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PCOS Awareness Association

@pcoscon

The PCOS CON conference hosted by @pcosaa ! 2026 dates coming soon. #pcos #pcoscon #togetherwecan #revealtheteal
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Polyendocrine Metabolic Ovarian Syndrome (PMOS) is the new name for the condition previously known as Polycystic Ovary Syndrome (PCOS) — a change that accurately reflects the condition, which affects 1 in 8 women, or more than 170 million worldwide. The changes follow 14 years of research and advocacy and the largest global engagement ever for a medical name change, with more than 22,000 survey responses, workshops with women who have lived experience, health professionals, and the involvement of 56 patient organizations and professional societies around the world, including PCOS Awareness Association. The term PCOS focused on “cysts” and ovaries, even though women don’t have cysts. PMOS is a long term endocrine/ hormonal and metabolic condition, and the misunderstanding has contributed to delayed diagnosis, poor quality of care and lack of research and funding. Women living with the condition led the call for change — and their voices matter 🩵 86% of patients and 76% of health professionals support the name change. The change to PMOS will improve understanding, awareness, earlier diagnosis, better care and more research. We recognise that this change will take time and there is a 3 year transition period where both names will co-exist together - the work doesn’t stop here! Link in bio or stories #PCOSnamechange #PMOS #PCOS #pcosaa
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4 days ago
PCOS isn't just about periods. 🌿 It affects your metabolism, your mental health, your fertility — and so much more. Yet so many people are still only hearing part of the story. That's why education matters. The more we understand PCOS in its full complexity, the better we can advocate for proper diagnosis, treatment, and support. Swipe through to see what PCOS really impacts 👉 — then follow and share so more people get the information they deserve. Know someone who needs to see this? Tag them below. ⬇️ #PCOSAwareness #PCOSEducation #HormoneHealth #PCOSLife #WomensHealthMatters
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7 days ago
Some conversations are hard to have… but necessary. 💛 PCOS impacts more than our hormones or our cycles. It impacts our mental health, our confidence, our relationships, and sometimes even how we see ourselves in the mirror. Too many people are silently carrying the weight of anxiety, depression, isolation, and feeling misunderstood while battling PCOS. That’s why stories matter. That’s why community matters. And that’s why voices like Cryssy’s matter. PCOS CON was created to remind people that they are not alone in this journey. It’s a space for truth, healing, education, vulnerability, and connection — because behind every diagnosis is a real person trying to navigate life the best they can. We’re also proud to partner with @crisistextline to remind our community that help is always available. If you are struggling and need support, text “PCOS” to 741741 to connect with a live, trained Crisis Counselor. 🩵 If this video resonates with you, know this: your feelings are valid, your journey matters, and there is still hope even on the hard days. Together, we can continue breaking the silence around PCOS and mental health. #PCOSAwareness #MentalHealthMatters #PCOSCon #CrisisTextLine #TogetherWeCan
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8 days ago
They told you it was “normal.” But deep down, you knew something wasn’t right. Too many people with PCOS are dismissed, misdiagnosed, or told to “wait it out” while their symptoms get louder. Painful periods. Sudden weight changes. Feeling like your body is working against you… none of that should be brushed off. Your body is speaking. You deserve to be heard. Learning the signs is the first step. Advocating for yourself is the next. And together, we’re changing the narrative—so no one has to question their reality again. Save this as a reminder: what you’re feeling matters. 💙 #PCOSAwareness #WomensHealthMatters #HormoneHealth #KnowYourBody #PCOSSupport
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8 days ago
Together, we can. 💚 When people with PCOS, their loved ones, and advocates come together — real change happens. We can educate. We can advocate. We can fund the research that leads to answers. Every share, every donation, every voice raised moves us closer to a world where no one waits years for a diagnosis or struggles to find the support they deserve. Swipe through and see what's possible when we stand together. 👉 Visit pcosaa.org to learn how you can get involved. #PCOSAwareness #TogetherWeCan #PCOSAdvocacy #PCOSCommunity #PCOSResearch
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17 days ago
Did you know up to 70–80% of people with PCOS experience unwanted hair growth? 🌿 It's called hirsutism — and it's not your fault. Elevated androgens (male hormones) that come with PCOS can trigger hair growth on the face, chin, chest, and abdomen. The good news? There are options to manage it, from laser hair removal and electrology to medications and at-home IPL devices. Swipe through to understand why it happens — and what you can do about it. 👉 Drop a 🙋 in the comments if this is something you've experienced. You're not alone. #PCOSAwareness #Hirsutism #PCOSSymptoms #PCOSCommunity #HormoneHealth
