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Lupus Foundation of America

@lupusorg

The latest news, resources and opportunities for those with lupus and their friends and families.
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#MakeLupusVisible this May for #LupusAwarenessMonth! πŸ’œ While many symptoms of #lupus aren’t visible, the impact is real. Join us as we raise awareness for the millions living with this cruel disease. Help us reach our $2,500 Instagram fundraising goal. Your donations will improve the quality of life for people with lupus through research, education, and support programs.Β  Drop a πŸ’œ in the comments to show your support!
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17 days ago
πŸ’œ Getting the most out of your doctor visits when you have #lupus isn't always easy β€” but our free SELF app was built to help. Hear from lupus warriors using SELF to communicate with their care team and feel more in control of their health. Download the SELF app today at Lupus.org/SELF (LINK IN BIO). #LupusAwarenessMonth
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23 minutes ago
90% of people living with lupus are women. So I asked some important women in my life what they knew about this disease β€” and they walked away learning a little more (thanks yallπŸ’œ) Now I’d love for you to try the quiz too: /knowlupus #LupusAwarenessMonth Produced by: @gregmathisjr
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5 hours ago
πŸ’œ Millions of people are living with #lupus β€” and every story deserves to be heard. This #LupusAwarenessMonth, we want to hear yours. Whether you're a lupus warrior or a caregiver, your experience has the power to bring our community closer together. Click the link in our bio to share your story.
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1 day ago
πŸ’œ We're halfway through #LupusAwarenessMonth and there's still time to make #lupus viisble. Whether you're just joining us or looking for more ways to get involved, we've rounded up everything you need to learn about lupus, spread awareness with the #KnowLupus Quiz, and take action all in one place. Click the link in our bio to read the blog!
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1 day ago
πŸ’œ From every corner of the globe, the #lupus community showed up on #WorldLupusDay β€” putting on purple, lighting up landmarks, and making sure the world knew what it means to live with lupus. See how lupus warriors, family, and friends everywhere helped #MakeLupusVisible. #LupusAwarenessMonth
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2 days ago
Lupus advocates are the engine behind everything we do. Through their voices, we've generated more than $262 million in federal funding for #lupus research and education β€” and that's just the beginning. You don't need a background in policy to make a difference. All you need is your voice and a commitment to change. Click the link in bio to join the fight. #LupusAwarenessMonth
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2 days ago
πŸ’œ For many people with #lupus, the butterfly rash is more than a symptom β€” it's something deeply personal. Swipe to hear how it has impacted the lives of those living with lupus. The butterfly rash, or malar rash, appears on the cheeks and bridge of the nose and occurs in around 30% of people with SLE. Click the link in our bio to learn more about lupus and the skin. #LupusAwarenessMonth
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2 days ago
πŸ’œ Meet @miss.samantha.richardson . When she was seven, her mom had to help her out of bed every morning. For two years, doctors couldn't figure out what was wrong β€” misdiagnoses, knee braces, monthly appointments β€” until a #lupus diagnosis finally gave her answers and a path forward. Now a lupus advocate and Miss Potomac's Teen (@misspotomacsteenmd ) 2026, Samantha is sharing her story with one ask: take the #KnowLupus Quiz and pass it along to your friends and family. The more people who know the signs, the sooner someone else gets the answers they deserve. Take the quiz at Lupus.org/KnowLupus. #LupusAwarenessMonth
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2 days ago
Game On! To End Lupus is in full swing! πŸ’œ Content creators from around the world are using their platforms to help end #lupus, and in just two weeks, 200 streamers have already raised over $150,000 for lupus research, education, and support programs. Whether you play video games, make music, craft, or get creative in your own way β€” you can join them all month long. Every stream raises awareness, fundraises, and rallies support for the lupus community. Register today at Lupus.org/GOTEL (*LINK IN BIO*). #GOTEL
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3 days ago
#FactFriday πŸ’œ No two cases of #lupus look the same β€” and neither do treatment plans. Managing lupus often means finding the right combination of medications and lifestyle changes that work for you. Click the link in our bio to learn more about treating lupus. Reshare this post to help raise awareness! #LupusAwarenessMonth
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3 days ago
Join us on May 20 as our speakers walk through what Phase III #clinicaltrials and FDA Fast Track therapies mean for people living with #lupus β€” including real patient stories, current #lupusresearch opportunities you can be part of, and how today's clinical trials are shaping the future of lupus care. Click the link in our bio to register today and submit your questions for the live Q&A.
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3 days ago