The first time Ashley Bernath dropped her daughter, Charlie, off at preschool, there was no hug, no tears, no long goodbye — just a quick “see you later” and a full-steam-ahead dash for the classroom. Charlie had spent the previous 15 months in active cancer treatment for acute lymphoblastic leukemia (ALL), and even though she still had a ways to go on her treatment protocol, she was stable enough to start this important childhood milestone.
“The Jimmy Fund Clinic became a school for Charlie,” say Ashley. “Even though she wasn’t in school that first year, she was seeing the same kids regularly and doing all these wonderful things. At the same time, it was a safety net for us. I'm truly grateful for the consistency it's provided in a time when everything else has been chaotic.”
Charlie’s diagnoses started with a broken left femur. But there was no incident her parents knew of that could have caused the broken leg, which prompted more tests. A complete blood count showed that an overabundance of immature white blood cells had formed in Charlie’s bone marrow and blood, weakening her bones. ALL was the culprit.
Within a few days after Charlie’s diagnosis, the family was at
@bostonchildrens , where Charlie would spend her early days of treatment as an inpatient. They met Barbara A. Degar, MD, medical director of inpatient oncology at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, who would become Charlie’s primary oncologist. In desperate need of reassurance, Ashley and her husband, Ryan, found it immediately.
“Dr. Degar is a superhero,” Ashley says. “From the moment we met her, she was like, ‘This is what it is, and this is how we’re going to take care of it.’ It never felt like just Charlie was the patient,” she adds. “The nurses, the social workers, the staff in the playroom -- it feels like everybody is there to support all of us.”
Charlie is scheduled to finish her active treatment in June. “Charlie’s treatment has been long and at times very challenging, but her outlook is bright,” says Degar. “We expect that she will be able to do anything she sets her mind to, in the short term and in the future.”