Caregiving can be one of the most meaningful, and most challenging roles a person takes on.
If you care for someone living with scleroderma, this webinar offers a space for support and understanding.
Hear from Foundation volunteers who are also caregivers as they share advice, personal experiences, and encouragement.
Watch the recording now on our YouTube channel.
#Scleroderma #CaregiverSupport #TealTalk #SclerodermaAwareness
Interstitial lung disease (ILD) is a significant complication of systemic sclerosis.
Join us for a webinar with Francesco Boin, MD from Cedars-Sinai Medical Center, as we explore disease progression and treatment options.
#Scleroderma #SclerodermaAwareness #ILD #LungDisease #PatientEducation
Join us and advocates from other national dermatology organizations from Sunday, May 17, to Tuesday, May 19, 2026 in Washington, D.C.
Connect with fellow patient advocates, policymakers, and industry leaders.
Gain valuable insights through training sessions and champion legislation to positively impact the lives of those living with skin diseases!
#SclerodermaAwareness #CSD #HillDay #SkinDiseases #PatientAdvocacy
Have you secured a light up or proclamation for Scleroderma Awareness Month? ✨
Log your outreach, events, and advocacy activities in our Advocacy Tracker.
Your participation helps us measure our collective impact and celebrate progress together!
🔗: Submit your advocacy efforts at scleroderma.org/AdvocacyTracker2026
#SclerodermaAwareness #AwarenessMonth #Advocacy #Proclamation
Have you been thinking about joining us for National Conference this July?
Early bird pricing ends this Friday, May 15! Take advantage of discounted rates while you still can.
Register now and secure your spot (and your savings)!
🔗: scleroderma.org/registration
#Scleroderma #SclerodermaAwareness #PatientEducation #Conference
Scleroderma Awareness Month is almost here!
If you missed our recent #TealTalk, the recording is now available on our YouTube channel.
Explore June activities and resources and learn how you can help support the scleroderma community throughout Awareness Month!
#SclerodermaAwareness #TealTalk #BeaconsOfHope #Scleroderma
Interstitial lung disease (ILD) is a significant complication of systemic sclerosis.
Join us for a webinar with Francesco Boin, MD from Cedars-Sinai Medical Center, as we explore disease progression and treatment options.
Register today using the link shown above.
#Scleroderma #SclerodermaAwareness #ILD #LungDisease #PatientEducation
We are still accepting abstract submissions for Poster Hall presentations at our 2026 National Conference in Baltimore! 📊
We welcome original research and clinical studies (IRB approval required; recruitment or general promotion is not allowed).
Translational science and patient-centered work related to scleroderma and autoimmune conditions are also encouraged.
🔗 Apply today at scleroderma.org/abstractsubmission
📅 Submission Deadline: May 29, 2026.
We’re launching a new support group for a community that’s often overlooked.
Scleroderma and endometriosis can intersect in complex ways, impacting pain, diagnosis, and daily life.
If you’ve been navigating both, this space was created with you in mind!
🔗: Register today on our website calendar!
#Scleroderma #Endometriosis #SupportGroup #ChronicIllness #Community
Hope shines brightest when we share it together.
Is it a support group, a friend, or a special moment that lifts your spirits? 💙
This Scleroderma Awareness Month, your story could inspire someone else to keep going.
Let’s be Beacons of Hope for one another!
#SclerodermaAwareness #BeaconsOfHope #PatientVoices #HopeStories
Congratulations to the 2026 Scleroderma Research Grant Awardees! ✨
Their innovative research is advancing scientific understanding and offering new hope for those affected by scleroderma.
We are proud to support their important work!
🔗: Read more about the awardees on our website homepage!
#Scleroderma #SclerodermaAwareness #Research #BeaconsOfHope
Looking for a way to show your support? 💙
Visit our online store to explore designs inspired by Beacons of Hope - celebrating strength, community, and hope.
Shop today and wear your support proudly! ✨
#Scleroderma #BeaconsOfHope #SclerodermaAwareness #Merch
