Cure EB Foundation

✨ Flashback to last year’s Cure EB Foundation Business Lunch ✨ An incredible afternoon filled with great conversations, amazing supporters, and a shared commitment to making a difference for families living with Epidermolysis Bullosa 💙 We can’t wait to do it all again this year! 📅 Friday 12th June 🎟️ Tickets available via the link in our bio Will you be joining us? We’d love to see you there. #CureEB #BusinessLunch #Fundraiser #MelbourneEvents #EBAwareness

Join us for an inspiring afternoon of connection, conversation, and impact 💙 The Cure EB Business Lunch, hosted by Matthew Campbell, is back—bringing together our community to help fund vital research towards a cure for Epidermolysis Bullosa (EB). 📅 Friday 12 June 🕧 12:30pm – 4:30pm 📍 The Glasshouse, Olympic Boulevard Enjoy a three-course lunch with premium beverages, exciting live auctions and raffles, and hear from our special guest speaker Ian Robson (CEO, Kooyong Tennis Club). 🍸 Plus, keep the conversation going with post-event drinks from 4:30–6:30pm. 🎟 Tables of 10 and individual tickets available Every ticket helps bring us closer to a cure. Secure your tickets via the link in bio. #CureEB #BusinessLunch #Fundraiser #MelbourneEvents #MakeADifference

Jacob’s story is one of hope, progress, and the power of community 💙 Thanks to the incredible support of everyone who has attended our events, donated, and stood alongside us, the Cure EB Foundation has proudly contributed to supporting Jacob’s advanced gene therapy treatment — marking a historic milestone as the first child in Australia to receive this groundbreaking therapy. This moment represents more than a medical achievement. It’s a powerful step forward in the fight against Epidermolysis Bullosa (EB), a rare and painful genetic condition that affects the skin’s ability to heal. For families living with EB, breakthroughs like this offer real, tangible hope for the future. To every person who has supported Cure EB — whether by attending an event, making a donation, or helping us raise awareness — this is your impact. You are part of this milestone. You are helping change lives. We are incredibly proud to be part of Jacob’s journey and remain committed to funding life-changing research and treatments until there is a cure. #CureEB #EpidermolysisBullosa #GeneTherapy #RareDisease #MedicalBreakthrough

Exciting updates from BDF! ✨ Cure EB Foundation took the stage to share the latest progress on the research projects we’ve funded thanks to your donations. Every contribution is helping drive vital research forward and bringing us closer to better treatments—and ultimately a cure—for Epidermolysis Bullosa (EB). Thank you to our board member Ash Thompson for sharing all the updates and Tilly for your inspiring words! Thank you for being part of this journey and supporting the EB community. 💙 #CureEBFoundation #EpidermolysisBullosa #EBResearch #ebawareness #BeatEB

🎟️ Brighter Days Festival Raffle 🎟️ Have you got your tickets yet? Don’t miss your chance to win some amazing prizes while helping support Cure EB Foundation and children living with Epidermolysis Bullosa. 📲 Scan the QR code and grab your tickets now before they sell out! Every ticket purchased helps fund vital research and support for families living with EB. Get in quick — once they’re gone, they’re gone! #BrighterDaysFestival #CureEB #EpidermolysisBullosa #EBAwareness #CharityRaffle #SupportResearch #FightEB #EndEB #FestivalFun

Cure EB Foundation partners with the RCH Foundation to help change the lives of children living with EB. Stay tuned for more updates and exciting developments. From left to right: Melissa Burela: Administration Manager Cure EB Foundation Corey Wilkes: Board Member Cure EB Foundation Ashley Thompson: Board Member Cure EB Foundation Ryan Brown: RCH Foundation CEO Tom Connell: RCH General Pediatrician Mark Walkley: Chairman Cure EB Foundation Shannon Landers: Board Member Cure EB Foundation Annalese Fowler: RCH Foundation Philanthropy Executive #ebawareness #EBResearch #HopeForEB #rchfoundation

Today is Rare Disease Day. Epidermolysis Bullosa (EB) is a rare and devastating genetic skin condition that causes the skin to blister and tear at the slightest touch. For families living with EB, every day is a challenge most of us will never fully understand. At Cure EB Foundation, we are committed to funding research, supporting families, and working toward a cure. Because rare deserves attention. Rare deserves research. Rare deserves hope. #RareDiseaseDay #rarediseaseday #CureEB #cureeb #cureebfoundation #epidermolysisbullosa #EpidermolysisBullosa #epidermolysisbullosaawareness #rarebutreal #HopeForEB #EBResearch #ebresearch #EBAwareness #ebawareness #ebcommunity #rarestrength

You wanted to know who’s on and when… here it is! 👀🎶 Check out the Brighter Days Festival line-up in order of appearance and grab your tickets 🎟 3-day passes or single-day passes available! ✨ Members perk: Gates open early on Friday for exclusive sound check access! 🔥 Don’t miss the music, food, fun and good vibes! 👉 Get your tickets now: https://bit.ly/BDF26FB

Still riding the high from Tough Tilly Day! ✨ What an unforgettable event — powered by amazing sponsors, passionate vendors, selfless volunteers, and the most supportive community we could ask for. Thank you to everyone who attended, cheered, helped, donated, and believed in this day. You turned it into pure magic. 💛 Huge thank you to @kbrads95 for capturing the day 💛 Forever grateful. Forever Tough Tilly. 💪🐾 #toughtillyday #cureeb #epidermolysisbullosa #familyfun #community

We’re all set up and ready to make this year’s event one for the books! Are you ready for a spectacular day by the Murray?! Tickets available online or at the door - don’t miss out! Come for the day, stay for the memories 🥳 Bring your crew, grab your tickets, jump on our complimentary buses and get ready for an unforgettable time! #toughtillyday #murrayvibes #livemusic #chillvibesonly #goodtimes