There are five gynae cancers: womb, ovarian, cervical, vulval and vaginal.
Today, 60 women and people with gynae organs in the UK will hear the devastating news they have one of these cancers, and 21 will die because of the gynae cancer they were diagnosed with.
Each year, that’s thousands of lives lost to cancers that most people don’t know enough about, are rarely discussed, and receive nowhere near enough research funding.
Over the past 22 years, we’ve invested over £10 million into research focused on gynae cancer screening, early diagnosis, and predicting people’s risk of developing a gynae cancer.
Investment that’s already transformed our understanding of gynae cancers and improved the lives of thousands of people. But we know we need to invest far more over the coming years to ensure all gynae cancers are prevented or detected at an early stage.
Since 2002, we’ve also educated thousands of people about gynae health, from knowing their anatomy, what's normal and what's not, and when to seek help. But, again, we know far more must be done in this area if we are to create a world where all gynae cancers are prevented or detected at an early stage.
Because, right now, women and people with gynae organs are dying every day because they don’t know what signs to look out for, or the stigma and embarrassment that society places on these cancers is preventing them from seeking help.
Since its creation in 2016, our Ask Eve nurse service has helped tens of thousands of people access helpful information about gynae health and gynae cancers, and provided vital reassurance.
As part of Team Eve, you play a key role in saving and improving lives. From the funds you have raised, the life-saving information you have shared, and the important conversations you have had about these little-known cancers. - Thank you.
#EveAppeal #GynaeCancers #TheEveAppeal #GynaeCancerReserch #CancerResearch
We are the leading gynaecological cancer charity.
To help save lives, we focus on preventing or improving the early diagnosis of womb, ovarian, cervical, vulval and vaginal cancer.
As a charity, our values help us remain focussed on our mission and keeping our community at the heart of everything we do:
-We dare to dream big: We may be a small charity but we are incredibly ambitious. We truly believe we can create a world where all gynae cancers are prevented or detected at an early stage. We will do this by funding research, educating people about gynae health and gynae cancers, and providing free, expert information and advice.
-We never give up: We will not stop until we make our vision a reality: a world where all gynae cancers are prevented or detected at an early stage. To achieve this, we work tirelessly with our community of supporters, women and people affected by gynae cancers, medical professionals, scientists and partners to fund research and educate people about the five gynae cancers.
-We are here for everyone: Gynae cancers can have a negative impact on anyone’s life. That’s why we make sure our research, educational campaigns and free, expert information and advice are focused on helping everyone who could be affected by a gynae cancer. This includes younger and older people, people with learning or physical disabilities, the LGBTQI+ community, and people from all socioeconomic and ethnic backgrounds.
-We are open and honest: We speak clearly, truthfully and with compassion.
-We work together to achieve more: We work hard to build strong relationships that help us fund the right research, educate people about gynae health and gynae cancers, and provide expert information and advice. Our vital partners that make up Team Eve include people affected by gynae cancers, our supporters, healthcare professionals, scientists and researchers, businesses and community groups.
A huge thank you to everyone who has supported us over the years and who has helped shape us into the charity we are today. Together we can save and improve lives from the five gynae cancers.
#Eve #EveAppeal #GynaeCancers #Values
It's a new year! Allow us to reintroduce ourselves and share our vision.
There are five gynae cancers, which are womb, ovarian, cervical, vulval and vaginal cancer.
Our aim is to prevent gynae cancers from developing in the first place, but if they do develop, we want to make sure they’re detected early so more people survive their diagnosis.
To make our goals a reality, we fund research in four key areas:
-uncovering the causes of gynae cancers
-predicting a person’s risk of developing them
-identifying how people can reduce their risk
-improving their detection and diagnosis.
We educate people about gynae health, from knowing their anatomy, what's normal and what's not, and when to seek help. We increase awareness of the signs and symptoms of gynae cancers and what people should do if they spot anything they’re worried about.
Through our Ask Eve nurse service, we answer people’s questions about their gynae health, gynae cancers and provide vital reassurance. This free, confidential and expert support is available over the phone, via email, and through our website.
Find out more about us on our website, linked in bio.
#Eve #EveAppeal #GynaeCancers
Women are often taught to minimise their symptoms.
As a gynaecological cancer surgeon, I hear this phrase far too often:“I didn’t want to bother anyone.”
That is exactly why campaigns like Get Lippy matter.
I want everyone to feel educated, confident in speaking out and bold about when they know something isn’t normal so they can access the healthcare that they need.
Every year in the UK, over 22,000 women and people with gynae organs are diagnosed with one of the five gynae cancers. That’s 60 people getting this life-changing news every day. All too often these cancers are picked up late because we aren’t taught how to know what’s normal for our bodies or the signs and symptoms to look out for, and because shame and stigma makes it more difficult for people to notice symptoms and get checked quickly.
Head over to @eveappeal page to see more, and let me know if there’s something you want me to explain or do to help when it comes to education or advocacy.
We have so loved seeing everyone Get Lippy and loud about gynae cancers today!
Here is a selection of the wonderful posts we have seen, and there are many more...
Reading about why you all want to end the stigma and shame around gynae health and your experiences has just empowered us to shout louder and prouder! We have the best community and we appreciate all of your support.
Go Team Eve💋
There's still time to support Get Lippy Day today- you can find our template on the link in bio, change your phone, and get sharing!
Don't worry if you don't want to share a photo of yourself, there's also a template with the five gynae cancers on you can download and use.
#GetLippy #NameItDontShameIt #GynaeHealth
It's officially Get Lippy Day!
