Today is International Fibromyalgia Awareness Day, and many people around the world are taking part in the “Light Up for Fibro” campaign to raise awareness for Fibromyalgia.
Today is an important reminder that fibromyalgia is real, life-altering, and deserving of greater understanding, research, and support.
If you are local to one of our venues,If you’re able to take a photo of your venue lit up in purple for Fibromyalgia Awareness Day, we’d love to see it! 💜
Please email your photos to [email protected] so they can be shared as part of the Light Up for Fibro campaign.
If you share your photos on social media, don’t forget to tag Fibromyalgia Action UK and use the hashtag #LightUpForFibro.hashtags:
#LightUpForFibro2026 #fmauk #morethanfibro
As today marks the beginning of Mental Health Awareness Week, we want to highlight the important work our team at FMA UK does to help relieve some of the concerns faced by our communities.
This month’s newsletter is dedicated to mental health, focusing on breaking down stigma and encouraging open conversations. You can read it here:/signup
We also want everyone to know that support is always available.
You can reach out and become part of our caring, open, and supportive community in a number of ways. Whether you’re looking for advice, a listening ear, or simply a safe space to connect, our team at FMA UK is here to help.
Together, we can break down stigma, encourage honest conversations, and remind one another that no one has to face mental health challenges alone. 💜
#MentalHealthAwarenessWeek #MentalHealthMatters #CommunitySupport #YouAreNotAlone #FMAUK
Today, we’re wishing the very best of luck to two amazing fundraising efforts in support of our charity 💜
🏃♂️ Louis will be taking on the Great Bristol Run 10K
Fundraising page: /page/louis-hill-2
🏍️ The 46 Crew motorcycle group will also be hitting the road for a special fundraising ride
Fundraising page: /page/46fibro26
Both events are happening during Fibromyalgia Awareness Month, whose theme is community, and these incredible fundraisers are a perfect example of what that means. People coming together, supporting one another, raising awareness, and making a difference.
Thank you to Louis, the 46 Crew, and everyone supporting them. Your kindness, energy, and commitment mean so much to our charity and the fibromyalgia community.
Good luck to you all! We’ll be cheering you on every step (and mile!) of the way 💜
#FibromyalgiaAwareness #StrongerTogether #CommunityMatters
💡It's almost time for Light Up for Fibro 2026💡
FMA UK and More Than Fibro have been working hard to get as many venues as possible lit up purple for International Awareness Day on Tuesday 12th May 2026.
This is where we need your help – if you are local to one of our venues, it would be appreciated if you are able to take a photograph of the illuminated venue and email it to [email protected].
If you would like to share it on your own social media, please use the following hashtags:
#LightUpForFibro2026 #fmauk #morethanfibro
Can you visit one of these buildings on the 12th of May and take a photo?
If you happen to find another building near you lit up purple, please take a picture and let us know/tag us, so we can add it to next year’s list.
#LightUpForFibro2026 #fmauk #morethanfibro
After a lot of thought, the time has come for me to say goodbye to Fibromyalgia Action UK.
Working with FMAUK has been an important part of my life, and I’m incredibly grateful for the experiences, friendships, and support I’ve had along the way. It’s been a privilege to be part of a community built on understanding, resilience, and compassion.
I’ve had the chance to meet and work with some truly amazing people, and I’ll always appreciate the conversations, encouragement, and shared determination to support those living with fibromyalgia.
While I’m moving on to a new chapter, I’ll always carry a huge amount of respect and appreciation for FMAUK and this community.
Thank you to everyone who has supported me during my time here. Wishing you all the very best for the future.
Jason
💜 Fibromyalgia Awareness Month is all about COMMUNITY 💜
This month, we’re coming together to raise awareness, support one another, and show that nobody living with fibromyalgia has to face it alone.
Our FMA UK enamel butterfly badges are a simple yet powerful way to show your support, spark conversations, and help spread awareness throughout the month. Every badge helps us continue building a stronger, more connected community for everyone affected by fibromyalgia.
