Never been to California? Think it’s just LA and SF? Oh contraire!! Went to Lake Tahoe- Eastern Sierras - in the Steely Van (listening to Steely Dan). It is no joke to say you can drive from the City to the desert, to the mountains from 90 to 40 degrees and then ski in the afternoon……and from calm to “blowy” all in a day as witnessed by Vic’s imitation of a blow up advertisement. 🤣🙃☀️🏝️🏔️
Organizing and facing some things that I have avoided. Gorgeous pics, some by my cousin @taryndudleyphoto . Sympathy card from Jerie, one of Cams studio teachers that speaks to Cams essence.
The American Academy of Neurology is updating their Sudden Unexpected Death in Epilepsy (SUDEP) Practice Guidelines.
Please join us in commenting during the open public comment period until May 12, 2026.
/practice/guidelines-measures-open-for-public-comment
The Mark Shaparin Foundation is committed to #EndTheSUDEPsecret and ensure that all neurologists and epileptologists #TalkAboutSUDEPeveryVisit
Learn more and support our life saving work at
#SUDEP
#SUDEPAwareness
#markshouldstillbehere
@aanbrain
My Cameron is extra present in my mind today.💜. He was my sunniest bunniest boy. Shout out to my dad who was the Connecticut Contemporaries architect. Cam always repped his fam. No one loved his people more than Cam. Forever my sun bun boy. My puppy. My boo.
It’s so important to know the difference between a neurologist and an epileptologist. To find an epileptologist please visit our website, and look under our level 4 centers. #epilepsy #epilespyawareness
My Vicki left this world last night. I love you deeply and will miss you beyond words. You were the most selfless person I have ever known. You meant so much to my family and in particular, my kids. Auntie Vicki 4ever.💙💜♥️💕
We had such an amazing time at the @epilepsylosangeles walk!! Thank you so much for honoring Cameron’s legacy and bringing together an amazing community of epilepsy advocates. We can’t wait to be back next year 👏💜
NYC/CT 2026
Pics:
1. My Connecticut (CT) college gals.
2. My Branford CT girls (plus Deb and Leah).
3. Mom & Dad.
4. Aunt Nina (95 and going strong).
5. Nina and Leah.
6. My grandmothers lamp. Put a penny in dogs mouth- jumps the hoop and into barrel. Fascinated me as a child!
7. Brother, sis-in law, niece and gang at play.
8. Data - excellent and a must see!
9. The formidable Karan B!
10. Chelsea Hotel lobby.
11. Model of NYC and all boroughs.
12. Ellis Island where all my immigrant ancestors entered the Americas.
13. 911 Memorial.
14. JFK - uh oh.
15. Finally leaving JFK after 3 days!
16. & 17. Home🏡
Saw @chrismunchcomedy last night in Burbank. He is so funny and his characters are all people we have experienced in our life one way or another. It is clean comedy, and your tummy will hurt from laughing. He is on tour, so if you get a chance, check him out.