Going us on LinkedIn this evening let’s talk about Sickle cell.
“In Africa, SCD is prevalent, affecting about 1 in 12 people. Worldwide, millions of individuals are born with the disease each year. Awareness and education are critical to reducing the stigma and ensuring access to proper care and treatment.”
#sicklecellawareness #sicklecelldisease
ITS SICKLECELL AWARENESS MONTH THIS SEPTEMBER # RED♥️MONTH ❤️# DO YOU KNOW YOUR GENOTYPE OR THAT OF YOUR PARTNER? KNOWING YOUR GENOTYPE BEFORE YOU PROPOSE OR ACCEPT PROPOSAL .
It baffles me why people always do the first thing last in a relationship 🤔
GENOTYPE is the constitution of every individual. It's the genes or traits one inherits from both parents.
IMPORTANCE OF KNOWING YOUR GENOTYPE
Knowing your genotype before choosing a life partner is important because there may be compatibility issues, which could be devastating effects when it comes to conception.
TYPES OF GENOTYPE
AA AC AS SC SS SD THALASSEMIA
GENOTYPE COMPATIBILITY
AA to all types - compatible
AS to AS - not compatible seek counseling
AS to AC - seek counseling
AS to SC - not compatible seek counseling
SS to SS or SC - not compatible
SC to SC - not compatible
AC to SC - seek counseling
LABORATORY TEST TO DO
Screen for genetic conditions.
The test is done to detect your genotype.
HB Electrophoresis
EFFECTS OF KNOWING YOUR GENOTYPE
POSITIVE: Prevents you from making a bad choice.
NEGATIVE: Bringing offspring who carry the sickle cell genes and could become life threatening.
Complications of SickleCell.
IGNORANCE/INDIFFERENCE
People fall in love, and to them, love is all that matters without asking the necessary questions about the future.
CONCLUSION
Although SickleCell disease is a life threatening, it is manageable and needs special attention.
It's drains you financially and affects you psychologically and physically, causing stress.
It takes away your time because of availability. You have to be by your childs or spouse side most often.
As you choose a life partner know his/her genotype before you say I do from the start of the relationship before its too late so you don't have to suffer for the consequences of the bad choices you made .
Purple Nurse 💜
SickleCellAwarenessMonth……..,Strength, resilience, and red—together we fight Sickle Cell this month and every day.💪🔴 proud volunteer for @letscreateorg #Resilient#Rentless#Red
#warriorblood
It's sickle cell awareness month.
A September for us to remember every warrior winning day by day.
I am a #sicklecell #warrior , and I am #winning every day!
To warriors like me out there. Let's continue winning 1 day at a time!!!
@letscreateorg #sicklecellawareness #sicklecellawarenessmonth #sicklecellmatters #onsicklecell
📣 Save the date! I'm honored to be a guest speaker on X with Host Elpis Uganda in their X-SPACE this Thursday!
🎙️Join me, Memej99- SCD & Pain Patient Advocate and Social Media Community Manager of @dhealthhub and SM Manager for @sicklecellmidwest , and Ronah Ainembabazi @ignitewithaine1 , founder of Tukule Foundation and Mental Health Advocate, for "Mind Matters: Navigating Mental Health Challenges in Relationships".
🎯 JOIN US on 𝐗!
🗓 Thursday, March 7th, 2024
⏰ 10 AM CST | 7 PM EAT
🔗 Set your Reminder: /i/spaces/1gqxvQRzXmeJB
📝 Gain practical tips on supporting loved ones and building healthier relationships. We can't wait to see you there!❤️👋🏿
#MindMatters #MentalHealth #ElpisUganda #XSpaces #Twitter #Support #MentalHealthMatters #HealthyRelationships #MentalHealthAdvocates
#THEsicklecelllifeofmemej
🤝 Join us tomorrow at 1PM CST for our Community Check-In support call dedicated to Sickle Cell patients and Caregivers.
🦓 We'll be discussing Rare Disease Week, sharing insights from one of our Warriors who traveled to DC for Rare Disease Week, advocating for change.
🗣️ Learn about RDW2024, and discuss what it means to live with a rare disease. Register now at [bit.ly/3Sxur0J] to be part of this empowering conversation!
#SickleCellMidwest
#RareDiseaseWeek #SickleCellWarriors
#SickleCellSupport
I am a proud volunteer for @letscreateorg .Let’s Create Together Foundation is a non-profit organization that aims to support children with sickle cell disease in Africa and educate them about the condition.
This includes not only medical care, but also educational support and social and emotional support. The foundation has a strong network of partnerships with local hospitals and clinics, as well as with schools and other community organizations, which helps to ensure that children with sickle cell disease receive the support they need.
