ALSapalooza is back! 🧡
Inspired by former elementary educator Mary Luper’s love of music and her passion for creating a world without ALS, this special night brings our community together for an unforgettable cause.
📍 May 16 | 6–10 PM
📍 The Continental Club | Greensboro, NC
Join us for an evening filled with:🎸 Live music🍽️ Great food🎟️ Exciting raffle prizes + 50/50 cash drawing
Featuring performances by: Johnny-O and the Jump Out Boys, Smitty and the JumpStarters, The Fabulous Nite Life Boogie
Enjoy Chicago blues, R&B, and jump blues classics—all while making a difference.
🎟️ Tickets: $40 minimum donation includes 4 raffle tickets for incredible prizes!
Raffle Highlights:
Ocean Isle Beach, NC vacation getaway (1-week stay (date coordinated with owner), Canal-front home with private pier, 5 bedrooms -each with a private bath)
O.Henry Hotel + Green Valley Grill package (One-night hotel stay, Dinner for two at Green Valley Grill)
Cooperstown Distillery specialty spirits (Unique sports-themed decanters, Award-winning rye & single malt whiskeys)
🧡 100% of proceeds benefit ALS United North Carolina
We were honored to have Claudia Beirne our Sr. Director of Care Services present a plaque to our valued clinic partner to show our appreciation for their continued partnership and continued support of the ALS community. We are so grateful for the Atrium Wake Forest Baptist ALS clinic team for their dedication and compassion. We thank them for making a meaningful difference in the lives of the people with ALS we serve and look forward to continuing this important work together.
The ALS Winston-Salem Walk on May 2 was a huge success, raising over $31,000!
Thank you to everyone who came out, donated, volunteered, and helped make such a meaningful impact. Your support brings us one step closer to better care, stronger advocacy, and a cure for ALS. We couldn’t do this without you!
Haven't gotten a gift for Mom yet? You still have time.
ONLINE:
Get your Mother’s Day shopping done TODAY and give back while you do it.
Use code GIVEBACK-ALS2026 at checkout and a portion of your purchase will support ALS awareness and care.
IN PERSON:
Join us on Saturday, May 9 | 1:00–3:00 PM for a special ALS United North Carolina Mother’s Day Fundraiser with Kendra Scott.
Enjoy sips and sweets while you shop—and know that 20% of proceeds will be donated to support families impacted by ALS.
Participating locations:
• Birkdale Village
• Friendly Center
• Cary (Fenton)
• Raleigh (North Hills)
Let’s celebrate moms while making a meaningful impact.
#MothersDay #ALSAwareness #GiveBack #HonorMom #EndALS
ALS United advocates from across the country are in Washington, D.C. this week for ALS Awareness Month, bringing local voices directly to Capitol Hill.
Today, ALS United member organizations are on Capitol Hill meeting with members of Congress and their staff to advocate for people living with ALS and their families.
Our message is clear: ALS requires urgency. That means advancing research, protecting access to care, supporting expanded access, and investing in the federal programs that help move the ALS field forward.
Supporters can help amplify this work from home by sending a message to
Congress through ALS United’s advocacy action alerts page: /advocacy-action-alerts.
Shop for a cause—starting now!
ONLINE:
Get your Mother’s Day shopping done TODAY and give back while you do it.
Use code GIVEBACK-ALS2026 at checkout and a portion of your purchase will support ALS awareness and care.
Shop here:
IN PERSON:
Join us on Saturday, May 9 | 1:00–3:00 PM for a special ALS United North Carolina Mother’s Day Fundraiser with Kendra Scott.
Enjoy sips and sweets while you shop—and know that 20% of proceeds will be donated to support families impacted by ALS.
Participating locations:
• Birkdale Village
• Friendly Center
• Cary (Fenton)
• Raleigh (North Hills)
Let’s celebrate moms while making a meaningful impact.
#MothersDay #ALSAwareness #GiveBack #HonorMom #EndALS
This May, ALS United is kicking off ALS Awareness Month right where the world is watching, Times Square. But awareness alone isn't enough. We need action.
Congress must pass the ACT for ALS Reauthorization Act before it expires on September 30th.
Here's what's at stake — and some of what we stand to lose:
The NIH Expanded Access Program has already given people living with ALS access to investigational treatments they otherwise never could have received.
The ALS research infrastructure that has created data sharing, including the data gathered from the ALL ALS Consortium, which has enrolled 1,200+ participants in the largest open natural history study of ALS ever conducted — building a foundation for every breakthrough that comes next.
This is momentum. Real, hard-won, life-changing momentum.
Ask Congress to pass this bill today: /campaign-page?cid=D9ywLshuaKgGZbKAWUKOI
What a powerful way to kick off May!
We’re grateful to both the Town of Cary and Governor Josh Stein for recognizing May as ALS Awareness Month in North Carolina.
These proclamations shine an important light on the individuals and families impacted by ALS—and help drive awareness, advocacy, and support across our communities.
Let’s keep the momentum going—by educating, supporting, and standing alongside those affected as we work toward a cure.
A powerful moment for our community.
Yesterday, Asheville officially recognizes May as ALS Awareness Month received by board member Margaret Black and the doctor our UNC Pardee Clinic Dr. Machemehl.
This visibility matters—and it brings us one step closer to change.
The numbers are in—and it just keeps getting BETTER! 🤩🧡
As of today, we’ve raised $347,170 for Walk ALS Triangle—and donations are still coming in!
We’re beyond grateful for this incredible community and the impact we’re making together. Stay tuned as we continue to celebrate everything you made possible.
Share your photos and videos from Walk ALS Triangle so we can celebrate this incredible community together! Use the link below to upload your pics/videos and to view + download photos from our amazing event photographers.
https://bit.ly/48v9Rab
#WalkALSTriangle #ALSUnitedNC #EndALS
One walk down and ready for the next one which is this weekend!
4days until we walk in Winston-Salem!
There’s still time to join, donate, or start a team.
Let’s make every step count.
Register today:/site/TR?fr_id=1260&pg=entry#section--participate
