New research by the IOCDF offers startling findings: 95% of Americans living with OCD are not receiving the care most likely to help them reclaim their lives.
OCD is a common and serious mental health condition marked by intrusive thoughts and repetitive behaviors that can disrupt work, school, relationships, and everyday routines. Symptoms may involve fears related to contamination, safety, morality, religion, sexuality, or harm. Without appropriate treatment, OCD can severely diminish quality of life — yet many people struggle for years without answers or support.
Our study shows that the work of the International OCD Foundation is critical. We must raise accurate awareness, provide effective clinical training, and advance research on OCD and related disorders in order to connect millions of people with the care they deserve.
Read our new White Paper, America’s OCD Care Crisis: National Findings on the Failure of Effective OCD Treatment to Reach Patients, to learn more and find out what you can do to help.
The International OCD Foundation is deeply grateful to Aly Raisman (IOCDF Ambassador), Zane Gonzalez (2025 Illumination Award Winner), and Scheana Shay (2024 Illumination Award Winner) for using their platforms to speak openly about living with OCD. As a result, they’re breaking stigma, shifting the narrative, and helping millions feel seen and understood. We are inspired and thankful for their commitment to making sure no one feels alone in their struggle. Their courage reminds us that when voices rise together, understanding grows, and hope follows.
It’s OCD Awareness Week, and I’m proud to stand #TogetherAgainstOCD with the @IOCDF . The more I talk about my experience with OCD, I find that so many people can relate. I didn’t realize how many people have OCD symptoms or know someone who has struggled with it. This has helped me to feel less alone & more open about what I’m experiencing.
Only about 30% of people can correctly identify OCD. That means most people don’t really understand what it is or how deeply it can affect someone’s life. For many, OCD feels invisible, exhausting, and isolating. You don’t have to struggle alone or in silence.
#TogetherAgainstOCD is about changing the stigma & uplifting one another. It’s about raising awareness, building community, and making sure no one has to face OCD alone. Join us this week by sharing your story (if you’re comfortable & ready), participating in events, and using #TogetherAgainstOCD and #OCDWeek. Change starts with understanding, and that starts with all of us. No one should have to go through this alone. There is support out there. So please, don’t give up until you find that support system you deserve!
Mental Health Awareness Month is about making space for honest conversations about mental health.
Obsessive compulsive disorder (OCD) is often misunderstood or reduced to stereotypes about being neat or organized. In reality, OCD involves intrusive thoughts and compulsive behaviors that can significantly impact daily life.
Reducing stigma starts with better information and more open conversations.
Efforts across the OCD community include training clinicians in evidence based treatment, supporting research, creating spaces for connection like the OCD Walk and OCD Conference, and sharing resources to help people find care.
Organizations like @thebusyheadproject and @iocdf are working to make those conversations easier to start and to connect people with the support they deserve.
Learn more about OCD and available resources 👉
Learn more about The Busyhead Project, Noah Kahan’s initiative focused on reducing stigma and increasing access to mental health resources 👉
Families play an important role in the OCD and related disorders community! 💚
This International Day of Families, we want to recognize the parents, caregivers, siblings, partners, children, and loved ones who show up every day with compassion, patience, and support. Whether you are helping someone access treatment, learning alongside them, or simply reminding them they are not alone, your support matters.
At the IOCDF, we are committed to providing resources and community for families navigating OCD and related disorders.
Here are a few ways families can connect with support:
💚 Explore family and youth resources at iocdf.org/families (link in bio)
💚 Attend family-focused sessions and tracks at #OCDCon
💚 Checking out the Supporting Our Families Livestream on the 3rd Thursday of every month at 7pm ET! kids.iocdf.org/supporting-our-families-livestream
💚 Checking out our kids site at kids.iocdf.org
This week is Hoarding Disorder Awareness Week!
We’re helping break down common misconceptions about hoarding disorder and related terms.
While clutter, collecting, and squalor may look similar on the surface, they each have important differences. Understanding these distinctions can help reduce stigma and encourage compassionate, evidence-based support for those impacted by hoarding disorder.
Learn more at hoarding.iocdf.org (link in bio)💙
Early bird pricing for the 31st Annual OCD Conference ends soon! 🦜🎉 Early bird pricing ends Sunday, May 24, 2026.
Join us July 9-12, 2026 in Seattle or virtually for four days of learning, connection, and community with people who understand OCD and related disorders.
Register now for #OCDCon and learn more about pricing and scholarship opportunities at iocdf.org/ocdcon (link in bio)
Today is National Mental Health Provider Appreciation Day 💚
If you're a mental health provider, we want to take a moment to recognize and thank you for the vital work you do. We’re grateful to have you as part of the IOCDF community and for your ongoing commitment to providing effective care for individuals impacted by OCD and related disorders.
If a mental health provider has made a difference in your life, we invite you to honor them with a gift to the Training Institute Scholarship Fund. Your support helps expand access to evidence-based treatment and ensures more people can get the care they deserve.
Mental health professionals change lives every day, yet millions of people with OCD still struggle to access effective care. In the IOCDF’s white paper, America’s OCD Care Crisis, we found that 95% of people with OCD in the U.S. do not receive the most effective treatment. That is why the IOCDF Training Institute is committed to equipping more providers with the skills they need to effectively treat OCD and related disorders.
Learn more and support the fund at https://bit.ly/3RBzLmQ (link in bio)
Only 3 days until OCD Therapy in an Uncertain World: Advocacy, Ethical Practice, and Burnout Prevention begins.
This two-day virtual program is designed to support OCD clinicians navigating the complex realities of modern practice. Featuring leading voices in OCD treatment, sessions will focus on protecting treatment integrity, navigating institutional barriers, preventing burnout, and sustaining yourself in the work long term.
Whether you are early in your career or a seasoned clinician, this program offers practical tools, ethical guidance, and meaningful conversations to help strengthen your work and support your wellbeing.
👉 Virtual event
👉 Begins Thursday, May 14
👉 9 CEs
Visit events.iocdf.org/event/SummitSpring26 (link in bio) for more information and to register.
Happy Mother’s Day to all the moms, parents, and caregivers in our community. 💙
Parenting can bring joy, love, and meaningful moments, but it can also come with stress, uncertainty, and challenges. If you are navigating OCD or supporting a child or loved one with OCD, you are not alone.
Support, education, and community can make a big difference for families. Explore resources for parents and caregivers 👉 (link in bio)
I had a blast at the @iocdf 2026 Boston OCD walk!! From meeting @alyraisman to getting to meet so many fellow OCD advocates and warriors, it was such a fun experience. Thank you to the amazing OCD community for coming together to raise awareness for such a needed cause! I loved getting to meet many of you all and hope to be back next year!
