Just showing my daily routine of running fluids via pump to my port. I get fluids for POTS to help my blood volume, blood pressure, and it also helps my gut motility 💩 I get 2L a day 5 days a week and usually run them throughout my workday because each liter takes 4 hours. The pumps allows me to move around freely by just carrying everything around in that little bag and everything infuses at a steady rate. I’ve been on this routine since the start of the 2022 when I got my port and I’m glad I’ve gotten it down to a pretty quick routine. All in all this took me 7 minutes and that’s on a day where I was having trouble getting blood return so it’s usually quicker. I’m glad today is Friday so I can deaccess at the end of my infusions and have the weekend needle-free. Feel free to ask any questions. Do you have the same infusion routine or does it look different?
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Video Description: Christine, a white woman with dirty blond and pink hair is wearing and orange shirt and setting up a saline bag and tubing with text on screen describing the process.
#POTS #dysautonomia #DysautonomiaAwareness #Mediport #SalineInfusions #ChronicIllness #ChronicIllnessAwareness #ChronicIllnessWarrior #Spoonie #SpoonieLife #SpoonieSupport #SpoonieStrong #ChronicIllnessCommunity #Disability #DisabilityAwareness #DisabilityPride #POTSSyndrome
Happy International Disability Day!
Or Day of People with Disabilities or whatever silly name they have for it. It’s our day. It’s nearly over but I hope you celebrated your disability, it’s okay if you mourned it or are struggling with it right now too, you can feel all the feelings about your disability. But support other disabled people around you, give yourself some self care, and non-disabled people: support disabled people, listen to disabled people, hire disabled people, buy disabled people’s art, support their shops, and please send some coin to a disabled friend or charity. My payment info is in my link in bio 😉 I could really use the help raising funds for my wheelchair’s power assist add-on called the Smoov. It’s about $5600? 😬 Disabled people have out of pocket costs like this all the time. We either have to find the money or learn to live life without it. So please, if you can, donate any amount you can to a disabled person near you. Thanks and have a wonderful day 💛
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#Idpwd #InternationalDisabilityDay #IDPWD2021 #Disability #DisabilityAwareness #DisabilityPride #BabeWithAMobilityAid #DynamicDisability #DynamicallyDisabled #WheelchairUser #Alinker
My StoryGraph Reading Wrap Up for 2024! I read over 600 books mostly on audio and about a book a day. I read so many series and really got into hockey romances - so much so that I actually got into hockey and now watch it almost everyday 🤓🏒🥅⛸️ hit me up for hockey romance recs I have a bunch and have read what feels like hundreds of them at this point - Rachel Reid has really great MM hockey romance books! Who knows what next year will hold but I know I’ll continue to subsist off of romance audiobooks day in and day out 💖
Last page are my 5 ⭐️ Reads of 2024; were any of these your favorites this year too?
Using Fejo by Victoria Aveline (reread)
A Demon’s Guide to Wooing a Witch by Sarah Hawley
Morbidly Yours by Ivy Fairbanks (reread)
Butcher & Blackbird by Brynne Weaver (reread)
Final Offer by Laura Asher
The Last Love Note by Emma Grey
Cover Story by Rachel Lacey
Juniper Hill by Devney Perry
At First Spite by Olivia Dade
Time to Shine by Rachel Reid
They Hate Each Other by Amanda Woodey
In Your Dreams Holden Rhodes by Stephanie Archer
Savor It by Tarah DeWitt
House of Bane and Blood by Alexis L. Menard
Better Left Unsent by Lia Louis
Leather & Lark by Brynne Weaver
Taking Initiative by Elle M. Stewart
Gay the Pray Away by Natalie Naudus
Truly, Madly, Deeply by Alexandria Bellefleur
Blood & Steel by Helen Scheuerer
#2024ReadingChallenge #ReadingChallenge2024 #StoryGraphChallenge #StoryGraph #GoodReadsChallenge #ReadingChallenge #ReadingChallenge2024 #FiveStarReads
✨5 ⭐️⭐️⭐️⭐️⭐️ Reads of 2023 ✨
I got…very into reading this year and by the time I got into audiobooks halfway through the year, I was blazing through books all day, every day! These were my favorites in no particular order. I’m not sure what constitutes a 5 Star read for me but it has to have an extra something special where I can’t stop thinking about it, even weeks after reading it and having delved into many other stories. These are the ones that really stood out to me. I wish I could be an organized person and do this by genre but please know these are all romances. Some are fantasy, some are contemporary, a few historical. I was tempted to leave out the very popular books like Fourth Wing and Divine Rivals but I read them both twice this year so I feel like they need to be mentioned. I should probably mention A Court of Silver Flames by Sarah J. Maas which I read twice this year as well but that was a reread! It’s still very close to my heart.
