Amy Corfeli

Just a friendly reminder to avoid misconceptions ❤ I'm not a medical or mental health professional, I'm just a patient sharing as I learn.

🎤Podcast alert! My podcast “In Sixteen Years of Endometriosis” has 2 types of episodes: 1️⃣Chats between me and Brittany, 2 best friends that pride ourselves on sharing accurate, well-researched information in a fun, digestible way. Hang out with us while we delve into embarrassing “did-that-really-just-happen?!” endo stories and talk vulnerably about our personal growth. Some of our favorite episodes are the later ones – we really love how our knowledge, and also we, have grown over time! 2️⃣Interviews with excision surgeons, subject experts, and endo advocates worldwide! Thank you to all of the wonderful people who generously gave their time and knowledge to participate. 👉I’m really proud to say that I went through my episodes in 2023 and updated the first 90 episodes to make sure they have accurate info in them! 🎧If you are a fan of my podcast, thank you for listening! 🔗link in my bio! . . . [Image description: This reel highlights several episodes of Amy’s podcast, which is called “In Sixteen Years of Endometriosis” . . . . #EndometriosisDiet #EndoJourney #EndoLife #Zoladex #Endometriosis

❓️How do you describe endo to others? . . . This is a repost of mine from 2022 with a few updates.

Let's give some love to these brave souls who shared their knowledge about endo with a stranger in a bar! I was surprised at how little people know about endometriosis. I knew public awareness was low, but I didn’t imagine it was so low. Several people who declined being recorded told me that they’d never ever heard of the disease. No wonder why it’s so difficult to be taken seriously and believed when people have never even heard of our disease, in spite of the fact that it incapacitates millions.

And the best part is that this doctor says they are an endometriosis specialist. Prescribing a medication marketed for endometriosis, without ANY discussion of the side effects after being told that the patient had serious, life-threatening thoughts, is a 🚩🚩🚩 that you are NOT an endometriosis specialist. This is a true story I heard on Wednesday from a patient. And I am flabbergasted. Like I know care out there is bad, but this feels like a new low to me.

SOUND ON! 🔊Amy speaks with Jade Walker @byjadewalker about SIBO (Small Intestinal Bacterial Overgrowth) 🎤how SIBO is an umbrella term for multiple bacterial overgrowths 🎤what causes it and why it’s a common co-condition with endometriosis 🎤different ways of treating and managing it ☀️WHO IS JADE WALKER?☀️ Jade Walker is a degree-qualified naturopath and educator known for her work in complex endometriosis, gut health, and hormone conditions. With eight years of clinical experience, and a personal journey with endo, Jade has a passion for uncovering overlooked drivers of chronic symptoms, particularly the intersection between the microbiome, inflammation, and hormonal dysfunction. She is the founder of the course The Endo Care Collective and online clinic EndoBiome, where she leads a team of practitioners delivering evidence-informed, microbiome-focused care for people navigating persistent and often misunderstood health issues. ☀️HOW TO LISTEN☀️ Use a podcast app to find my podcast: In Sixteen Years of Endometriosis Spotify and Apple link in bio of @in16yearsofendo Need help finding it? Ask and I’ll send you the link! . . . ⚠️The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. . . . [IMAGE DESCRIPTION: Announcing a new episode in my endo podcast called SIBO (Small Intestinal Bacterial Overgrowth) with naturopath Jade Walker]

➡️Of course these are based on my own experiences, which are not true for everyone. Endometriosis can change your relationship with time.❓Does this resonate with you?

SOUND ON! 🔊Amy speaks with Dr. Lora Liu @drliu_endometriosis_surgeon about excision surgery. She explains to us: 🎤Tips for asking your surgeon about their multidisciplinary surgical team. 🎤How she decides when to operate on a patient. 🎤Some of the risks vs benefits of excision, especially bowel surgery. ☀️WHO IS DR. LORA LIU?☀️ Dr. Lora Liu is an excision surgeon who became interested in surgery as a teenager watching her father, Dr. CY Liu, operate. Dr Liu is a trainer and proctor in the use of robotic surgery. She firmly believes in multidisciplinary care. She has multidisciplinary surgical team in the OR with her and also has working relationships with multiple specialists like physiatrists, pain management specialists, and pelvic floor physical therapists to help guide patients with post surgery care. ☀️HOW TO LISTEN☀️ Use a podcast app to find my podcast: In Sixteen Years of Endometriosis Spotify and Apple link in bio of @in16yearsofendo Need help finding it? Ask and I’ll send you the link! . . . ⚠️The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. . . . [IMAGE DESCRIPTION: Announcing a new episode in my endo podcast called Lesser Talked About Aspects of Endometriosis Surgery with Dr. Lora Liu]

Even though I’ve seen endo devastate my career, fertility, bodily functions, relationships, and more, I still wonder sometimes if I'm making up my pain. That's how deeply medical gaslighting can affect a person. Even though I've had 3 surgeries for endo, scars on my abdomen, a missing ovary, and a pathology report confirming my disease, I still wonder sometimes if it’s all in my head. Even though I have a divorce, medical debt, no children, a strict diet (all because of endo).... I still wonder sometimes if it’s as bad as I say it is. For this self-doubt, I blame all the doctors, loved ones, bosses, teachers, and strangers who told me that I was exaggerating my pain. I know it’s real, but every once in a while I’m like, oh jeesh, is this real?! Do you have moments when you doubt your pain or that what you’re experiencing is real?

Endometriosis is not the endometrium. It’s not enough to know that the 2 tissues aren’t the same. It’s vital to understand THEY ACT DIFFERENTLY in the body! The hormone receptors in endo lesions and their level/activity vary from the endometrium and even among endo lesions within the same person! Endometriosis doesn’t bleed and shed like a period because it’s NOT the endometrium and does NOT act like it. Endo does NOT respond to hormones in the predictable way that the endometrium does. Endo can still progress on them, and they don’t dry up endo. Endometriosis can have progesterone resistance, meaning that the cells don’t respond to progesterone like they normally would. Medical menopause is to manage SYMPTOMS only. Did you know that endo can make its own estrogen? Hysterectomy is NOT a definitive treatment for endo, yet many doctors remove the uterus because they are misinformed that endo is from retrograde menstruation.

Let's keep making noise about this disease all throughout March and every single day. What do you wish society knew about endometriosis?

📖Join us in celebrating the launch of my newest book about endo! The Spanish version is live! English version coming in June or July. 🇲🇽If you speak Spanish, check out the book launch with the 4 of us on my page @endo.en.lo.profundo Where to find our book? Currently it’s on Amazon and we are working to put it in more stores in the future. 📱For the e-book: it's not necessary to own a kindle to read the e-book. You can download the kindle app on your phone! 💸For Endometriosis month in March, we've lowered the price of the e-book to $6.99, and will raise it to its standard price of $9.99 in April.