On behalf of @letscreateorg Myself and some other volunteers made a donation to THE POTTER’S VILLAGE on the 15th of December.
The Potter’s Village (POVI) is a non-profit, nongovernmental organisation founded in May 2000, by Dr.
Mrs. Jane Irina Adu with the aim of providing care and support to women and children suffering from domestic violence and abuse. The organisation, previously known as Women’s Refuge & Child Survival Africa (WORCSA), was established as a shelter and refuge centre in Ghana for battered women and abused children, many of whom have a bleak future and need love, care, and protection in order to live fulfilled lives.
My heart melted upon seeing the smiles on the faces of the kids
#togetherwesavelives #togetherwerise #togetherweachievemore #letscreatetogether #thegiftthatkeepsgiving #givingback #theseasonofgiving
On behalf of @letscreateorg Myself and some other volunteers made a donation to THE POTTER’S VILLAGE on the 15th of December.
The Potter’s Village (POVI) is a non-profit, non- governmental organisation founded in May 2000, by Dr. Mrs. Jane Irina Adu with the aim of providing care and support to women and children suffering from domestic violence and abuse. The organisation, previously known as Women’s Refuge & Child Survival Africa (WORCSA), was established as a shelter and refuge centre in Ghana for battered women and abused children, many of whom have a bleak future and need love, care, and protection in order to live fulfilled lives.
My heart melted upon seeing the smiles on the faces of the kids .
#togetherwesavelives #togetherwerise #togetherweachievemore #letscreatetogether #giving #bekind
Jubilare Chorale in collaboration with Let's Create Together Foundation @letscreateorg , is making a difference at the Potter's Village orphanage @letscreateorg
Join us in our mission to bring joy and healthcare support to these wonderful children, especially those battling sickle cell.
Your support matters! ❤️
#JubilareCares #LetsCreateTogether #supportforsicklecell
![Join us tomorrow at 1PM CST for our Community Check-In support call dedicated to Sickle Cell patients and Caregivers. We'll be discussing Rare Disease Week, sharing insights from one of our Warriors who traveled to DC for Rare Disease Week, advocating for change. ️ Learn about RDW2024, and discuss what it means to live with a rare disease. Register now at [bit.ly/3Sxur0J] to be part of this empowering conversation!#SickleCellMidwest#RareDiseaseWeek #SickleCellWarriors#SickleCellSupport](https://sp1.picnob.com/p/pt_25114025711123232340691271402311401271266561_0_3fcb069f603b55a083e003a46f768198.jpg?o=aHR0cHM6Ly9zY29udGVudC1vcmQ1LTMuY2RuaW5zdGFncmFtLmNvbS92L3QzOS4zMDgwOC02LzQ4MTcwODc1N185NTE5MTQ4NDA0NjA0NjJfMTA3NDAwOTQwMzc0MTg1MzIwNV9uLmpwZz9zdHA9ZHN0LWpwZ19lMzVfdHQ2Jl9uY19jYXQ9MTEwJmlnX2NhY2hlX2tleT1Nek14TkRVNU16WTJNVGN3TlRBMk1qUTBPUSUzRCUzRC4zLWNjYjctNSZjY2I9Ny01Jl9uY19zaWQ9NThjZGFkJmVmZz1leUoyWlc1amIyUmxYM1JoWnlJNklrWkZSVVF1ZUhCcFpITXVOelk0TG5Oa2NpNXlaV2QxYkdGeVgzQm9iM1J2TGtNekluMCUzRCZfbmNfb2hjPWE2YS1BT21oTllrUTdrTnZ3R3hjQkJsJl9uY19vYz1BZHFNakxuaGxMbF9FLUZlbHdYRThHbXhvcXRZUkJPY2RlcC1lbjJfRTlKeU1oVlBHLXBmSnRPV043cUF4bzRSWDBGbVRaVk85ZlA5M3dsQ1VjMUhpblExJl9uY19hZD16LW0mX25jX2NpZD0wJl9uY196dD0yMyZfbmNfaHQ9c2NvbnRlbnQtb3JkNS0zLmNkbmluc3RhZ3JhbS5jb20mX25jX2dpZD1zeHY1VTQ3NHg0SlJaYmU3VDh6bjNRJl9uY19zcz03YTIyZSZvaD0wMF9BZjRqc2JoNkVaaklzb0JBWjV0Q1NrMlB5N29HbXZSQzJfbVVVZUw4XzltaHVBJm9lPTZBMEYwOTA3&h=20345be7cd835265989cdda3bb6e60ed)
