with sickle cell anemia. While living with sickle cell at times has been a painful journey, it has also served as a source of motivation for me becoming a physician. I hope that the Run to Cure Sickle Cell campaign encourages others living with the disease to pursue their dreams without restriction. Together, we can work together to find a cure.” The Center for Sickle Cell Disease and Howard University Hospital share a long history of treating patients and advancing research. The center has participated in every major clinical trial that has led to FDA-approved medications for sickle cell disease treatment, including the recent FDA approval of L-glutamine, the first new medication in two decades. Funds raised through the campaign will go toward expanding Howard University’s clinical and translational research programs with a focus on new treatments and opportunities for curative therapy. Proceeds will also benefit community outreach, particularly screening for sickle cell trait. “The Center for Sickle Cell Disease is proud to support Dr. Frederick’s Run to Cure Sickle Cell campaign,” said Dr. James Taylor, VI, director of the Center for Sickle Cell Disease. “The Center is committed to treating patients and ultimately finding a cure for sickle cell, and I am encouraged that this campaign will help raise the funds needed to expand critical research programs and treatments.” - #HBCUGrad 🎓 #Howard 💙❤️ #HBCUsMatter ✊

The Sick of It Foundation would like to wish everyone a Happy Holidays! God Bless you all! ♥️🎄💪🏾

This is AMAZING!!! #TeamSickleCell #SickOfIt 👊🏾♥️💪🏾 #Repost @boldlipsforsicklecell ・・・ We did it #Teamsicklecell it passed and now this will become law!!! Sickle Cell Warriors we did it!! It’s a new day for the sickle cell community Full circle moment for #BoldLipsForSickleCell. Back in 2014, we began and we were one of the vehicles to get 100,000 signatures for the petition for the Reauthorization of the Sickle Cell Treatment Act. Fast forward to today, four years later and we’re able to celebrate the PASSING of the S.2465 Bill!!!!! We DID IT #TeamSickleCell!!!! 🎉🎉🎉🎉🎉🎉

Thank you all for following us and supporting the #SickOfIt movement!! #SickleCellAwarenessMonth was a success and we can’t wait to give more info and continue to advocate!! We would also like to give a special shout out to all of the Sickle Cell Warriors and the amazing people that support them. Stay tuned and remember...We’re #SickOfIt👊🏾♥️💪🏾

It is vital that Sickle Cell Warriors have a community of loved ones that are committed to supporting them throughout their journey. Whether you’re a doctor, family member or friend there are many ways that you can support your #SCWarrior. Here are a few tips for spouses and partners who want to support their warrior. “Being a knowledgeable advocate is the most effective way to care for a sickler. Knowing things like best location to administer IV meds. Knowing needle sizes that work best in time of crisis. Establishing great relationships with doctors and nurses so that they will trust your suggestions in treatment options. Get to know the warnings and signs that usually happen a few hours before the crisis. Learn ”the triggers”. These are a few things that help get us through some rough times. “ - Katina Robinson

It is vital that Sickle Cell Warriors have a community of loved ones that are committed to supporting them throughout their journey. Whether you’re a doctor, family member or friend there are many ways that you can support your #SCWarrior. Here are a few tips for friends who want to support their warrior. “SC was kind of new to me before I met my friend, June. I only heard two things : 1. It’s extremely painful. 2. Only black people get it. However, I made it a priority to go to as many doctor’s appointments as I could just to make sure he was still doing good and still doing what the doctor said, and if he wasn’t I would stay on him about it. (The first appointment is where my “mom friend” instincts kicked in because I started asking questions and I even had the doctor’s number. We established that I would drive him to the hospital during a crisis that day too.) I also made sure he was staying hydrated with water and not in any pain.” Tia Lynch

It is vital that Sickle Cell Warriors have a community of loved ones that are committed to supporting them throughout their journey. Whether you’re a doctor, family member or friend there are many ways that you can support your #SCWarrior. Here are a few tips for parents who want to stay ahead of the game and be as much help as possible. “Be patient with their pain and your helplessness. Be a team in making sure that whether in wellness or in crisis, we’ll get thru it all together. Instill in your child that there is nothing abnormal about them! On the contrary, they are quite extraordinary because they have been built with extra strength, extra determination, extra love for life! Always remind your child that they can still fulfill their dreams & goals and that as a parent, you’ll be there to support them no matter what.”- L. Spenser and Patrice Smith

Warrior: Larenz Tate It’s the last day of #WarriorShoutoutWeek and today’s warrior is the iconic Larenz Tate!! We all know Tate from roles such as O-Dog in Menace II Society and Darius Lovehall from Love Jones, but today we celebrate him not as an accomplished actor but as a #SCWarrior!! To have a powerhouse like Tate be a part of the Sickle Cell community is huge because he shows us that we can do anything and be anything no matter the limitations that come with the disease. His work inspires so many to this day and we are elated to celebrate him on today! #SickOfIt👊🏾♥️💪🏾

Warrior: Ramon Reed It’s day 5 of #WarriorShoutoutWeek and today’s warrior is broadway standout, Ramon Reed. Reed is 13 years old from Charlotte, NC and he is playing the role of young Simba in the ‘Lion King’ on broadway. His fight, like many others has not been easy, but his positive attitude keeps him going. This #SCWarrior is doing big things and the Sick Of It Foundation prays that his positivity allows more doors to open for him. We are ecstatic to celebrate Ramon Reed on today and we hope that his story breeds positivity throughout the Sickle Cell community as well as the rest of the world! “It’s just something that God gave me, so I don't take it for granted, just use it for good and inspire other people.”-Ramon Reed ‼️Check out this article on Reed‼️ /news/local/charlotte-13-year-old-with-sickle-cell-plays-lead-role-in-broadway-s-lion-king-/818467551 #SickOfIt👊🏾♥️💪🏾

Warrior: Jada Hunter It’s Day 4 of #WarriorShoutoutWeek and today’s Warrior is Jada Hunter! Jada is 21 years old and has had her fair share of battles with Sickle Cell. Her fight with this disease has claimed her time, mind, body, and even her education, but it didn’t take her fighting spirit. Her journey has brought her closer to God and she has learned to lean on Him in rough times. Her favorite scripture is Luke 1:37, “For with God nothing shall be impossible.” This #SCWarrior is definitely that, a warrior. The Sick Of It Foundation is pleased to honor this overcomer and her story reminds us all that we are because He is UNSTOPPABLE! #SickOfIt👊🏾♥️💪🏾

Warrior: Nevaeh Jones It’s Day 3 of #WarriorShoutoutWeek and today’s Warrior is Little Miss Nevaeh Jones from Columbus, Mississippi! Nevaeh is 3 years old and will be 4 on the 26th of this month! This young Warrior has gone through 20 blood transfusions and has also had her spleen removed as of last year. Her mother, Kenya Jones tells us, “Her doctor says she is [always] a ball of fire; she is so full of energy even when she isn’t feeling well.” This “ball of fire” definitely has the heart of a warrior! Her strength is motivation to us here at the Sick Of It Foundation and we pray that her story inspires others as well! The Sick Of It Foundation is honored to celebrate this courageous #SCWarrior and we pray that God watches over her in her journey to come! #SickOfIt👊🏾♥️💪🏾

If you are a #SCWarrior or know any Sickle Cell Warriors, send them to us for #WarriorShoutoutWeek‼️ #SickOfIt👊🏾♥️💪🏾