Wherever you are in your rare heart journey, we’re here to help.
We’re here to offer support, answer your questions, connect you with other families who’ve been through similar experiences, and help you find appropriate care in your area.
If you have a question, need help getting expert care, or if you’re feeling scared or alone because of your diagnosis – give us a call or text! Our hotline is open from 11 AM – 7 PM ET from Monday to Friday (and you can also leave us a message outside of business hours).
If you're looking for support, but would prefer not to talk on the phone, you can also contact us via email, by sending us a DM, or through our website at /contact-us/support-intake/.
🏷️ #LQTS #CPVT #Brugada #ARVC #ARVD #SuddenCardiacArrest #HeartFailure #ICD #ShortQT #WolffParkinsonWhite #DilatedCardiomyopathy #HypertrophicCardiomyopathy
Who are we at The SADS Foundation?
Swipe through these photos to read more about who SADS is, our mission, our goals, and our values.
🏷️ #SADS #SADSCommunity #SADSLive #LivingwithaSADSCondition #LQTS #CPVT #Brugada #ARVC #ARVD #ICD #LCSD
This one's for everyone who's ever smiled and said "I'm fine" while carrying something nobody else can see.
We see you. We've felt the same way. And we're here for you. ❤️🩹 Inherited arrhythmias are not simple, and neither are the feelings that come with them.
#MentalHealthAwarenessWeek may be ending, but these conversations never stop at the SADS Foundation. We're here for you every day of the week, every week of the year.
Drop a 🤍 if any of these landed for you.
Sometimes the most healing thing you can do is to get outside 💕
Jen - our Community Engagement Coordinator - shares what helps her manage the emotional weight of living with inherited arrhythmia and the grief her family has faced. Whatever you're carrying today, we hope this reminds you that small moments of care matter. 🌤️
Swipe to check out recent papers published on left cardiac sympathetic denervation surgery, risk in LQTS, PCOS and Brugada, and biomarkers for ACM this month!
To access these full articles - and to get monthly emails with the latest advances for inherited arrhythmias - make sure to sign up for our monthly Research eNews at the Sign Up link in our bio.
🏷️ #LQTS #CPVT #Brugada #ARVC #ARVD #SuddenCardiacArrest #HeartFailure #ICD #ShortQT #WolffParkinsonWhite #DilatedCardiomyopathy #HypertrophicCardiomyopathy
He does this work for Lovey.🕯️
SADS Foundation CEO Walker Frahm lost his daughter Lavinia to a cardiac event just days after she was born. This year, he's joining our #ShareTheirLight campaign and raising funds in memory of those lost too soon and in honor of everyone we work tirelessly to save.
Join Walker and donate today: sads.org/light/.
🏷️ #ShareTheirLight #GriefAwareness #ChildLoss #BereavedParents #GriefSupport #LifeAfterLoss #RememberThem #GriefJourney
What are you grateful for today? 💙 It's Mental Health Awareness Month and we're starting with the small stuff, like spring flowers and the practice of writing it all down. Watch as Family Support & Research Director Genevie shares how her gratitude journal helps her on a daily basis!
Some days, the last thing you want to do is move. Erica, our Patient Empowerment Program Manager, knows that feeling. Her go-to mental health resets? Walking her dog and a good stretch (yes, even if that means rolling around on the floor). Spoiler: it always helps once you start.
What's your go-to? Let us know in the comments! ➡️
Whose memory are you carrying? Share their name in the comments and help their light reach someone new. 🕯️
Today we're launching our #ShareTheirLight campaign - a chance to honor the people we've lost to inherited arrhythmias and help build a future where fewer families face this kind of loss.
Every dollar raised goes toward better detection, better treatment, and better support for our entire community.
Donate or share your story at the link in our bio.
Because we carry them with us always, and this spring, we're sharing their light. ✨
🏷️ #ShareTheirLight #GriefAwareness #ChildLoss #BereavedParents #GriefSupport #LifeAfterLoss #RememberThem #GriefJourney
You don't need a reason to take time for yourself. 💙 It's Time for Yourself Tuesday! Listen to a podcast, do a quiet reset, or just do something you enjoy. And remember: taking care of your brain also is taking care of your heart ❤️
What does anxiety actually look like when you're living with an inherited arrhythmia — and what can you do about it? 💙 Join us for a free webinar with psychologist Dr. Katherine Cutitta as she shares practical strategies for managing anxiety around medical procedures and appointments. Plus a live Q&A.
🔗 Register at the link in our bio, or by commenting KATHERINE.
Living with an inherited arrhythmia affects more than your heart - it affects your whole life.
This week is Mental Health Week, and we have a week's worth of gentle prompts to help guide you. Follow along for a daily prompt, starting today with Mindfulness Monday. 💙
