Project Pmm2

@projectpmm2

🧬 Building the Miracle ✨
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162
Following
80
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18.36%
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Weeks posts
Here’s what @projectpmm2 are focusing our fundraising efforts on 👆 🧬 CRISPR gene editing technology 🧬 ASO therapy 🧬 AAV9 therapy 💊 Drug repurposing 🧠 Organoid research You can donate via our website (found in the bio) and/ or simply share this post far and wide! . . . . . #buildingthemiracle #raredisease #genetherapy #organoids #nonprofitwork
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3 months ago
We are so excited about all the amazing research projects underway and beginning for the treatment and cure of PMM2-CDG and we know this stuff ain’t cheap! To turn our dreams into a reality, quite simply, we need funds. @projectpmm2 exists to fund these research projects, keep them going full steam ahead, and see their results rolled out to as many patients as possible, as quickly as possible. Become either a one time or ongoing supporter today by visiting our website ⬆️ 🔗 in bio. Follow @projectpmm2 Share our posts. Share our website. Donate whatever you can! . . . . . . . #projectpmm2 #medicalmom #pmm2cdg #congenitaldisordersofglycosylation #rareisstrong #rareismanyrareisstrongrareisproud #rareismany #raredisease #curepmm2 #buildingthemiracle #childreenshealth #healthequity #health #genetherapy #enzymereplacementtherapy #aso #antisenseoligonucleotide
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7 months ago
We at @projectpmm2 can’t believe that there are so many promising options out and yet still none of them are approved. Why? Honestly? Funding. Help us change that by making a donation of any amount. Details in bio. . . . . . #genetherapy #asotherapy #antisenseoligonucleotide #glycoscience #metabolicsyndrome
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13 days ago
We need your help to speed this thing up! 1️⃣ Make a donation of ANY amount via the link in our bio (either to our US or UK charity pages) 2️⃣ SHARE this video That’s it! We appreciate you 💪 . . . . . #pmm2cdg1a #genetherapy #healthequity #medicalmom #advocacymatters
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18 days ago
Hey everyone it’s been a while! We’ve been busy here at @projectpmm2 gathering funds to put behind new and exciting research, but we’re not done, and we need your help! Head to our website to make a donation today and be sure to save and share this post 👆 . . . . #pmm2cdg #genetherapy #antisenseoligonucleotide #rarediseases #disability
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20 days ago
Thank you 🥹😭 We’re still in awe of what we were able to accomplish together this weekend… $21,500+ for @projectpmm2 to support research and treatment for precious kids, like our main man Blaise, battling CDG! It was truly one for the books and wouldn’t have been possible without our hosts @movementfoundry + @fortefitness_nc Along with our generous sponsors🫶🏼: @marieandmarcele , @the_gentry_team @graciepineland @nutrishopsouthernpines @elenapottsrealtor @myspectrumeyes @cynthia.cabistylist & @littlepinesacademy We had an absolute blast tearing up the dance floor and shopping with our local vendors ~ Another big thank you goes our to @hisandhersmobilebarnc , @nomad_jax_haberdashery , @nutrishopsouthernpines , @marieandmarcele , @whatsernamestitchco , @stitchingbysallyshop , @foreverjules.jewelry & @merlot_beauty_bar and @pita_perfectsc for bringing so the energy & supporting @projectpmm2 ’s mission 💚 And an extra special thank you to @hollypopparty for turning @villagepinevenue into the cutest jungle there ever was! Same time next year???? 👀
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2 months ago
YOU did that, Moore County. $21,500+ dollars were raised last night at our annual DANCE*FIT FOR THE CURE event for the research and treatment of childhood rare diseases. An event record. Last night was truly one for the books and wouldn’t have been possible without our hosts @movementfoundry + @fortefitness_nc Aong with our generous sponsors🫶🏼: @marieandmarcele , @the_gentry_team @graciepineland @nutrishopsouthernpines @elenapottsrealtor @myspectrumeyes @cynthia.cabistylist & @littlepinesacademy We had an absolute blast tearing up the dance floor and shopping with our local vendors ~ Another big thank you goes our to @hisandhersmobilebarnc , @nomad_jax_haberdashery , @nutrishopsouthernpines , @marieandmarcele , @whatsernamestitchco , @stitchingbysallyshop , @foreverjules.jewelry & @merlot_beauty_bar and @pita_perfectsc for bringing so the energy & supporting @projectpmm2 ’s mission 💚 And an extra special thank you to @hollypopparty for turning @villagepinevenue into the cutest jungle there ever was! What a wild night!!! More to come, but until then… Thank you for spending your Friday evening with us. Thank you for taking care of and loving your community. Thank you for dancing with us #forthecure !!!
