🟢 Today is CDG Awareness Day.
A day to recognise, to rally, and to rise.
CDGs—Congenital Disorders of Glycosylation—are a group of rare, complex diseases that often go undiagnosed for too long.
But behind the science are real people: children who seize, families, caregivers.
At @cdg_uk , we’re here to:
💚 Raise awareness so symptoms are spotted sooner
💚 Advocate for treatment pathways where cures don’t yet exist
💚 Support families through the unknown
This May 16, we’re asking you to do one thing:
#ThinkCDG.
Because when we recognise CDG, we can change lives.
🔗 Learn more and support our mission at [link in bio]
#CDGAwarenessDay #ThinkCDG #CDGUK #MakeRareRecognisable #RareDiseaseAwareness #RareButReal #FamiliesFightingRare
🚀 This May, we’re not just raising awareness — we’re taking action.
Through our Think CDG campaign, we’re working to:
🔬 Improve clinical understanding of the full CDG spectrum, so more families get faster, accurate diagnoses.
⚖️ Address inequities in access to diagnosis, care, and support — no matter where you live.
💚 Raise vital funds to drive forward research for treatments and cures.
Because every person living with CDG deserves recognition, hope, and a future.
Let’s make CDG seen, heard, and understood.
👉 Follow @cdg.uk and join the movement.
#ThinkCDG #CDGAwarenessDay #CDGUK #RareNotInvisible #MakeRareRecognisable #HopeForCDG
💚Today on CDG Awareness Day, we are coming together to celebrate every person and family affected by CDG 💚
CDG is rare.
CDG is complex.
CDG is often unseen.
But every individual with CDG is *built different* — with their own strengths, challenges, personalities and stories.
Today, we want to make *the unseen seen*.
We want families to feel recognised, understood and supported.
And we want the world to learn more about life with CDG.
Join us by sharing what CDG means to you and helping us raise awareness far beyond our community.
To learn more about CDG, support families, or find out how you can help, visit our website: /
Together, today we see CDG. 💚
#BuiltDifferent #SeeTheUnseen #TodayWeSeeCDGTogether #CDGAwarenessDay #RareDisease RareDiseaseAwareness CDGUK
![Today is CDG Awareness Day.A day to recognise, to rally, and to rise.CDGs—Congenital Disorders of Glycosylation—are a group of rare, complex diseases that often go undiagnosed for too long.But behind the science are real people: children who seize, families, caregivers.At @cdg_uk, we’re here to: Raise awareness so symptoms are spotted sooner Advocate for treatment pathways where cures don’t yet exist Support families through the unknownThis May 16, we’re asking you to do one thing:#ThinkCDG.Because when we recognise CDG, we can change lives. Learn more and support our mission at [link in bio]#CDGAwarenessDay #ThinkCDG #CDGUK #MakeRareRecognisable #RareDiseaseAwareness #RareButReal #FamiliesFightingRare](https://sp1.picnob.com/p/pt_6724101712732046332112_0_df2cfd9669f7c3cf27411e349300de4f.jpg?o=aHR0cHM6Ly9zY29udGVudC1pYWQ2LTEuY2RuaW5zdGFncmFtLmNvbS92L3Q1MS43MTg3OC0xNS80OTgxMjg4MTZfNzAwODg4NzE1NjM4NDU5XzI3ODA5OTM0MDE5NDY4MTY3MDJfbi5qcGc/c3RwPWMwLjI0OS42NDAuNjQwYV9kc3QtanBnX2UxNV90dDYmX25jX2h0PXNjb250ZW50LWlhZDYtMS5jZG5pbnN0YWdyYW0uY29tJl9uY19jYXQ9MTA3Jl9uY19vYz1RNmNaMmdIcTZTX0M5TGE2X2xiLVpUcllNdmktdXBFdGZrMmYzVWUxWFVXRmx6WHIyT2pvOTVieWxHSjFwN0g4aEdybExIMlVMYzkzeGcyRGlUdGwzb1BrS3RjeSZfbmNfb2hjPXlLS0dUc2pSRy0wUTdrTnZ3RWlEQnVoJl9uY19naWQ9UEZWQzVaNGYyamdlVHBFeTI1WTZPZyZlZG09QVBVODlGQUJBQUFBJmNjYj03LTUmb2g9MDBfQWY3THZiZXFEMjRWRm1Qa2lXeGxWa2dLYTRlSGhENmlXaEhaem1MMHpCczZnUSZvZT02QTBGRDAwOCZfbmNfc2lkPWJjMGMyYw==&h=1dec8e93d0a8ffd4ee439121b6b8d3fe)
