☀️ Meet the Mission of Rays for Rare ☀️
There are over 8,000 rare diseases, including pediatric cancers, and countless families whose lives are forever changed by tragic accidents. Behind each diagnosis is a medically fragile child—a child who requires daily specialized care, therapies, and life-sustaining equipment like G-tubes, ventilators, and oxygen.
This is where Rays for Rare steps in.
We currently support over 200 families with practical, uplifting services, including:
💛 Inclusive Family Events to build community
💛 Practical Support - Lawn Care, House Cleaning & Snow Removal
💛 Support Groups & Local Resources
With more than 7,400 medically fragile children in our region, the need is real—and growing.
☀️ Together, we can be a light when skies are gray.
☀️ Learn more, volunteer, apply, or donate at
Your generosity brings comfort, connection, and joy to families who need it most. Thank you for shining with us.
#RaysForRare #LightWhenSkiesAreGray #SupportRare #MedicallyFragile #RareDiseaseAwareness #ShineOnAll #SunshineInTheStorm #FamilySupport
☀️ Happy Mother’s Day to every mom who loves fiercely and tirelessly.
To the mothers sitting bedside. The ones who learned medical terms they never wanted to know. Who schedule appointments instead of playdates, who advocate in rooms full of doctors, and who still find a way to make their child feel completely, wholly loved.
You are seen. You are valued. You are so deeply loved.
What you do goes far beyond motherhood — you are a caregiver, an advocate, a nurse, a researcher, a fighter, and a safe place all at once. Every single day.
Rays for Rare sees you — and we are in awe of you.
Happy Mother’s Day. You deserve the world. ☀️
☀️ THANK YOU, IDAHO.
We are so moved by the outpouring of love and generosity during Idaho Gives. Because of YOUR donations, Rays for Rare can continue showing up for medically fragile children and their families across our state.
Every dollar given is a child supported. Every contribution is a family that doesn’t have to face the hardest days alone.
We are beyond grateful — thank you for believing in our mission and for being the light these families need.
☀️ From the bottom of our hearts — thank you. ☀️
☀️ THANK YOU, TRESIDIO HOMES — from the bottom of our hearts.
Tresidio Homes just made a $25,000 donation to Rays for Rare during Idaho Gives — and we are overwhelmed with gratitude.
They believed in us before we were even officially a reality, and they’ve shown up for us every step since. That’s not just a donation — that’s a commitment to community. That’s Tresidio.
TODAY is the LAST DAY for Idaho Gives!
Every dollar you give today helps us show up for medically fragile children and their families across Idaho — with real, meaningful support. Here’s how your support helps:
• Community and family events
• Resources to surround our families with support
• Help with housekeeping, lawn care, and snow removal
• Emotional and practical support that makes a real difference
Over 7,400 children in our area live with rare diseases, are recovering from traumatic accidents, or require complex, specialized care every single day — often depending on feeding tubes, ventilators, oxygen, or other life-sustaining equipment.
Their families carry an extraordinary weight.
Rays for Rare walks alongside them.
☀️ Our Mission:
• Provide respite and family-centered support
• Connect families with vital community resources
• Advocate for pediatric palliative and hospice care
• Build collaborative partnerships that make a lasting impact
🔗 Donate today - link in bio
Let’s come together and finish strong for families who need it most. 💛
Help Local Medically Fragile Kids — Support Rays for Rare on Idaho Gives
Idaho Gives is here — Idaho’s largest giveback initiative — and Rays for Rare needs your help. Your gift stays right here in our state, directly supporting local families with medically fragile children by funding vital support, community, memory-making experiences and advocacy.
Every dollar makes a difference for neighbors who depend on us. Please give today and help these children shine brighter in our community.
Link in bio
🌸 Spring smiles, new friendships, and an event just for siblings!
A huge thank you to Travis and the S YMCA team for opening their doors and making our Spring Sibling Event such a special place to land — and to Coby’s for helping fuel the fun with lunch!
This day was designed just for the siblings of medically fragile children — the “glass children” who so often give quietly and carry more than anyone their age should have to. They are strong. They are compassionate. And they deserve an event that’s entirely theirs.
This spring, they found their people — laughing, connecting, and being reminded in every moment that they are seen, they are valued, and they are not alone.
#raysforrare #shineonall #uplifitngsupport #ymca
Tresidio Homes is hosting a Disc Golf Tournament on May 15th, 2026, and every dollar raised goes directly to supporting local medically fragile children and their families through Rays for Rare.
We are so grateful for every player, volunteer, and supporter who makes events like this possible. These kids and families are truly resilient, and it’s an honor to show up for them.
Grab your crew, hit the course, and help us make a real difference.
📅 May 15, 2026
🥏 Disc Golf Tournament
☀️ Benefiting Rays for Rare
Link in bio
#RaysForRare #DiscGolf #GiveBack #tresidio
☀️ Family Activity ☀️
We understand that having a medically fragile child is a journey for the entire family — and no family should walk that road alone. This was event was extra special as it was some of our children’s first time in a pool. We loved watching families make beautiful memories.
We are so grateful to the West YMCA for partnering with Rays for Rare and hosting this incredible private event. This family night out was a time of active fun, laughter, and genuine connection for these very special families. Thank you, Katie and the entire West YMCA team — you are absolutely amazing!
We are also deeply grateful to the Silver Sage Porsche Club for sponsoring ALL of our 2026 family events. Your generous support makes these moments possible, and it is a beautiful reminder of what community looks like in action. Shout out to Victor and his daughter for serving up some amazing tacos and quesadillas!
That is community. That is Rays for Rare. ☀️
#raysforrare #sunshine #shineonall #medicallyfragile
☀️ What an incredible morning with the Brunch Giving Ladies! ☀️
We were so honored to be welcomed into this amazing group to share the heart behind Rays for Rare — our mission of bringing uplifting support to medically fragile children and their families. From in-home services like housekeeping, lawn care, and snow removal to family events and advocacy, every ray of sunshine we share is made possible by generous people just like them.
Not only did these incredible women open their hearts to our mission — they opened their wallets too! 💛 Their generous donations and gifted wishlist items will go directly toward our upcoming family events, helping us create meaningful moments for the families who need it most.
We are so deeply grateful for this community of giving women. You have no idea how far your kindness will reach!
A very special thank you to Barb and Roxy for introducing us to this wonderful opportunity. Because of you, more medically fragile children and their families will feel the warmth of a community that cares. We are so thankful for you!
#RaysForRare #ShineOnAll #MedicallyFragile #RareDisease #BrunchGivingLadies CommunityLove Grateful UplifitingSupport MedicallyComplex
We’re officially opening up sponsorships to everyone for our 5th Annual Rays for Rare Golf Tournament ⛳️ And… we’re adding something new this year 🚁 Our first-ever helicopter golf ball drop! Hundreds of balls dropped and whichever # lands closest to the pin wins a $1,000 cash prize 🏆
June 5th at BanBury Golf Course
5 years of this tournament and it just keeps getting better!
Sponsorships + tickets are live ⬇️
onecau.se/golftournament26
