📅 Just 4 weeks away from Warrior Con 2025!
Get ready for 5 days of fun, connection, and family reunion vibes like never before — July 15–20 in Orlando, FL! ☀️
🎟 Register before it’s too late
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✨ Need help covering your hotel stay? Lodging scholarships are NOW OPEN for Warrior Con 2025! 🏨
Here’s how it works:
📌 Lodging scholarships are awarded to cover your hotel stay — not travel.
📌 Each person attending must register separately and apply for a scholarship.
📌 Scholarships are limited and first come, first served.
Don’t wait — secure your spot today and apply while slots are still open!
🎟 Register at:
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#SC3WarriorCon25 #SC3WarriorsConvention2025 #SC3ShowUpChallenge #SC3Events #SC3Floridatakeover
💚 July is Minority Mental Health Awareness Month and we’re proud to continue a much needed conversation through Part Two of our viral series: What Do Sickle Cell Warriors Deserve?
This video highlights real voices and real answers from warriors themselves, because who better to speak on what we deserve than us?
From empathy and equity to proper care and peace of mind, our voices matter, our needs are valid, and our mental health is essential. 💬✨
We’re so proud to continue this important and empowering series.
🩸💚 We hope you enjoy Part Two.
#WhatWarriorsDeserve #MinorityMentalHealthMonth #sicklecellawareness #MentalHealthMatters
What does a Sickle Cell Warrior deserve?
In honor of Mental Health Awareness Month, we asked our community, and those who support us, this powerful question. Their answers highlight not only what’s often missing, but also what’s deeply needed.
To every Warrior: You are not forgotten. We see you, we stand with you, and we will continue to speak up for you. Stay tuned for part 2 🤎
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📸 Creative Director: @kierra_teamcells
#Mentalhealthawarenessmonth #sicklecellawareness #sicklecellwarrior #standtogether
Today, we lay to rest and honor the extraordinary legacy of a woman who meant so much to so many our beloved Aunt Rose. 🌹
Aunt Rose was the definition of grace, strength, wisdom, service, and unconditional love. She carried people through some of life’s hardest moments with compassion in her heart and honesty in her words. She was a protector, an advocate, a guiding light, and a safe place for countless people within the sickle cell community and beyond.
She loved deeply, gave endlessly, and showed up for others even when it was inconvenient because that was simply who she was. A phenomenal mother, grandmother, sister, aunt, friend, and “Mama Bear” to so many of us. There will never be another Rose.
Though our hearts are heavy today, we are grateful for every lesson, every laugh, every prayer, every embrace, and every memory she leaves behind. Her impact will continue to bloom in every life she touched.
Rest beautifully, Aunt Rose. Your love, your voice, your elegance, and your legacy will live on forever. 🌹🤍
If you would like to support Aunt Rose’s family during this time, please consider giving here:
tinyurl.com/rosebaileymillard
#LongLiveAuntRose #RoseBaileyMillard #LegacyOfLove
Tomorrow, we gather to honor, celebrate, and lay to rest a truly phenomenal woman, Rose Mary Bailey-Millard, lovingly known to so many as Aunt Rose. 🌹🤍
Aunt Rose was the definition of grace, wisdom, strength, compassion, and unconditional love. Her impact reached far beyond words, touching countless lives throughout the sickle cell community and beyond. Her legacy of advocacy, service, honesty, elegance, and deep love for family will continue to live on in all of us forever.
For those who would like to join virtually as we celebrate her beautiful life and legacy, please see the livestream information below starting promptly at 11am EST.
📍 Livestream Link:
tinyurl.com/RoseMary-BaileyMillard
(Check our story for the hyperlinks)
📍 Direct YouTube Link:
/RoseMary-BaileyMillard
Please continue to keep her children, grandchildren, loved ones, and all whose lives she touched in your prayers during this difficult time. 🕊️🌹
In loving memory of the phenomenal Rose Bailey-Millard, lovingly known to so many as “Aunt Rose.” 🌹💙
A woman of grace, wisdom, compassion, strength, and unwavering love. Aunt Rose touched countless lives through her kindness, advocacy, laughter, honesty, and the way she embraced people like family. Her presence brought comfort, warmth, and light into every room she entered, and her impact on this community will live on forever.
Her children and family are deeply grateful for the overwhelming love, prayers, support, messages, calls, and beautiful memories that have been shared by the sickle cell community and beyond during this difficult time. Your kindness has truly meant so much to them.
Funeral & Burial Services will be held at:
Roswell Funeral Home & Green Lawn Cemetery & Mausoleum
📍 950 Mansell Road, Roswell, GA 30076
Viewing:
Thursday, May 14, 2026
6:00 PM – 8:00 PM EST
Funeral Service:
Friday, May 15, 2026
11:00 AM EST
Repast information will be announced at a later time.
