"I often talk about how helpless I felt at times as my father dealt with ALS. Since his passing, I’ve devoted much of my time volunteering in different capacities with ALS Canada, trying to finally feel useful and helpful in the face of this disease, doing my part to work towards a world where no family ever has to go through what mine did. Including ALS Canada in my estate plans gives me comfort that those efforts will continue even when I’m no longer here." - Mike Spivock, ALS Canada Lifetime Legacy Donor.
🔗 Click the link in our bio to learn how you can become a lifetime legacy donor this #LeaveALegacyMonth.
Applications are now open for the ALS Canada Kevin Daly Bursary 💜. Chris Clarke, a 2025 recipient, shared some encouraging words to students navigating their studies alongside the impacts of ALS.
📚 Established in 2023 in partnership with Kevin Daly, with support from his family and friends, this bursary provides a post-secondary student whose life has been affected by ALS with $2,500, continuing Kevin’s legacy of compassion and dedication to others.
The application process for the 2026-2027 academic year closes at midnight ET on June 16, 2026. 🔗 Click the link in our bio for more information.
Join ALS Canada for “Caring Through Grief: A Webinar for ALS Caregivers”. 💜
On Tuesday, May 19, at 6:30 p.m. ET, hear from Andrea Warnick of AWC Grief Support and ALS Canada as this supportive webinar explores the unique grief experience of ALS caregivers, including common myths, well‑intended but unhelpful advice, and how to respond.
The session will share practical strategies for navigating sorrow, guilt, and complex emotions while finding moments of connection and meaning. 🔗 Click the link in our bio to register for free today.
⏱️ There's still time to take advantage of the opportunity to DOUBLE your donation - but only until tonight!
Thanks to Team Floyd from Toronto, until 11:59 p.m. ET tonight, all donations made online to the ALS Canada #WalkToEndALS will be matched up to $5,000. Double your impact in honour of a loved one. Click the link in our bio to make your donation today and be a part of creating #aWorldFreeOfALS.
Curious about the clinical trial landscape for ALS? 🔬
On Friday, May 15, at 12:00 p.m. ET, tune into ALS Clinical Trials Unboxed to learn about ongoing ALS clinical trials in Canada and globally for people living with ALS. In this webinar, Dr. Angela Genge, MD, FRCP, Director of the ALS Centre of Excellence for Research and Patient Care in Montreal, will provide a review of the currently enrolling clinical trial PREVAiLS, a Phase 3 study on Pridopidine for the Treatment of ALS.
🔗 To register for the free webinar, click the link in our bio. Participants are encouraged to submit their questions in advance.
We are pleased to welcome Kyle Thompson to the ALS Canada Board of Directors. Kyle is no stranger to ALS Canada or the ALS community, serving on the Finance and Audit Committee for the past two years and hosting fundraisers. ALS Canada is grateful for Kyle’s continued commitment and looks forward to the perspective and leadership he will bring to the Board.
🔗 Read more at the link in our bio, and please join us in welcoming him.
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Nous sommes heureux d'accueillir Kyle Thompson au sein du conseil d'administration d'ALS Canada. Kyle n'est pas un inconnu pour ALS Canada ni pour la communauté de la SLA, puisqu'il a siégé au comité des finances et de l'audit et organisé des collectes de fonds au cours des deux dernières années. ALS Canada lui est reconnaissante de son engagement sans faille et se réjouit de la vision et du leadership qu'il apportera au conseil d'administration.
Rejoignez-nous pour lui souhaiter la bienvenue ! 🔗 Pour en savoir plus, consultez le lien dans notre bio.
A diagnosis of ALS brings many layers of loss – both immediate and unfolding over time.
💻 On Thursday, May 14, at 2:30 p.m. ET, join grief therapist Andrea Warnick and ALS Canada for “Living and Loving with Loss: A Webinar on Navigating Grief While Living with ALS”.
This compassionate webinar explores the unique experience of grief while living with ALS, addressing common myths, emotional challenges, and practical ways to find connection and meaning along the way. 🔗 Click the link in our bio to register for free.
With admiration and gratitude, we acknowledge the incredible contributions of our ALS Canada Board members, Richard Ellis, Lisa Flaifel, and Dr. Angela Genge, whose terms have come to an end. Each has contributed their time, expertise, and lived perspective to help guide the organization during a period of important growth – we thank them for their dedication, generosity, and commitment.
🔗 Read more at the link in our bio.
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C'est avec admiration et gratitude que nous rendons hommage à l'incroyable contribution des membres du conseil d'administration d'ALS Canada, Richard Ellis, Lisa Flaifel et la Dre Angela Genge, dont le mandat est arrivé à son terme. Chacun d'entre eux a mis à disposition son temps, son expertise et son expérience personnelle pour aider à guider l'organisation au cours d'une période de croissance importante – nous les remercions pour leur dévouement, leur générosité et leur engagement.
🔗 Pour en savoir plus, consultez le lien dans notre bio.
From untangling the biology of TDP‑43, to uncovering new ALS risk genes, exploring the gut–brain connection, and highlighting Canadian‑led projects we’ve supported, our latest Fundamental Research Update takes a dive into what’s happening in ALS labs right now.
These early discoveries are helping us better understand ALS and shaping the future of potential therapies.
🔬 Read the full update via the link in our bio.
Exciting news 💥Your donation to the 2026 ALS Canada #WalkToEndALS will be matched—dollar for dollar—until Friday, May 8 at 11:59 p.m. ET!
For the next five days, thanks to Team Floyd, all online donations to the ALS Canada #WalkToEndALS will be matched up to $5,000. This is your chance to DOUBLE your impact and join us in creating #aWorldFreeOfALS. Click the link in our bio to make your donation today.
Throughout May, we recognize #LeaveALegacyMonth. 💜 Legacy giving is a way to honour a cause near to your heart by leaving a donation in your will – an opportunity to make an ongoing difference to the ALS community.
This #LeaveALegacyMonth, learn more about becoming an ALS Canada Legacy Donor by clicking the link in our bio.
From Ottawa to Toronto to Thunder Bay, the ALS Canada #WalkToEndALS takes place across Ontario at 22 locations and virtually! 💜
A friendly reminder: our in-person Walk events will be cashless. Make sure to bring your credit and debit cards, or mail in your cash and cheques ahead of time.
Join us as we rally for change at a Walk to End ALS location closest to you.🔗Click the link in our bio to register and start fundraising today.