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18 days ago
Androgens. Testosterone. Hormones you’ve probably heard about—but may not fully understand. Here’s the truth: women have androgens too. But in PCOS, those levels can be higher than normal—leading to symptoms like acne, excess hair growth, thinning hair, and irregular cycles. And no… it’s not “just cosmetic.” It’s a sign of a deeper hormonal imbalance that deserves attention, care, and proper support. The more you understand what’s happening in your body, the more confidently you can advocate for your health. Because together, we can turn confusion into clarity… and take our power back. 💬 Did you know this about androgens? Let us know below. #PCOSAwareness #HormoneHealth #WomensHealthEducation #PCOSSupport #TogetherWeCan
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22 days ago
Your symptoms are real. Your frustration is valid. And you deserve to be heard. PCOS isn’t “just hormones.” It impacts your body, your mental health, and your everyday life in ways many people don’t fully understand. Acne. Hair loss. Infertility. Weight gain. These are not imagined—and you shouldn’t have to navigate them alone. That’s why we’ve created a space for you. A place to connect, share, learn, and feel supported by people who truly get it. Join our monthly virtual support groups and be part of a community that sees you, hears you, and stands with you. You don’t have to do this alone. 💙 #PCOSSupport #YouAreNotAlone #PCOSAwareness #WomensHealth #MentalHealthMatters
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24 days ago
PCOS affects 1 in 10… yet so many are still navigating it alone. Behind that number are real people—facing delayed diagnoses, misunderstood symptoms, and limited support. That’s exactly why we do this work. We’re actively pursuing grants and partnerships to change that—expanding access to education, resources, and care for those who need it most. Awareness is only the beginning. Action is what moves us forward. If this resonates with you, share this post. You never know who might need to see it today. 💙 #PCOSAwareness #WomensHealthMatters #EndTheSilence #PCOSSupport #HealthEquity
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25 days ago
Your cycle data has the power to reshape what medicine knows about menstruation — Stanford University and the Gladstone Institutes want to include you in the research that makes that possible. The STIGMA Study — Study of Typically Ignored Groups of Menstruating Adults — is a 12-month clinical research study in collaboration with Oura. The study is focused on understanding how the menstrual cycle shows up in biometric data when cycles are disrupted by PCOS, fibroids, endometriosis, fertility challenges, hormones, breastfeeding, athletics, or stress. We are recruiting Black, Brown, Indigenous, and LatinX adults who menstruate. People with PCOS, reproductive conditions, or disrupted cycles are especially encouraged to apply. People on hormones are welcome. No diagnosis required. What participation looks like: • Receive a donated Oura Ring with a 1-year paid subscription • Wear the ring daily, charge it every 4–5 days • Complete a brief weekly survey • Fill out a short daily survey on days you are menstruating or bleeding • Optional saliva sample for genotyping at month 3 • 12 months total | ~45 min screening | 10–20 min/week for surveys This is a voluntary research study. No cost to you. Participation does not guarantee personal medical benefit. Check eligibility: [email protected] Learn more about the study: stanfordgladstonebeehive.com/stigma 🔗 LINK IN BIO #STIGMAStudy #PCOSResearch #StanfordResearch #WomensHealth #PCOS
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27 days ago
PCOS affects millions… yet research funding still doesn’t match the impact. That gap? It’s the reason so many are left waiting years for answers, struggling to be heard, and navigating symptoms without clear solutions. Research funding isn’t just about science—it’s about people getting diagnosed sooner, treated better, and finally understood. At PCOS Awareness Association, we believe change starts with awareness—but it moves forward with action. Because together, we can push for answers. Together, we can drive progress. Together… we can change the future of PCOS. 💬 Share this to spread awareness 🔗 Learn more & get involved at pcosaa.org #PCOSAwareness #WomensHealthMatters #FundPCOSResearch #HormoneHealth #TogetherWeCan
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29 days ago
STOP suffering silently. PCOS is more than a diagnosis—it touches your hormones, your mental health, your confidence, your relationships… your life. Too many are navigating this journey alone, feeling unheard, unseen, and overwhelmed. But here’s the truth: you are not alone—and you were never meant to do this alone. This is your moment to be informed. To be supported. To take control. Join us. Learn more. Connect with a community that understands you. 💙 Register today — link in bio. Together, we can… change the narrative. #PCOSAwareness #WomensHealthMatters #PCOSSupport #HormoneHealth #YouAreNotAlone
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1 month ago