Exhibitions at #indianphotofest2022 - one, one thousand… by Debe Arlook // USA
Venue - State Art Gallery, Hyderabad
Date - 18 Nov - 19 Dec 2022/ 11 AM - 6 PM
I’m thrilled to be a part of the Indian Photo Festival this year and super excited to have 20 prints on view at the event!
“I suppose you have received many letters from desperate mothers. Here is mine.” My sister wrote these words to a neurologist in 1997 when my nephew was two years old.
one, one thousand… is a love story and an unconventional documentary exposing the impact a rare and incurable form of epilepsy, Lennox-Gastaut Syndrome, has on a mother and son's experience of life-long care. This is a family caregiver’s story of devotion and perseverance.
At 28, David is non-verbal, experiences daily seizures, has scoliosis, severe autism and requires 24-hour care. After years of pursuing conventional approaches to stop my nephew’s seizures, Lori turned to nonconventional healers, working in energetic and mystical realms.
When I asked David’s permission to make this project, I did not know if he would respond because of his minimal communication. In a rare and astonishing gesture, he leaned toward me with sustained eye contact. I got my yes. David would allow me to enter his vulnerable world.
Check the link in bio for more details.
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#epilepsy #familycaregivers #lennoxgastautsyndrome