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2 months ago
A heartfelt thank you to @nutrishopsouthernpines for being a Silver Sponsor of this year’s Dance*FIT FOR THE CURE event!🪩🩶💍 Nutrishop has been a proud supporter of Dance*Fit For The Cure for years, and we are so grateful for their continued partnership. As a staple in our local wellness community, they are committed to helping individuals fuel their performance, recovery, and everyday health. This year, they’ll be popping up near the bar with supplements to help keep us energized and moving throughout the night. Their team understands that movement requires proper fuel and they consistently show up to support our community in tangible ways! 🎟️🔗: Tickets are still available for D*FFTC2026, happening TOMORROW at @villagepinevenue !! Visit our link in bio for to secure your spot on the dance floor and learn more about our mission.
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2 months ago
A heartfelt thank you to @gingerggentry and @the_gentry_team for being a Silver Sponsor of this year’s Dance*FIT FOR THE CURE event!🪩🩶💍 The Gentry Team played a pivotal role in helping Blaise’s family find a home that truly supports all of his needs. Guided by integrity, respect, and the golden rule, they approach every relationship with genuine care that extends far beyond the transaction itself. With deep roots in the Sandhills and a trusted network of local professionals, they create a seamless and personalized experience for every client. Their dedication isn’t just about buying and selling homes, it’s about guiding families into spaces where they can thrive. Thank you again for your generous support of research and treatment of childhood rare diseases. Your commitment to making a difference in our community is truly appreciated!💖 🎟️🔗: Tickets are still available for D*FFTC2026, happening TOMORROW at @villagepinevenue !! Visit our link in bio for to secure your spot on the dance floor and learn more about our mission.
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2 months ago
A heartfelt thank you to @cynthia.cabistylist for going WILD for Blaise and being a Silver Sponsor of this year’s Dance*FIT FOR THE CURE event!🪩🩶💍 Cynthia is not only a Forte regular, but a cabi stylist! She loves that her job allows her to work with amazing women, help them find the perfect personalized outfit, and feel their absolute best! Whether you are shopping for a work trip or a girls night out, Cynthia has you covered! Thank you again for your generous support of research and treatment of childhood rare diseases. Your commitment to making a difference in our community is truly appreciated!💖 🎟️🔗: Tickets are still available for D*FFTC2026, happening TOMORROW at @villagepinevenue !! Visit our link in bio for to secure your spot on the dance floor and learn more about our mission.
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2 months ago
A heartfelt thank you to Marie and Marcele Boutique for being a Gold Sponsor of this year’s Dance*FIT FOR THE CURE event!💛🏆🌟 @Marieandmarcele is a faith based women’s boutique owned by a mother daughter team, offering the latest trends at affordable price points! Marie and Marcele loves their customers and their community SO BIG and we love them right back! Still looking for the perfect outfit for this year’s theme - GO WILD FOR RARE?? Stop by Marie and Marcele’s in downtown Southern Pines!! Thank you again for your generous support of research and treatment of childhood rare diseases. Your commitment to making a difference in our community is truly appreciated!💖 🎟️🔗: Tickets are still available for D*FFTC2026, happening TOMORROW at @villagepinevenue !! Visit our link in bio for to secure your spot on the dance floor and learn more about our mission.
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2 months ago
Blaise has jokes🤭🤣 About a very SERIOUS matter that is time sensitive🚨‼️ There are only 3 VIP tickets left for D*FFTC happening THIS FRIDAY!!! There are plenty of spots still available on the dance floor for general admission but VIP tickets holders get first dibs and so many other amazing items included in their swag bags (over $120 value) Come Dance*Fit, shop, and party with us as we raise funds to support the research and treatment of Rare Childhood Diseases for Blaise and his friends 🫶🏼 It’s going to be one special night!!! VENDORS: 🥙🚚 Food Truck: @pita_perfectsc 💇🏼‍♀️💇🏽‍♀️Braid Bar: @merlot_beauty_bar 🏋️‍♀️💪🏼Pop-Up: @nutrishopsouthernpines ✨💍Permanent Jewelry: @foreverjules.jewelry 🥂🍹Drinks: @hisandhersmobilebarnc 🧢🦬Custom Hat Bar: @nomad_jax_haberdashery 🛍️✨Shop: @marieandmarcele 🧵🪡Embroidery: @whatsernamestitchco 🪀🪁Shop: Sandhills Toy Towers 📲 Purchase tickets, sponsorships, vendor spots, raffle tickets and MORE click the link in our bio!!
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2 months ago