To support the family:
tinyurl.com/rosebaileymillard
Please continue to keep the Bailey-Millard family lifted in prayer during this time. Her love, legacy, and beautiful spirit will never be forgotten. 💙🌹
🎨✨ CALLING ALL DIGITAL CREATIVES IN THE SICKLE CELL COMMUNITY ✨🎨
We’ve celebrated the storytellers behind the cameras, the photographers capturing powerful moments, and the media creatives helping shape our narrative… but now it’s time to shine a spotlight on the DIGITAL CREATIVES who bring imagination to life through art, graphics, design, and innovation. 💻🖌️🔥
The Sickle Cell Community Consortium is looking to connect with:
✨ Graphic Designers
✨ Digital Artists
✨ AI Digital Artists
✨ Illustrators
✨ Visual Storytellers
✨ Motion Graphic Creators
✨ Creative Editors
✨ Branding & Design Creatives
✨ Community Creators with a unique artistic vision
We know there are incredibly talented creatives within this community creating powerful work behind the scenes and we want to see YOU. Whether you create bold awareness graphics, cinematic visuals, digital paintings, AI-assisted artwork, educational content, or creative storytelling pieces, we would love to connect with you.
If this sounds like you, please send us:
📩 A DM
📩 Your portfolio
📩 Samples of your work
📩 Or simply express your interest
Email: [email protected]
Let’s continue building a creative community that pushes awareness, innovation, representation, and impact to the next level. 🚀🎨
Tag a creative below who deserves to be seen. 👇🏽
#DigitalCreators #GraphicDesigner #DigitalArt
the world. 🌸
To the women who nurture, protect, encourage, sacrifice, and love with every piece of their hearts thank you. Thank you for the countless prayers, late nights, warm hugs, life lessons, and unwavering support that shape generations.
Whether you are a mother by birth, by love, by guidance, or by spirit, today we celebrate the beauty, strength, grace, and resilience you carry every single day.
May today remind you how deeply appreciated, valued, and loved you truly are. The world is softer, stronger, and more beautiful because of mothers like you. 💐✨
#HappyMothersDay #MothersDay #CelebrateMothers #Love #Family
It is with heavy hearts that the Sickle Cell Community Consortium announces the passing of Rose M. Bailey.
Known lovingly to many as “Aunt Rose,” she was a beautiful light within our community whose grace, kindness, and unwavering support touched countless lives. Her presence carried warmth, compassion, and love that will never be forgotten.
We extend our deepest condolences and prayers to her beloved husband, children, family, and all who knew and loved her during this difficult time.
Please continue to keep the Bailey family lifted in prayer as we honor the life and legacy of a truly remarkable woman.
#takeyourest #angel #prayers
Today is the last day to apply for the Vertex Foundation Scholarship for SCD & TDT Scholars.
This opportunity provides $5,000 USD/CAD to support individuals living with sickle cell disease or transfusion-dependent beta thalassemia, as well as family members, including caregivers, siblings, spouses, and children pursuing higher education.
Don’t wait on this one. If this could help you or someone you love, apply today.
Apply here:
/scholarship/vertexfoundationscdtdt/
#SickleCell #SickleCellDisease #TDT #ScholarshipOpportunity #HigherEducation #SickleCellCommunity #CommunitySupport #NothingForUsWithoutUs
I want to sincerely thank La'Tasha Givens and the entire CBS News Atlanta team for continuing to follow HB 334 and helping shine a light on the realities facing the sickle cell community.
When CBS first shared my family’s story, our goal was not just awareness — it was action. The community showed up, voices were heard, and now HB 334, the Sickle Cell Disease Protection Act, has officially been signed into law by Governor Kemp.
This legislation represents hope for thousands of Georgians living with sickle cell disease and an important step toward modernizing care, improving accountability, and expanding access to emerging treatments — including gene therapy.
I especially appreciate La’Tasha for elevating an issue that is deeply personal to my family and so many others navigating this journey. Earlier this year, my daughter Tully was approved for gene therapy. After enduring fertility preservation and preparing emotionally and physically for the next phase, we returned to her BMT team only to learn that they were not yet ready to proceed.
That moment was heartbreaking.
While scientific breakthroughs are advancing, access remains complicated and inconsistent for many families. My hope is that HB 334 will help create pathways, strengthen infrastructure, and move Georgia closer to ensuring that life-changing therapies are truly accessible for those living with sickle cell disease.
This bill becoming law is not the end of the work — it is the beginning of a new chapter.
Thank you again to CBS News Atlanta for helping elevate these conversations and for recognizing the importance of this moment for the sickle cell community.
With gratitude,
Mapillar ❤️
IT’S OFFICIAL. 🎉💙
HB 334 – The Sickle Cell Disease Protection Act has been SIGNED INTO LAW by Governor Brian Kemp.
This is a historic moment for the sickle cell community in Georgia.
This law ensures that sickle cell treatments, medications, and services under Medicaid are reviewed annually—bringing greater accountability, transparency, and alignment with medical advancements so that patients are not left behind.
This moment did not happen overnight.
From its introduction by Representative Omari Crawford as a freshman legislator, to perseverance after it did not pass the first time, to overwhelming bipartisan support in the General Assembly—this has been a journey powered by advocacy, partnership, and purpose.
Today, we celebrate leadership.
We celebrate progress.
And we celebrate every warrior, family, and advocate who helped make this possible.
As a mother of three daughters living with sickle cell disease, this moment is deeply personal. This is what advocacy looks like. This is what impact feels like.
And we are just getting started.
❤️ Join us as we continue the work:
#HB334 #SickleCellAwareness #HealthEquity #PolicyChange
