Carly Lorraine

captured a very cute smile from @_carlycat as she put on this cute Flamingo scarf our sweet and thoughtful friend @kath.ar.ine got her! [for those who don’t know, Carly and I are both flamingo hounds!]Thank u Katharine 🙏🦩💕 also, as bonus content, please enjoy this uncommonly severe looking picture of Hoho! [pic 2] @ozzyandhoho @heralsstory

I asked Carly what shows she thinks people should go to this weekend - I think I gotta take her advice! @_carlycat @see_saw.fun @new_world.mpls tonight @eagles34events tomorrow

I thought I was late to celebrating my 2 year diagnosis anniversary, but last year I posted on the 18th, so my mom will have to tell me if I am late or not. The life expectancy you always hear with ALS is 2-5 years. I'm happy to be joining the average. It feels like my progression has not stopped at all. I have very little control over my body at this point, but I feel like my breathing is still alright. I will have a new headrest that will completely support my head, because my neck has become very weak. I can't wait, but I feel self conscious about it. worth it x a million. Due to bureaucracy and very frustrating misunderstandings, I still don't have the one "thing" I need, which is help. A trained professional to come to my apartment and care for me. I am doing all the things I am supposed to do, I'm jumping through the hoops. It's just taking a long time. Just like it does for everyone. Sometimes having a ALS diagnosis works in my favor and speeds up certain paperwork-y things, but time is not on my side when it comes to CADI waiver stuff. There's no good way to be real about how things are going without me feeling like I have to assure people that I am okay. But I am doing alright. C'est la vie!

as you may have noticed, I’m a big Cat in Carly’s lap head… but this moment had extra significance - while a Hoho in her lap has become a norm 😻… Ozzy is more of a wild child, always on the go! like the white rabbit from Alice in Wonderland, always running out of time to be nowhere etc… I tried to capture a tender moment of Ozzy giving Carly a kiss after an uncommonly long cameo in her lap, but I was late to the draw (is that a saying? like cowboys drawing guns or something?). HOWEVER, Carly’s cute smile reaction here is infinitely better! 😍 thank you for your time, and have a blessed day ❤️ @_carlycat @ozzyandhoho

@_carlycat & Hoho have become one person ❤️

a few more cute moments from my trip to the MOA aquarium with Carly and her mom. this place is VERY aquatic! 1- me n Carly 2- Carly sees the big turtle (her name is Calypso) 3- Carly’s mom sees a lizard 4- shark thank you for you time, and have a blessed day @_carlycat @be_lax

everyone please remain calm. this is a frog on the window alert from the Carly Broadcast Service. I repeat - frog on the window alert. (kinda hard to see the frog in this pic, but that’s why we have the alert system)

incase you need a moment of cuteness during these horrible times. here’s a picture of @_carlycat as a little girl that her Grandma sent me! thank you, Myrna Olds! ❤️

Please listen to these words. 10 years after Philando Castile was murdered, the entire country can see what she, and so many other Black people, could see so clearly It's never too late to change your heart. It's not too late to change the world. We all need each other.

Hoho keeps me warm while stealing my heat. I feel adorned with love and its tokens . Two bracelets - one for @undercurrentmpls , the other a gift from a young kid at the ALS walk that says END ALS. My blanket is a gift from @futureyesteryear and I believe that my shirt is as well. If I receive an unexpected gift without a note, I assume it's Erika! It's astounding how small my world became once I stopped being able to open things, hold them, examine them, bring them closer to read. I feel pretty clueless. I view it as an initially uncomfortable, but sometimes rather freeing loss of control. Anyway, I feel the love with every single message, picture, postcard. It's really exhausting to type, so I as always apologize for my lack of communication. I have endless things to say, but they are stuck behind the wall of my eyes. I really understand why people give up on using eye gaze when you spent your whole life being able to talk. It's amazing and I LOVE my tobii. But anyone who has been around me using knows it's a learning process for everyone . It requires an entirely new flow of conversation. Before I finally stop rambling, I need to to say that if you attended @bmanpoop birthday or bought Bman Sucks merch, you have helped me in a tangible way. My disease progression seems to come with an endless stream of products needed. A lot of things are covered in one way or another, but the things that aren't covered often amount to hundreds per bill or purchase. There is so much to be sad about, to be scared of, but as I can attest, and as the Twin Cities has been showing us, there is joy and healing and safety when we see ourselves as a community and care for and protect each other thusly. I hereby revoke any responsibility for proofreading this, because I am sleepy.

Make us proud, Darnold. Go Seahawks!

read the words please