ECHO Charity

🎒🌍 #EddieOnTour is here! Eddie the ECHO bear needs a holiday… and you can help! 🧸✈️ Buy an Eddie Teddy for £15 – you get a cuddly buddy, and a child in hospital gets one too 💖 Take Eddie on your adventures, snap a pic, and tag us using #EddieOnTour ! 💫 Ethan met Eddie as a baby before heart surgery — now he’s helping launch this challenge as part of his work experience! Let’s get Eddie on the road and spread smiles 💼🧸 🛒 Grab yours today: (link in bio)

Last night was the annual Statom Group Charity Football Match, an 11-a-side game played in support of @echoukcharity ⚽️ 🖤💛 @erithtown #StatomGroup #CharityFootballMatch #FootballForGood #ECHOCharity #TeamStatom

Up and Over at The O2 - Are You Ready for the Challenge? Calling all young people aged 11–25 with a heart condition and their siblings! This isn’t just a climb, it’s one of London’s biggest physical challenges, and it takes courage, determination, and heart. All event costs are FREE and everyone will receive a certificate to celebrate their achievement at school, college, or work - Complete bragging rights for conquering an iconic London landmark! We ask participants to set up a fundraising page and aim to raise just £50. Your fundraising shows community spirit and gives back while you take on something incredible. After the climb, enjoy a lovely buffet lunch, and parents or carers can join us for coffee & cake to relax, mingle, or celebrate the achievements. It’s a huge challenge but we know every ECHO Teen is braver than they think. Sign up now and let’s make this an unforgettable day! - /event/echo-teens-up-and-over-challenge-at-the-o2/

As children’s inpatient care moves from The Royal Brompton to Evelina London, many families and staff are reflecting on the memories, care and hope these hospitals have provided over the years 💙 For families like Vashti & Lily’s, The Brompton was never just a building — it was the people who carried them through the hardest moments with compassion, expertise and love. “Part of both of us will always remain at The Royal Brompton… the real magic was always the people and the ethos behind it. And that doesn’t end here.” ❤️ Whilst we say goodbye to familiar places, we also look ahead to new beginnings — knowing that the care, compassion and dedication behind these services continues on through the incredible teams who deliver it every day. Thank you for sharing your story, Vashti 💙

We’re hiring! ECHO is looking for a Families & Outreach Coordinator to support children, young people (0–25) and families living with congenital heart disease. This is a hands-on, heart-led role — supporting families through diagnosis, treatment, everyday life, and sometimes loss. You’ll be there in hospitals, homes, and the community, offering emotional, practical, and human support when it matters most. We’re looking for someone compassionate, proactive, and ready to really show up for families. You’ll also help shape support for young people aged 18–25 and create moments of connection, comfort, and care across our community. Our office SE1 7LL & Evelina London Children’s Hospital & community Hours 24 or 32 hours per week Closing date: 2 June If this sounds like you, we’d love to hear from you. Apply here: /work-with-us/

In just 6 days, our brave skydivers will be taking on a 12,000-ft tandem skydive… We have 3 spaces left - could you be one of them? 💙✈️ The children and families we support don’t get to choose fear. Every single day, they face heart conditions, surgeries, and challenges with incredible courage and strength. That’s why we’re asking our community to be brave alongside them. On 14th May 2026, we have 40 amazing supporters will be taking the leap to raise vital funds for our CHD community and there’s still time to join them. Are you ready to step out of your comfort zone and do something unforgettable for a cause that truly matters? Sign up, take the leap, and help us continue supporting children and families living with CHD. You must be 18 or over to take part, and weight restrictions apply. Find out more and sign up here: ECHO Skydive for ECHO

The new GALAXY clinic at Evelina London will soon officially open and it’s out of this world! Over 100 children shared their brilliant ideas, and now every clinic area has planets and space-themed names, making the space fun, welcoming, and designed with kids at the heart. We’ll miss Walrus, but we’re super excited to explore this amazing new clinic! ECHO is supporting the opening and can’t wait for our members to see it. We’re looking for volunteers to help with welcoming visitors and giving directions. If you can spare a half-day or full day from May 11th onwards, come join us and be part of the adventure! Message us or email us [email protected] to volunteer or find out more -your mission awaits!