✨ Get your badge here: /shop or see link in bio
We’re also proud to support our Walk for Fibro campaign, which encourages people everywhere to walk together, raise awareness, and stand in solidarity with the fibro community.
🚶 Join the campaign here: /campaign/walk-for-fibro or see link in bio
Together, we are stronger. Together, we raise awareness. Together, we build community. 💜
#FibromyalgiaAwareness #StrongerTogether #CommunityMatters
Our newest Trustee, Vikki Buxton-Helyer, will be on ITV’s This Morning tomorrow talking about how Kent and Medway Mental Health NHS Trust, where she works, has been trialling reptile assisted therapy in one of their hospitals and the benefits they have seen it bring.
Vikki’s passion for reptiles came about as a direct result of her developing fibromyalgia several years ago. An enthusiastic animal lover, her dream had always been to move to the country and have lots of animals. Unfortunately when this came about the animals she had envisaged keeping - like horses – were no longer possible for her to manage. But by happy coincidence she discovered a strong bond with reptiles and, after much research and volunteering to check she could physically and knowledgably care for them, she became the custodian of beautiful animals like royal pythons, bearded dragons and geckos. 🐍
After seeing lots of anecdotal stories online about how reptiles were benefitting people’s mental health, she spoke to her trust about trialling reptile therapy sessions, in addition to the mammals patients were already interacting with.
This has shown really encouraging results and she will share those in a live interview tomorrow.📺
May is National Walking Month 🚶♀️🌿
Walking is a simple, accessible form of movement that can be especially helpful for people living with fibromyalgia. Gentle, regular walks can help ease stiffness, support mood, improve sleep, and boost overall wellbeing, all at a pace that can be adapted to how you’re feeling each day.
We’re also sharing our Walk for Fibro campaign 💜
Get involved here: /campaign/walk-for-fibro or see link in bio
Our team members Claire, Jason, Lynda, and Moss have committed to walking 30 minutes a day this month to show their support.
We're sharing photos from our walks, too! Connecting with the local environment, fresh air, and nature is a powerful reminder of how even small moments outside can support mental and physical wellbeing.
Our awareness month theme focuses on bringing people together and strengthening community connections. We aim to increase understanding of fibromyalgia, encourage more involvement, and create space where experiences can be shared and voices heard. Whether you live with fibromyalgia, support someone who does, or are simply interested in learning more, you are part of this community.
We want to use this month to share experiences, support one another, and help build greater recognition and understanding, turning awareness into meaningful action together.
#FibromyalgiaAwareness #StrongerTogether #CommunityMatters
The charity will be closed on Monday 4th May due to the Bank Holiday. We will reopen as usual on the next working day. Thank you for your understanding 💜
May marks the beginning of Fibromyalgia Awareness Month 💜
This year, our theme is community, because no one should have to face fibromyalgia alone.
Together, we are stronger, louder, and more visible.
We’re committed to raising awareness, growing engagement, and making sure our voices are truly heard.
Whether you’re living with fibromyalgia, supporting someone who is, or simply want to learn more, you are part of this community.
Join us this month as we share stories, support one another, and push for greater understanding and recognition.
Let’s turn awareness into action and make a real difference, together.
#FibromyalgiaAwareness #StrongerTogether #CommunityMatters
Day 3 at #BSR2026 — the grand finale ✨
What an incredible closing day at the British Society for Rheumatology conference. We’re leaving feeling inspired, encouraged, and more determined than ever to keep pushing for better awareness, understanding, and care for people living with fibromyalgia.
From meaningful conversations to new connections and shared learning, this year’s event has been a powerful reminder of why collaboration across research, clinical practice, and patient voices matters so much.
A huge thank you to everyone who engaged with us throughout the conference, your support helps drive real change for the fibromyalgia community 💜
With an even bigger THANK YOU, to our very own Hazel and Allan without you, we would not have been there, and so many of these important conversations would not have been started
Until next time, BSR!
#Fibromyalgia #FMAUK #BSR2026 #Rheumatology #InvisibleIllness #ChronicPain #Advocacy
