I cannot believe it has been a whole year since having my beautiful baby girls. They have been through so much. There will never be enough words to describe just how incredible they actually are. My tiny little super humans. The strongest, most resilient little fighters I’ve ever known. You inspire me and every single person that ever meets you both . One whole year old today what a mile stone to reach . I read this poem a little while ago by Emily Perl Kingsley “welcome to Holland” and I think this sums up their journey so beautifully. Happy Birthday my Ocean and Story you are my whole heart and soul I love you more than you will ever know 🤍🤍
Adapted from “Welcome to Holland” by Emily Perl Kingsley.
Original work by Emily Perl Kingsley.
I wanted to update you all on something very close to my heart…
SMA screening is now set to start earlier, from October 2026 instead of 2027 which is such a huge step forward for early diagnosis and the SMA community.
It’ll be rolled out in selected areas first, so while this is real progress there’s still so much more to do. We need to keep pushing to make sure every baby has the opportunity to have this heel prick test at birth.
Also… the petition YOU all supported has reached the stage for a parliamentary debate which means even more awareness where it matters most.
I truly am grateful for all your support not only for me & my girls, but for everyone in the SMA community… We’re getting closer 🤍
Love you all x
This means more than I can explain. PLEASE take time out and watch this 🙏🏻
If you listen to one thing today, let it be this.
Sharing something deeply personal and important please take some time to watch and share if you can 🙏🏻
Such a special day for the most special little girls 🥹 I’m so lucky I get to be your Muma. Happy 1st birthday my Ocean and Story bear. I love you more than you will ever know 🤍🤍
