Our Coeliac Awareness Campaign is back this May 🧡
We’ll be sharing stories, information, giveaways and ways for our community to get involved throughout the month.
You’ll also see supporters taking part in the 64 Challenge, our fundraising challenge running across May, where we’ll be asking ‘What’s Your 64?’
International Coeliac Awareness Day on 16 May will be a key moment, followed by a week of focused awareness activity.
Stay tuned for more as we get closer to May.
#CoeliacAwareness26 #WhatsYour64
Our Coeliac Awareness Campaign will return this May 🧡
This year we’ll be sharing a month of activity throughout May, with stories, information, giveaways and ways for the community to get involved.
You’ll also see supporters taking part in the 64 Challenge, our community fundraising challenge running across the whole month. We’ll be asking ‘What’s Your 64?’
16 May – International Coeliac Awareness Day – will be the focal point of the month, followed by a week of focused awareness activity.
Keep an eye on our channels as we share more in the lead-up to May.
Discover 64 ways to get involved this May 🧡
Join the 64 Challenge and help us reach the thousands of people still living with symptoms they don’t have answers for.
Right now, 1 in 100 people have coeliac disease, yet only 36% are diagnosed. That leaves 64% still searching for answers.
The 64 Challenge exists for them.
From baking and fundraising to moving more or bringing people together, there are 64 ways to take part and make a difference.
Find your 64 and get involved today.
Visit the link in our bio to explore all 64 ideas and start your challenge.
#WhatsYour64
Today is International Coeliac Awareness Day! 🧡
My diagnosis has changed my life in many ways. It can be challenging some days but I feel so much better since I’ve learned to live with coeliac disease.
I’m always so grateful for places that cater for us, it makes living with this a lot easier 🧡
#KnowTheFeeling #coeliac #coeliacdisease #coeliacdiseaseawareness #coeliacawareness
Coeliac disease is a serious autoimmune condition affecting around 1 in 100 people in the UK. It is estimated that around 64% of those people remain undiagnosed, meaning over half a million people may be living with symptoms. These symptoms when persistent, recurrent or unexplained can mask coeliac disease and have a big impact on the day-to-day life.
If symptoms feel familiar, encourage your audience to take our free self-assessment: .uk
#glutenfree #coeliac #coeliac64 #coeliacdisease
#autoimmune
IT’S INTERNATIONAL COELIAC AWARENESS DAY!
And I thought I’d use today to join all the other amazing people with coeliac disease sharing their own diagnosis stories! 🥰
I was diagnosed over 20 years ago and things have come a long way since then.
BUT 64% of people in the UK are still undiagnosed - which means we have to keep shouting about this and continue to raise awareness.
If you think you have any unexplained symptoms:
❌ Do NOT stop eating gluten (you need this for an accurate test)
✅ Go to your GP
💉Ask to be tested for coeliac disease
🔥 Visit the @coeliacuk page for extra support and info
What’s your diagnosis story? Share it in the comments to help raise more awareness!! 💛
Coeliac disease has been a big part of my life for a long time. Navigating it isn’t always easy, but I’m so glad I have my diagnosis to know exactly how to stay healthy. This coeliac disease awareness day, I’m joining @coeliacuk ’s campaign to raise awareness, so I urge anyone who thinks they might have a problem eating gluten to get tested for coeliac disease - it’s more common than you think and it could save your life! 🧡
#KnowTheFeeling
Happy International Coeliac Awareness Day 2026 🧡
Coming together as a community to raise awareness of coeliac disease.
This year’s theme is: Know the Feeling
Imogen was diagnosed at just 18 months old after two blood tests, following symptoms including:
🔸 Very swollen/bloated tummy
🔸 Loose stools / constipation
🔸 Fatigue
🔸 Open eczema patches
🔸 Unsettled / irritable behaviour
🔸 Sleepless nights
🔸 Very clingy to mummy
Coeliac disease is a serious autoimmune condition affecting around 1 in 100 people in the UK, yet an estimated 64% remain undiagnosed. That means over half a million people could be living with symptoms that are persistent, recurring, or unexplained… impacting daily life every single day.
If any of this feels familiar, please don’t ignore it. Trust your instincts and take a look.
👉🏼 .uk/is-it-coeliac-disease/is-it-coeliac-disease-assessment/
(Link in bio)
@coeliacuk
#KnowTheFeeling #CoeliacAwareness #InvisibleIllness #CoeliacUK #InternationalCoeliacAwarenessDay
May is Coeliac Awareness Month, and I had the privilege of being part of @coeliacuk National Campaign in 2024 to help raise awareness. As today is International Coeliac Awareness Day, I am resharing my story which I know will resonate with many.
Coeliac Disease is more common than many realise—affecting 1 in 100 people in the UK. Shockingly, only 36% are medically diagnosed, which means nearly half a million people are living with the disease unknowingly.
The long-term consequences of undiagnosed Coeliac Disease can be serious, ranging from malnutrition to increased risks of certain cancers to infertility and other autoimmune conditions.
It took me 12 years to get a diagnosis.
And sadly, that delay isn’t unusual—many people go undiagnosed for years, often being misdiagnosed or dismissed.
This is my story, and I share it to raise awareness, encourage others to listen to their bodies, and push for better recognition and diagnosis of this life-changing condition.
#celiac #coeliacdisease #coeliacdiagnosis #coeliacstories coeliacuk
Know the feeling?
This International Coeliac Awareness Day, voices from our community are coming together to share their experiences of symptoms, diagnosis and living with coeliac disease.
From stomach cramps and diarrhoea to fatigue and brain fog, many people know the feeling, but may not know the reason. The video also highlights the invisible load that can come with constantly thinking ahead, checking labels and navigating life gluten free.
Right now, 1 in 100 people in the UK have coeliac disease, yet only 36% are diagnosed. That means 64% are still living without answers.
A huge thank you to everyone who helped bring this video to life and raise awareness throughout May, including @beckadlington for sharing her experience 🧡
If these symptoms feel familiar, take the free self-assessment today:
isitcoeliacdisease.org.uk
#InternationalCoeliacAwarenessDay #KnowTheFeeling #CoeliacAwareness26 #WhatsYour64 #CoeliacUK #CoeliacDisease
The gluten free diet is important, but living with coeliac disease can affect much more than diet alone.
Dr Rosie Satherley highlights the importance of research, support and community in helping people manage the wider impact of coeliac disease.
Find more information about current research projects in our bio.
#MentalHealthAwarenessWeek #KnowTheFeeling #CoeliacDisease #Coeliac
