Plasma can be used to create immunoglobulin (Ig) therapy which is one of the most important and successful therapies for people with primary immunodeficiencies (PI). The therapy is both lifesaving and often lifelong, and it plays a vital role in the lives of many people with PI. Share this post to educate others about the importance of plasma! #plasma #raredisease #immunocompromised
We’re both excited and honored to premiere our first documentary “Compromised: life without immunity” at this year’s PI Conference. Witness the impossible decisions faced by those living with primary immunodeficiency (PI) disorders along with the resilience, hope, and determination of the PI community. Click the link in our bio to register now!
#immunocompromised #primaryimmunodeficiency #raredisease #invisibleillness #chronicillness
☀️⛱️ Are you planning to travel this summer? Here are a few important things to keep in mind! To read more about how to prepare for your vacation visit our bio!
The Spring 2026 IDF ADVOCATE is here! 🌷
This issue dives into critical topics for the #PrimaryImmunodeficiency (PI) community:
- Appealing healthcare denials.
- State advocacy priorities.
- Wiskott-Aldrich carrier study.
Get the latest on PI via the link in our bio! #Immunocompromised
Happy National Nurses Week! We are so thankful for nurses everywhere who make a difference in the lives of those they serve each and every day. A special shoutout to our amazing Nurse Advisory Committee (NAC) for their continued commitment to advancing primary immunodeficiency education and supporting our community. Learn more about our NAC here: https://bit.ly/48KvqUr
In April, for PI Awareness Month, you met Denise. Caroline. Sophia and her mom, Danielle.
Three different diagnoses. Three different seasons of life. One thing in common: finding the Immune Deficiency Foundation changed everything.
Danielle watched her daughter go "from sadness to encouraging others to try new things and live the best life possible." Caroline found that simply talking with people who understood made her feel less alone. And Denise turned her own experience into a community for everyone in Nebraska who came after her.
Peer support programs like these exist because of donor contributions. Give today to make sure no one faces this journey alone. 💙
Visit the link in bio or primaryimmune.org.
For many people with primary immunodeficiency, the 2026 National Conference will be the first time they meet someone who's also diagnosed. Are you looking for a community that just gets it? Join us in San Antonio June 25-27. https://bit.ly/4tgwqrz
It's not uncommon for a person with primary immunodeficiency (PI) to manage physical and mental health conditions. Managing your mental health can help ease the stress of living with a serious chronic healthcare condition! Help us raise awareness by sharing this post. 🦓 💙
