Not all seizures look the same.
And most don’t look like what you expect.
For many people, a seizure can mean confusion, exhaustion, memory loss, or fear that lingers long after it ends.
And just like running a marathon, recovery isn’t instant.
But unlike a marathon, there’s no finish line. No medal. No warning.
Understanding epilepsy starts with listening, learning, and challenging assumptions.
Comment 'Marathon' to explore our campaign and see how you can support.
Here at Epilepsy Action, we want to raise awareness, break down stigma and support those living with Epilepsy. 💜
This begins with people understanding what epilepsy is. These are a few facts about epilepsy but we urge you to find out more information by following the link in our bio and visiting our website.
#EducateYourself #WhatIsEpilepsy #EpilepsyAwareness #Support
Talking, we all know we sometimes need to talk to someone but when you're overwhelmed it can seem overwhelming.
We're here to help, all you have to do is say hi, let us take care of the rest.
We’re ready when you are - talk to us today.
Join us for a free online webinar covering PIP and benefits.
The session will cover:
Understanding PIP and Limited Capability for Work benefits.
Explaining how your health condition affects daily activities.
Navigating benefit applications and communicating with the Department of Work and Pensions
Comment "PIP" for a direct link to secure your spot in the webinar.
Yesterday we had the honour of winning Not for Profit Campaign of the Year at the Prolific North Awards for our If I Told You campaign with Magpie.
We’re incredibly proud of this work and grateful to everyone who helped bring the campaign to life.
Thank you to Prolific North for a brilliant evening and congratulations to all the nominees and winners.
#ProlificNorthAwards #NotForProfitCampaign #CreativeIndustry #CelebrateTheNorth #IfIToldYou
“You don’t have to handle everything alone.”
For #MentalHealthAwarenessWeek, Chloe shares how she manages her mental health while living with epilepsy, with honesty, strength and hope.
Watch, listen, and share if this resonates with you 💜
Comment 'Support' to receive a link to more information about mental health.
#MentalHealthAwarenessWeek #EpilepsyAndMentalHealth
Are you team millennial or team gen z?
One uses full sentences. One says 'it's giving awareness✨'.
As long as our message reaches even one more person living with or affected by epilepsy - we'll call that a win 💜
Visit: epilepsy.org.uk
#EpilepsyAwareness #MillennialVsGenZMarketing
We want to hear from people with epilepsy, families, carers and anyone affected by seizures. Your feedback can help shape how epilepsy is represented in future storylines and across the media.
💬 Comment “SOAPS” and we’ll send you the survey link.
⏱️ It only takes 2 minutes.
Your voice can help create better stories, better understanding, and better representation.
#Epilepsy #EpilepsyAwareness #EastEnders #RepresentationMatters
This Mental Health Awareness Week, Emma shares her story - opening up about her mental health journey and the impact epilepsy has had on her life.
Thank you, Emma, for your courage and for raising awareness around both mental health and epilepsy.
Comment 'Support' to receive a link to more information about mental health.
#MentalHealthAwarenessWeek #MentalHealthMatters #EpilepsyAwareness
Living with epilepsy can impact mental health in ways people don’t always see.
In this video, Greg talks openly about the tools and the support that helps him protect his mental wellbeing , on good days and hard ones.
Conversations like these matter. 👏
Comment 'Support' to receive a link to more information about mental health.
#MentalHealthAwarenessWeek #EpilepsyAndMentalHealth
Today we celebrate International Nurses' Day, this year focusing on the importance of empowering nurses to save lives.
We know the incredible and crucial role epilepsy specialist nurses (ESNs) play in supporting people with epilepsy and their loved ones. ESN Jenny, from Swansea, is one of them. Last year she won an Epilepsy Action Star award for being a fantastic role model demonstrating what real, compassionate and extraordinary care looks like.
Wales Manager Jan Paterson said: "Jenny goes above and beyond every single day. She advocates fiercely for patients, gently challenging stigma. Families trust her. Colleagues admire her. And countless people are living braver, better lives because of her."
But we need more ESNs like Jenny to be there to empower and give people the lifeline they need.
We know there is a neurology workforce crisis in the UK, with only 448 ESNs for the 630,000 people living with epilepsy in the UK. That's just one ESN to every 1,397 people. This urgently needs to change.
Do you have an ESN? Tell us the difference they make for you and why they need to be celebrated.
Spend the day with us at #LeedsMarathon 💜
A huge well done to all of our runners!
#Marathon #Leeds #Running #EpilepsyAction
Music: Do it like me, Nimino