Are any of these 5⭐️ for you too?
Do you have any recommendations for me based off these?
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#books #bookstagram #5StarReads #RomanceBooks #RomanceNovels #Romantasy #RomantasyBooks #BookRecommendations #BookLover #BookLovers
San Diego Comic Con was a whirlwind as usual. Less panels/no celebrities was different but we still had a great time and got some exclusives, saw some screenings, made line friends, went to offsites, got swag, and supported artists. We’re already locked in for next year and looking forward to it once SAG & WGA have reached fair agreements! The Hellfire Gala was a fun excuse to do these cosplays as Kitty Pryde and Pyro from the X-men comics. San Diego’s Little Italy is also so cute and we discovered the accessibility of the trolley after getting a hotel more than a mile from the convention center. The trolley was really great and has a ramp button on every car. It was awesome. It only failed to work twice during our 5 days there. Imagine if other cities did that 💀
Looking forward to SDCC 2024! 💖
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#SanDiego #SDCC2023 #SanDiegoComicCon #HellfireGala2023 #XMenHellfireGala #KittyPryde #PyroCosplay #KittyPrydeCosplay #TheWitcher #IWTV #SanDiegoLittleItaly
@dansterngram proposed on Sunday during our D&D session and I was shocked! And said yes! Thanks to our friends for being a part of it and for the incredible cake and taking these multiple video angles. I can’t wait to start our lives together as a married couple! I love you 😘
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The dog in the foreground is Willa and the dog in the background is @agathawagatha 💕
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#proposal #ProposalVideo #engaged
I got laid off yesterday after 7 years at the same company. This is more of a look back on my time as a graphics operator in the control room than a video editor since I spent most of the last 3 years doing that at home. The last video is a look at my office as a video editor. I got to see a lot of cool things and meet a lot of cool people as well as work with some great folks. I learned so so much in both jobs and am so grateful I got to work there for so long on so many different brands. So here’s my long roll of pics of celebs.
If you know anyone who needs a video editor. I’m available!
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#timeinc #timeincstudios #celebs #laidoff #layoffs #LookingForWork #OpenToWork #Unemployed #celebrity #celebrities #VideoEditor #VideoEditors
2022 recap with a bunch of things missing obviously with IG limiting it to 15 items but there was some fun things in there! Namely the Harry Styles & Florence & the Machine concerts with the US Open in between there. SDCC was a highlight as well. Bummed we might not be going this year. Alas it leaves room for other adventures. Onwards to 2023.
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#2022Recap #2022RecapReel #ChronicIllness #ChronicIllnessLife #ChronicPain #ChronicPainAwareness #ChronicIllnessAwareness #ChronicIllnessWarrior #Spoonie #SpoonieLife #SpoonieSupport #SpoonieStrong #ChronicIllnessCommunity #Disability #DisabilityAwareness #DisabilityPride
Meow Wolf Denver was super cool! Really enjoyed the wheelchair accessible kitchen with Denver’s disability history and art from disabled artists. So immersive and wild at every turn 🤩 👏🏻 to all the artists involved!
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#ImmersiveArt #MeowWolf #MeowWolfDenver #ImmersiveArtExperience #SupportLocalArtists
33rd birthday / Dia Beacon photo dump 🥳🥰
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#diabeacon #diaartfoundation #beaconny
[#Accessibility Image Descriptions:
Image 1: Dan is leaning down holding onto Christine’s wheelchair and they are both smiling. The image is bathed in green light from a neon green light installation in the background that looks like neon fencing.
Image 2: A glass dome modern art structure in a brightly lit, hardwood floored space.
Image 3: Modern art of the Fibonacci sequence showing red paper cones increasing in number, two 1s in neon on the ceiling beams in a brick walled building with large glass windows.
Image 4: Modern art of a black abyss made of steel. It’s a large black hole in the floor of the museum.
Video 5: An array of neon circles in a right triangle changing colors from white to greens and yellows. You could only see these colors when looking through the camera on my phone! All the lights looked bright white in person and weren’t changing at all. It was so wild.
Image 6: Three bolts of neon lean against the wall and reflect onto the black floor in green, blue, and orange.
Video 7: A video revealing a green neon light installation that is set up almost like fencing and fills an old parking structure with green light.
Image 8: A green neon light installation that is set up almost like fencing and fills an old parking structure with green light.
Video 9: close up video of the green neon light installation
Image 10: An orangey yellow sunset is peeking through a cloudy sky above the Manhattan skyscrapers.]