Sickle Cell 101

@sicklecell101

Largest sickle cell digital advocacy org — sickle cell disease + sickle cell trait — certified educators + experts — send questions to [email protected]
Followers
39.3k
Following
1,345
Account Insight
Score
59.99%
Index
Health Rate
%
Users Ratio
29:1
Weeks posts
Our cells🩸putting in overtime 😮‍💨 and deserve to be celebrated #SickleCell Awareness Month and every month tbh 🤷🏾‍♀️ #sicklecellawareness #sicklecell101 #sicklecellwarrior #
1,761 76
1 year ago
We’re the largest 🌍 digital advocacy community organization for sickle cell! Sickle Cell 101 is dedicated to community-driven education, patient-reported research, and advocacy for sickle cell. In honor of #WorldSickleCellDay, our ask is simple. A $5 donation! Here’s why: Not all information about sickle cell is created equally. We work diligently to ensure the content we provide is accurate, original, high quality, relevant, and easy to understand, so that all individuals impacted by sickle cell have access to important information about #sicklecell globally. We take what we do very seriously, never underestimating the power of information sharing and education. You can donate at sc101.org/donate or through the link in our bio and story. If you are unable to donate $5, we get it. You can support #SickleCell101 by interacting (likes and comments) and sharing our content. We deeply appreciate the support you’ve shown over our 10 years. Here’s to our continued journey together! #sicklecellawareness
1,306 22
1 year ago
@casmopolitan provides a brief explanation about #sicklecell for the #EachOneTeachOneSickleCell campaign for #SickleCellAwarenessMonth. Submit your response to the question “What’s one thing you want everyone to know about sickle cell?” We are reposting your responses all month long. You can also support by donating to #SickleCell101’s mission to provide important sickle cell information to individuals living with it and their loved ones. ❤️
2,126 67
3 years ago
Interesting stuff! Some questions with Dr. Hagar and discussing SCDPAIN Study. #ucsf #sicklecellresearch #sicklecell
27 1
2 days ago
We talked about alcohol, gene therapy, passing on sickle cell and more! #sicklecell #sicklecell101 #asktheexpert
29 3
2 days ago
Feel like Nigeria 🇳🇬 should be in the lead since they have the highest sickle cell population 👀. Kenya 🇰🇪 knocked Canada 🇨🇦 out of th top 5. This survey is available in English, French, Arabic, Hindi, Portuguese, and Spanish. Make sure you to support the only global survey to accept responses from patients and caregivers from any country worldwide!! #ourvoicescd #sicklecell #sicklecell101 #sicklecellawareness
44 4
2 days ago
Know when it is time to go to the emergency room (ER) or emergency department (ED). 🩸 Serious symptoms require immediate help. Unfortunately, going to the ER is part of living with sickle cell, but the medical staff are there to help. 🧬 Comment with has brought you to the ER recently. 🧑🏾‍⚕️ #sicklecell #CT101 #sicklecell101
181 12
9 days ago
What if 15 minutes of your time could win you $100 AND rewrite the future of global healthcare? We talk about change, but data is the fuel that actually drives it. Whether you’re a warrior or a caregiver, your voice is the missing piece of the puzzle. ✅ 100% Anonymous ✅ Available in 6 languages ✅ Weekly $100, $50, and $35 prizes Don’t let our history be written without us. Tap the link in our bio to represent! sc101.link/ourvoice #ourvoice #sicklecell
0 1
10 days ago
By us for us!! The only global sickle cell survey to include ALL COUNTRIES 🌍. Nobody is excluded…That’s why we’re providing it in 6 languages. This will something that represents our priorities and Our Voice and we’ll share the data right here!! https://sc101.link/OurVoice (link in bio). THE SOONER YOU COMPLETE THE SURVEY THE MORE CHANCES YOU HAVE TO WIN!! So don’t forget to opt in for the giveaway when you’ve completed the survey to win #sicklecell101 gear and gift cards. #sicklecell #OurVoiceSCD
0 4
18 days ago
Will you pull up? [link in bio] #sicklecell #sicklecellwarrior #ourvoicescd #sicklecellawareness @casmopolitan
162 7
26 days ago
Recent studies show that 30 to 50 percent of adults with sickle cell disease experience chronic medical trauma. As part of our "Care and Treatment 101" series, we’re discussing how medical trauma (from painful procedures to being disbelieved) impacts our community and what we can do to manage it today. Let’s make education more approachable and support each other through the journey. #sicklecell101 #SCDCT101
577 23
1 month ago
*Additionally there is the Chorionic Villus Sampling or CVS Test in which a couple can find out as early as 10-13 weeks of pregnancy. Many couples face this decision, many more do not know their #sicklecell trait status to even make a decision. #sicklecell101 #bluetherapy #netflix
1,436 119
1 month ago