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Hi! Hey! That’s me up there.
Every year (including this wild and strange year), I ask for support for the @spinabifidaassn — their work in research, healthcare access, and community support means the world to me and to everyone living with spina bifida. It’s what helps me stay healthy, confident, and keep kicking ass. 💪
With changes in government funding, medical research and programs like the SBA are tougher to sustain — so this year, I’m pushing hard to raise as much as I can.
I’ll be walking the @sbawalknroll on Nov 1 at @lastatehistoricpark with an amazing crew of SB families and friends. Come join us, or just cheer us on or donate from wherever you are. 💛
Donate here: /tobin2025
(Link’s also in my bio!)
Either way, love ya — thanks for being part of my world. Here are a few photos of me doing the best one can and living life with good people, family… and cats.
#spinabifida #walknroll #fundraiser
With all that’s going on - it’s nice to have some pleasant news, something to distract from it all for a moment. It’s such an honor to be named a 2025 Billboard Indie Power Player along with @hopelessian and Louis. No better way to celebrate my 20 year anniversary at Hopeless Records, it’s a joy to get to do this every day with people and bands that I love.p take care of each other - hug the ones closest to you and tell them you love them.
Fundraiser Time! Every year I make a post about my work with @spinabifidaassn - why? I have Spina Bifida - had it since birth, still have it now. Though my disability has never defined me, it sure can be a fun side project - I walk a little funny, I think about the bathroom a lot, shoe shopping is a nightmare, cane shopping is not terrible...I LOVE sitting. Jokes aside, there is still a massive adult care and research gap for the almost 200k people living with this disability. Not even a coordinated care group here in LA - wild…
Not complaining (maybe venting?), just working toward bettering the situation - that is my goal. Raise money, help host amazing doctors at care events, travel to DC to talk to senators and reps about additional CDC funding. Etc - or even just chatting with parents, kids and other adults about managing life and care.
This is a life long mission for me - so if you can, donate! Or better yet join us Sep 29 @ BMO stadium lot to walk a mile or so @sbawalknroll and help raise some funds for my team! (Team tobin, right? Catchy?)
Thank you for all your past and future support. Means the world to me.
LINK TO DONATE IN MY BIO