We are asking everyone to Get Lippy, Get Loud and Get Sharing across social media. Have you shared yours yet?
Have a look at our recent post and check out the link in bio to see how you can share an image just like this one!
By sharing this Get Lippy Day you are helping to ensure that everyone knows there are five gynae cancers, everyone knows the signs and symptoms to look out for, and that everyone feels more comfortable talking about gynae health! Thank you.
Find out more at getlippy.org.uk or on @eveappeal ’s social media."
Find our template on our link in bio.
#GetLippy #KnowYourNormal #NameItDontShameIt
Did you know that only 10% of women (that's 1 in 10) feel they have a good grasp of gynae health? And one in six people can’t name a single gynaecological cancer.
That’s why we need to Get Lippy about gynae health!
Join us and raise awareness this May! Share our gynae health information and buy a Get Lippy participating product during May, to help fund research and raise awareness for the prevention of the five gynae cancers.
Find out more at getlippy.org.uk (or on the link in bio)
#GetLippy #NameItDontShameIt #EveAppeal #GynaeCancerAwareness
💋It’s Get Lippy Day TOMORROW (15 May)!
We are asking everyone to Get Lippy, Get Loud and Get Sharing across social media.
How you can do this:
-Access our Get Lippy Day template on canva, linked in bio and choose out of one of our four options
-Replace the image in the template with your own photo of yourself,
If you don't want to use your own image but want to get involved, you can use option four
-Download your image of choice
-Get posting!
If you're not sure what to say in your caption, here is a suggestion, and don't forget to tag @EveAppeal and use #GetLippy.
Suggested caption: "I’m joining @eveappeal to Get Lippy and loud about gynaecological cancers!
All through May @eveappeal is breaking down the shame around gynae health and raising awareness of the five gynaecological cancers: womb, ovarian, cervical, vulval and vaginal.
Every year in the UK, over 22,000 women and people with gynae organs are diagnosed with one of the five gynae cancers. That’s 60 people getting this life-changing news every day.
All too often these cancers are picked up late because we aren’t taught how to know what’s normal for our bodies or the signs and symptoms to look out for, and because shame and stigma makes it more difficult for people to notice symptoms and get checked quickly.
We are Getting Lippy to open up life-saving conversations and break the cycle of shame. No more whispers, no more stigma. Will you join us?
Find out more at getlippy.org.uk or on @eveappeal ’s social media."
Find our template on our link in bio.
#GetLippy #KnowYourNormal #NameItDontShameIt
The third report from the Endometrial (womb) Cancer Audit pilot has been published. We share some of the key findings around the diagnosis of womb cancer diagnosis and the inequalities that exist.
Womb cancer is the most common of the five gynae cancers, and the fourth most common cancer in women. It can also be called uterine cancer or endometrial cancer.
It affects 9,700 women and people with gynae organs a year in the UK and it is on the rise- diagnoses have gone up by 41% since 2001 in England. Until now, there has been no national monitoring of womb cancer care and outcomes in England. In partnership with the British Gynaecological Cancer Society and @peaches_trust , we have co-funded a pilot audit on womb cancer care.
We hope that this audit pilot will be the first of many. Knowing what is happening across the country and having a clear picture of the data helps us understand the issues women face getting diagnosed with, and treated for, womb cancer.
We hope this vital information can help guide improvements. It is clear from this audit that there are inequalities across womb cancer care, and our focus must be on reducing those, so that every woman and person with womb cancer gets diagnosed as early as possible, has access to the right treatments and has the best possible chance of surviving their cancer.
You can read more in our blog, linked in bio.
#WombCancer #ECAP #EndometrialCancer #CancerDiagnosis
3 facts that many people don’t know about gynae cancer.
For #getlippy month with @eveappeal education is what it’s all about.
Did you know any of these?
**there may be some breakthrough bleeding post menopause if you’ve just started HRT/MHT or you’ve recently changed the regime but always speak to your doctor for clarity and they can assess and advise appropriately.
Please share ♥️
Our testing of ChatGPT found serious concerns, with it missing gynae cancers as potential causes of leading symptoms, giving inaccurate or outdated information and giving inappropriate medical advice.
We ran 25 test scenarios with ChatGPT, where we posed as patients with key symptoms of the five gynae cancers.
In the test scenarios we ran, ChatGPT did not pick up ovarian cancer as a possible cause of persistent bloating for more than three weeks- one of the leading symptoms.
While it did recommend seeing a doctor, it kept offering diet advice and tips around dealing with irritable bowel syndrome (IBS). IBS is a benign condition that patients with ovarian cancer are commonly misdiagnosed with.
Ovarian cancer still wasn’t mentioned even when we explained that the hypothetical patient had already changed their diet and their bloating was getting worse.
Vulval cancer was also missed as a potential cause of vulval itching. Even when we gave details of vulval itching which exactly matched how it would present if it was a sign of cancer, like it hadn’t improved with over-the-counter medicines and was worse at night.
We know it can sometimes feel easier to find information online, in places like ChatGPT, than get an appointment and share your concerns with a doctor. Especially when it comes to gynae health. But, if you have any symptoms you are worried about, do go to your GP for investigations.
AI platforms like ChatGPT may give inaccurate or irrelevant information and falsely put your mind at ease. The symptoms of gynae cancers are more likely to be caused by something less serious, but its always worth getting properly investigated, just in case.
We have more information and our toolkit for spotting misinformation on our website, linked in bio.
#GetLippy #NameItDontShameIt #Misinformation #KnowYourNormal #GetBleedingChecked