FIRST OF THREE THEATRE WORKSHOPS Date: TONIGHT: Wednesday, 6 May @ 7:30 pm – 8:30 pm Location: On Line Who’s it for: ECHO members aged 11–17 Not to late for Heart Patients and Siblings to sign up for our creative online workshop based on the theatre production recently chosen by the ECHO youth community. They will find out which show won our poll, these sessions will provide Drama Skills and Fun based on that show and then for any young person who attends any of the online workshops they are invited to join us for the West End Performance of the winning show in September. This session is a space for young people to come together and explore the specific themes, characters, and story of the winning show. What’s Happening: Behind the Scenes: Explore the themes and characters of the winning production. Creative Challenges: Interactive activities inspired by the show. Connect: Hang out with other ECHO teens and share your creative ideas. What Do I Need? Just yourself and a device with internet access and a small item to the session (like a teddy, photo, or object) that represents something about you or what makes you unique – Think of show and tell We’ll provide the creative spark—you just need to bring your imagination. The session will take place via Zoom Event Details You can sign up by filling out the short form below, before 6pm for tonights workshop - or fill it out for the others.. /event/echo-teens-11-17s-theatre-trip-workshop/

We were lucky to have two wonderful volunteers in the office with us in April – Gemma and Ruby❤️ Ruby spent time helping to put together our care packs, while Gemma supported our fundraising team by sending out appeals to Trusts and Foundations. Every task, big or small, makes a real difference to the people we support. We truly couldn’t do our work without the dedication and kindness of our volunteers. We are so grateful for everything you do ✨

3D printed hearts making a real difference 🫀 In February half term, our ECHO teens and their parents came together for an ECHO x Health Tech Research Centre event, they were amazing at learning and talking about research and seeing 3D heart printing up close ‘To provide each child or young person with treatment that is best for them, an in depth understanding of their particular heart and its structure is vital. Where a patient’s anatomy is particularly complex, the team at Evelina London Children’s Hospital use CT and MRI scanning to create detailed 3D models of the heart. These are used to learn as much as possible about the shape of the heart, any structural defects and the impact these have on heart health. They also help the team to consider different treatment options and plan surgical and cardiac catheter-based procedures, tailored to the needs of each child.’ – Nick – HRC. @nihrchildrenhrc @kcl_london

Calling all amazing sibling superstars… Having a sibling with CHD can be incredibly special, but it can also be tough sometimes. We’re creating a storybook for younger children to help them feel seen, supported, and understood and we need YOUR help to create it! Join our In Person workshop and be part of something amazing that will help siblings. Taking part on: Saturday 13th June 2026 - 10:30am–2:30pm For children and young people aged 7–16 with heart conditions and their siblings with a parent/carer. sign up now via this link - /event/help-us-write-a-book-for-siblings/

A huge THANK YOU to our incredible 2026 ECHO running team! 🏃‍♀️🏃‍♂️ From the London Landmarks Half Marathon to the London Marathon and the Mini Marathon, our amazing runners showed determination, heart, and true community spirit every step of the way. Together, you’ve raised an incredible amount and donations are still coming in! Your efforts are already making a real difference, and we can’t wait to share the final total soon. For now, Eddie and Team ECHO just want to say a massive congratulations and thank you to everyone who ran, cheered, donated, or supported our team It’s not too late to donate and be part of something special. - London Marathon Page - /echouk/profileAnd LLHM page - /campaign/echolondonlandmarks2026 If you’re feeling inspired… the London Marathon ballot for 2027 is now open! /ballot and you can pre register your interest for the LLHM here -/pre-register-half